April 2, 2012

I Want To Punch Autism Celebration Day In The Damn Throat

Light it up blue!
So how * many years are we going to do this?

Hey America!  1 in 88 of your children is disabled for life (up 23% from two years ago, but no worries, just better diagnosing!)... they will cost a few million each to raise and care for, few will marry or have fulfilling careers, they will be bullied by peers, neglected by school systems, abused by caregivers and sexually assaulted by predators when you turn your back.  Many will die from seizures, anaphylaxis, drownings, accidents, negligent homicides and be murdered long before their time, and at best, they still won't be able to fully communicate with you, the parent, who longs to have a close relationship with your baby.

They will struggle every day in ways I never will.

Most of this is, of course, entirely preventable, as CDC, AAP, HHS, AS et. al. knows * full well that this is an environmentally caused epidemic, as autism didn't even exist in the medical literature before the 1940s, but instead of actually facing that there is a society altering problem... a course of history altering problem...

Lets  * Celebrate Autism Day And Make Things Blue!  

('Cause Autism Speaks needs some more cash for their * Park Avenue offices... the economy has been rough on them you know... Geri Dawson had her salary cut from $640,000 to $435,000 for her super intense job of looking very busy and important while NOT * curing autism.)

So * sick of this garbage.  Off to celebrate this day at a * IEP.  Pretty sure that everyone in the room will be wearing party hats and telling me how thrilled they are that my child has autism, what with autism being something to celebrate and all...

* feel free to mentally reinsert the curse words that I removed before publishing.  I am angry.

Just reposing my column from last year:

World Autism Awareness Day: Autism Exists, Let's Celebrate? Even Though It's Killing our Children?

April 2, 2011

My regular readers already know how I feel about Autism Awarness Day/Month. Everyone is aware already, how about actually doing something about it? No... instead let's just wear blue and do nothing. Except, of course, give money to Autism Speaks. Their party budget is getting low and Geri Dawson has horses to feed.*

Anne Dachel makes the case yet again this year:

I have a hard time each year with AUTISM AWARENESS DAY/MONTH. This is the Fourth Annual International Autism Awareness Day. How long are we going to pretend that all this autism is normal and acceptable? Seriously, how bad do the numbers have to get?

A number of stories out in the news calling for the public to "celebrate" the day. Today is World Autism Awareness Day by Kristina Chew "Today, April 2, is the fourth annual World Autism Awareness Day, during which 'autism organizations around the world celebrate the day with unique fundraising and awareness-raising events.' "

Pueblo Chieftain: Blue balloons raise autism awareness, "The baby blue balloons that Jonah and his classmates at Beulah Heights Elementary School released were to celebrate the beginning of National Autism Awareness Month. The event is celebrated each April, while the World Autism Awareness Day is today."

Sioux Falls Argus Leader: 5 questions: Shedding light on autism, "The falls will be colored blue by lights in support of the Autism Speaks' global Light It Up Blue campaign to celebrate World Autism Awareness Day and Autism Awareness Month."

Lufkin Daily News: Peavy students working to raise autism awareness, "Because of the prominence of the disorder in boys, blue is the official color for autism awareness and the reason the entire Peavy campus was encouraged to don the color Friday to celebrate Autism Awareness Month."

Berkshires.com: Diversity Takes Center Stage in the Berkshires, "'We have so many people supporting this committee right now,' said MaryLee Daniels, director of the Berkshire office of the Department of Developmental Services, and committee member.

"BFAIR, BCArc, the list goes on as to how many organizations support this initiative. We especially want people to join us in celebrating three different months of diversity. Of course, last month was Black History month. This month is Developmental Disabilities month and next month is Autism Awareness month. We have so much to celebrate here."

What is there to celebrate?

Lots of stories are about lighting things up in blue for autism awareness. Lots of them talk about autism being a developmental disorder affecting one percent of children whose cause is unknown. This is done without any alarm or demand for answers. We have been conditioned to accept autism as the perpetual mystery.

