Author focuses on 'new autism'
By Elaine Jarvik
Deseret Morning News
Here's what Dr. Bryan Jepson thought he knew about autism six years ago: that it was a rare, genetic, developmental, untreatable brain disorder. But that's the "old autism," he says.
Jepson, who graduated from the University of Utah School of Medicine in 1995, says what he knew about autism then he mostly learned from the movie "Rain Man." Later, in 2001, his lovable, happy 18-month-old baby began to change — to "fade away," as Jepson puts it. The toddler no longer wanted to be read to, wouldn't look his parents in the eye and liked to spin in circles in the middle of the floor.
A child psychiatrist told Jepson and his wife, Laurie, "Prepare yourself for the time when Aaron will need to be institutionalized. Forget experimental therapies."
Instead, Laurie Jepson took to the Internet. And before long, her husband — who categorizes himself as a "mainstream" physician — was deep in medical literature about the biochemistry of autism. Soon he was convinced that autism is a complex metabolic disease that has as much to do with the gut as it does with the brain.
Bryan Jepson, who is now director of medical services at Thoughtful House Center for Children in Austin, Texas, is back in Utah this week to talk about his new book, "Changing the Course of Autism: A Scientific Approach for Parents and Physicians." On Saturday, he will speak at a free workshop sponsored by Porter's Hope, a Utah-based company that assists the families of children diagnosed with autism.
"All of a sudden, there's an explosion of autistic kids," Jepson says. As recently as 1980, autism was rare, with a rate of about 1 in 5,000. Now, he says, it's 1 in 160.
It's an epidemic, he says, "and there's no such thing as a genetic epidemic."
At the same time, the "new autism" is less likely to show up within the first six months or year of a baby's life, and is much more likely to be "regressive," showing up at 18 months to 3 years to rob the child of previous skills — sometimes almost overnight, sometimes as a gradual decline.
There's a genetic susceptibility for autism. But something else has to explain the sudden rise in numbers — and it's not simply a matter of better diagnosis or a broader definition of what autism means, he says.
The answer appears to have something to do with the increased toxicity of the environment, he says, from food additives to vaccines and antibiotics. Children who are born with a genetic susceptibility for autism have trouble detoxifying, he says.
The increase in other chronic diseases such as asthma is evidence that autistic children may also be proof of what's to come, he says. "It's kind of like the canary in the coal mine."
Already, he says, the treatments he uses have helped children with attention-deficit hyperactive disorder, or ADHD, as well as autism. He believes that eventually the knowledge of how autism works will affect our understanding of conditions such as chronic fatigue, dementia and Parkinson's.
Jepson's book is a review of scientific studies conducted by the Autism Research Institute, whose founder, Bernard Rimland, was "the first to put the puzzle pieces together," Jepson says. The book also examines studies done by independent scientists.
Many primary-care physicians and pediatricians are not up-to-date on the latest research, he says, "and it's hard to do autism in the 15 minutes" allocated for many doctor visits. Jepson, who founded the Children's Biomedical Center of Utah before moving in 2006 to Texas, says he knows of only two Utah doctors who are currently treating autism as a medical disease rather than a behavioral disorder.
Calling autism a behavioral disorder, says Jepson, is like calling a tumor a headache. Instead, he says, autism is just one symptom of a disease process that affects the digestive, immune and neurological systems.
The majority of children with autism have gastrointestinal problems, sometimes causing severe pain. Their tantrums and head banging may be a manifestation of pain they can't articulate, Jepson says. If the gut disease is treated — with diet, nutritional supplements and medication — that behavior goes away.
"Your gut is an immune organ, and it can trigger inflammation elsewhere in the body, including the brain," he explains. "And it's a big source of your metabolism. If it's not working right, you're not getting the appropriate amount of nutrients from your food, and you're not preventing toxic exposures as you otherwise would."
The sooner children are put on aggressive gastrointestinal-immune-detoxification treatment, the more likely they are to recover, he says. There's still no cure, he says, but the vast majority improve. The Jepsons' son has gone from "pretty severe to pretty moderate."
News and commentary on the autism epidemic and my beautiful boy who is living with autism.
July 29, 2007
Author Focuses on 'New Autism'
Buy two copies, one for you and one for your pediatrician.
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Rats! 10 minutes from my house and I find out a day later that this Dr is speaking.
Why is he so convinced it's only toxicity? The only known cause of autism right now is advanced paternal age, and it says he fathered his baby 5 years after he graduated from medical school. Why doesn't he take some responsibility for that instead of remaining in denial? Being honest about it can help other people! A lot of people don't know that the risk of nearly every genetic disorder increases as paternal age does. The sperm gradually develops more and more mutations.
I am fascinated by the change of the "face of autism". My first exposure to the A word was watching the made for TV movie SON-RISE, about a young boy with autism. It was the personal story about Raun Kaufman, and his apparent cure from autism.
Years later my son was diagnosed as a-typical, ultimately receiving the autism diagnosis.
Ironically, when he was 4 years old and had very few words of language we took him to Canada for auditory training. Following our visit he contracted a parasite and was hospitalized. Doctors believed he might have picked up the parasite from lake water. Consequently our son was denied solid food. One day, without provocation our monosyllabic boy uttered "I want spaghetti" Was it the automatic behavior modification (no food), was it the auditory training, was it the "leaky gut" associated with autism?
The mystery continues.
I cannot fathom how Brian Jepson can possibly believe that autism is a medical disease and not a psychological disorder. Why, then, does Applied Behavior Analysis have a 98% rate of improvement? Granted "improvement" is far from "recovered," but if autism were solely a medical problem then psychological interventions such as ABA would have an improvement rate no greater than chance.
When people have brain damage, due to anything, they can still learn.
ABA is a teaching tool that works on those who have trouble with traditional learning.
Autism is a medical illness. But it doesn't mean that those with it can't learn any more than anyone else with any other medical condition that impacts cognition can still learn.
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