As the parent of a son in his 20’s with autism, I’ve had several decades of experts knowing nothing about this disorder. Is this to be the epidemic without a cause?

Looming in the background is the reality of what autism is doing to us. As I listen to the dire predictions about the hard economic times we're in and the need for austerity, I have to ask how in the world we're going to address the needs of the generation of children with autism about to descend on America as adults.

Dr. Thomas Insel is the wet blanket in all this celebration, acceptance, and awareness of autism.

He's the head of the Interagency Autism Coordinating Committee created by Congress to deal with with the disorder and he says that 80 percent of Americans with autism are under the age of 18. He's warned us we have to prepare for a million dependent adults "who may be in need of significant services." The IACC now calls autism "a national health emergency."

Maybe a better name for April 2 is World Autism Emergency Day.

Anne Dachel
Media editor: Age of Autism

Anne is right. And I gotta wonder, exactly how long this PR BS is going to continue.

And the biomed community isn't even being remotely polite about this any more. These are the two images that are being passed around on facebook today:

Last year I began a new blog. Lives Lost to Autism. I got more than a little bit sick of the blatant fear mongering of death by diseases that are NOT killing Americans, like measles, while the deaths of our children caused by their autism go unlamented and ignored by health authorities.

Last year 10 children died of Pertussis and the response was a national campaign to get people vaccinated (both adults and children), new state vaccine mandates are being pushed through, and the press on it has been everywhere. Last year at least 27 children and adults died as a direct result of autism, and unless you are in the autism community, or one of these deaths happened in your town, you probably never knew it. Even then, it is always an isolated incident, yes? (There were 41 reported deaths following the pertussis vaccine last year, but that is a whole other story.)

And those 27 autism deaths are only the ones who came across my google alerts for "autism deaths" or "autism died" or "autism drowning." The test I use on how to include them is basically, "would this have happened to this this person was neurotypical?" Who knows how many more went unreported or didn't get picked up by google. I would love to quote an actual statistic on how often autism kills, or how their incidence of premature death compares to the general population, but no public health agency cares enough to track this.

But insurance companies, whose bottom lines are effected by deaths and actually need to know if autism is deadly, won't sell life insurance policies on children with autism younger than 10, because it is not a good risk for them. See the problem there?

Our precious ones drowned, were murdered by caretakers and loved ones, were shot by police, suffocated while being restrained, were hit by cars, burned to death in fires, died from neglect and were killed by seizures. A few of them even killed others during their own melt downs.

Bryan Nevins, age 20, died because, on a hot day, he could not simply open the door of a van and get out. His institutional caretaker was on her cell phone and forgot about him for five hours. She is in jail now.

Autism kills and our government could not give less of a damn.

Autism Speaks doesn't seem to want to make that point that autism kills more than whooping cough, because then the public might actually begin to see this as a public health emergency and demand results... and then were would AS be? The party financing would dry up. Better for them to let autism linger and keep sucking up cash from suckers as they pretend to do something about it. Autism Speaks has found quite the cash cow.

(Speaking of... Guidestar finally posted AS's 2009 tax returns... they took in 45.5 million, and less than a quarter of it went to grants to do what the purported purpose of the org is, "Autism Speaks (AS) funds research into the causes, prevention, treatment and cure for autism. AS raises public awareness about autism and its effects on individuals, families, and society. AS aims to bring the autism community together to urge government and the provate sector to take action to address this urgent global health crisis." Of the whole list, "autism awareness" is the only thing that I think they actually have accomplished since their inception.)

And HHS's admissions that yes, vaccines CAN AND DO CAUSE AUTISM would mean that HHS has been able to do something about this FOR YEARS and has not done it. It means that those vaccine cases can be avoided by screening for mitochondrial disorders, autoimmunity and toxicity, and treated early on if doctors were actually taught that "vaccine induced encephalopathy" exists and if recognized and treated immediately that it may minimize or even prevent many cases of autism from developing.

And that might also mean that the people who have been sitting on this information for years, and decades, might suffer some consequences.

But AS has decided to ignore HHS's own claims of vaccine autism causation and openly declared that everyone should stop talking about the vaccine autism link.

Better that we just "wear blue" because dealing with all that ugliness would just be too ugly.

This is my post on "Autism Awareness" from 2008 entitled, "Insensitive Jerk Makes a Good Point". Nick sees all the signs that tell him that Autism is everywhere, but tells him nothing about what to do about it. And this was three years ago. I should try to track Nick down and see if he has figured out what he can do about it yet.


Make sure you wear blue, write a check to AS, vaccinate your baby, give him a dose of Tylenol, feed him GMO's and then go back to sleep. They experts are handling it for you.

Insensitive Jerk Makes a Good Point
By Ginger Taylor, Adventures In Autism
APRIL 13, 2008

Last week Nick Jameson, college smart ass, wrote a piece on his reaction to the autism awareness campaign currently under way. One currently struggling with autism might be put off by his callousness until one remembers that he is only 22 and that we were all pretty much insensitive smart asses at 22.

I would encourage all to allow Nick a chance to grow and check back with him in 10 years or so when he is expecting his first child and see if maturity has tempered his stance.

But what is useful from Nick, random college punk, is this reaction:

For example, what is the purpose of putting up a billboard that is telling me a child is born with autism every 20 minutes? What can I possibly do other than sit in my car and mutter to myself, “Well that sucks.” Maybe if there was a cure or even ways to help prevent autism, it might make more sense to have a billboard. Then it would reinforce concepts in people’s head that they could apply later like “only you could prevent forest fires” or “don’t eat cheese before noon.” But frankly, all this billboard is really saying is, “Beware, autistic people are everywhere,” and I’m sure that isn’t the message they want to get across. We already know autism exists; give us something we can work with. If the autism front wants to put us through a year of sappy ads and TV specials, than at least make it worth the time and money and headache. Teach us something. I was on my way to New York City this weekend and every toll booth was littered with autism propaganda. Did I learn anything? No. There are more intelligent ways to get out a message to the public.

Does Nick know that there are successful treatments available? Does Nick know that there are some kids who are completely recover from autism? Does Nick know that there are things that he can do to prevent his own children (should he ever become soft hearted enough for a woman to agree to marry and/or procreate with him) from slipping in to autism?

Apparently not. And that is the fault of the media who won't report the whole story.

So our young Nick has made a great point. One that parents like me have been trying to make for years now. "Autism Exists" is a message that everyone got a few years back now. But the important message, "Autism is Treatable and Preventable" is one that the media will not share with him.

What is it going to take for them to tell the whole story?

In ten years, when Nick is expecting, will he have heard this message from the media? Or, like us, will he hear it from another parent on the playground after Nick Jr. is diagnosed with autism?

Addendum: Autism Speaks had a huge chance this month to get the treatment message out and yet again, they are screwing children by with holding the important message. They certainly have the cash to do it.

/End 2008 article

*Ok... I actually have no idea if Geri Dawson has horses, but I do know she lives on a ranch or a farm or something, so horses... not out of the question really.


Sam Felsenfeld said...


Unknown said...

Yep! I felt a little guilty when I saw on one of my friend's Facebook posts that it was "blue" day ...and I forgot to wear blue, or light up the house blue...or whatever it is you do blue today. Then I realized...wait a minute...I suppose I shouldn't be so hard on myself because I'm actually too busy taking care of my kids w/autism to even notice it was "recognize autism day"...I think today should be "I Wanna Punch People in the Effin Face Who Look at Me Like I'm a Freakin Alien When I Say the Vaccinations Caused My Kids'Autism Again Day"....I noticed what you mentioned about seizures as well. People (along with trained neurologists) generally concur seizures are non-life threatening. Tell that to my daughter who almost died form a catatonic seizure which lasted an hour (they had a very hard time stopping it) when she was 4 1/2. To this day they have no explanation as to why it happened. Could it be that she became a zoned out zombie and stranger to all of us after her immunizations? Hmmmm....

Anonymous said...

I agree with everything you said here. I don't understand why people won't find out the truth. Considering it is one in eighty eight children, and your child could be damaged next. You bring up many of my suspicions about autism. I truely believe the government is poisoning our children to implement population control. Bill Gates even admits this on youtube, and he funds vaccines. The government eliminates people to control the few. Look at the Georgia Guildstones it even list their agenda on there. When asking my pediatrician about alternative solutions or treatment for my son. I'm told well we don't support that because of the scientific community does not agree with it. In the meantime my child is suffering. What an evil world this is, and I will be glad to finally be in heaven someday with my son. I feel so bad getting his vaccines, but no matter what I realize these people have a sinister agenda. They will even spray the skies with chemtrails to poison us all. You finally see they don't want to cure it. They know what is causing it already they want people to die so they can control the rest. While making money, and making you believe your child is just a special indigo child. We have internet now use it to your advantage nothing is hidden anymore. All it takes is a simple search to see all the people damaged, and killed from autism. Even recovery stories from autism vaccine damage. An italian family sued the government after their son got autism from the mmr vaccine. You can even watch people who have kids with severe autism they want answers, and all we get is a blue party. It makes me sick all I can do now is pray that God gets a vaccine vial in the hands of someone who can test it, and expose it nationally so these people can't lie anymore. There are many doctors who do care about our kids, and admit vaccines could be a cause. They try to help us the best they can. These are the doctors we need to see not those who care about reputations, and studies without doing research themselves. They don't have our best interest in mind. I urge all parents with autistic kids to get their kids tested for toxic metals, and get results on paper so we can approach these people who enjoy blue parties, and demand answers. Even bring these results to government, and everyone who will listen. Then lets work on removing the poison from their bodies there are people who will do this. Lets have all parents of autistic kids protest this celebration day with signs that tell the public what their kid does in a day, and how their lives are affected. That is real awareness I still have people thinking I'm the worst mom in the world, and my kid is just a brat. People need to know autism can affect your life even though you don't have a kid with autism. If we work together instead of using these support groups who could give a rats rear about us then maybe we can get something done.

Anonymous said...

This was one of the first google results for "autistic people should be killed" so it's perhaps not surprising how revolting this is. How is it possible that you don't see that you are part of the problem? Every single one of those deaths listed in your blog is caused, not directly by autism, as you suggest, but by our society's fucked up attitudes toward autism and autistic people. Children being murdered for living in a society that says that it's okay and forgiveable to kill an autistic child. People being killed by abusive handlers or police or the courts. People getting hit by cars or drowning or in other such mundane circumstances unrelated to our autism. Further alienation, stigmatization, and emotionally abusive words will not reduce these sorts of deaths, only promoting a world filled with awareness and tolerance of autistic people and our existence can do that. And to make that world, celebrating is exactly what is needed. Don't mourn us. Don't make us into some kind of morbid epidemic. We are people, and we deserve respect.

That said, Autism Speaks is a horrible organization, but because they perpetuate hateful, damaging rhetoric (much like your own) to line their own pockets and push for the extermination of autism (which is really the same thing as the extermination of autistic people).

Also, there have been studies on the connection between vaccines and autism and there has been no causal link established. The people who did the first study that established the urban myth came out to say it was all a sham years ago and all that it's really accomplished is a resurgence of preventable actually deadly diseases like smallpox, measles and whooping cough.

Alex J. said...

Do you really want some guy who cant open a car door to share society with you. Its survival of the fittest all over again. Honestly if he cant perform a simple action he is doing us all a favor.

Truth Unleashed said...

I don't want people with Alex J.'s attitude to share society with me.

Unknown said...

You Mabye want to reconsider your thoughts about autism im autistic and i dont feel like a alein i want to help people it is just hard when people say this type of stuff your probobly makeing it more likely for the aleins to want to hate you

Ginger Taylor said...


You miss the point of the article.

And no where has anyone compaired anyone with autism with "aliens."

Anonymous said...
This comment has been removed by a blog administrator.
Ginger Taylor said...
This comment has been removed by the author.
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