July 24, 2014

Invisible Threat: Ugh.

I've been gone for a long time doing Health Choice and media work... please forgive... blah blah blah...

So tonight I was down in Portland for some business meetings, and after the first Scott and I walked two blocks to Starbucks for a coffee.  I was at the table when he brought my drink and dropped a piece of paper in front of me.  "Look what I found on their bulletin board."


It was a flier for the new "hit" vaccine propaganda piece, "Invisible Threat."  (Since when to people who are in a film, review the film? Oh wait... HHS owns patents on the vaccines it licenses and recommends... forgot who I was dealing with.)

Watch the trailer below and be terrified that your child will die of disease if you don't vaccinate.

Invisible Threat Trailer from CHSTV Videos on Vimeo.

It is, of course the same old, same old, but with a twist this time.  This was not done by the vaccine lobby, this was done by unbiased high school students!

So I was all... "UGH... too bad I can't go, cause we gotta meeting.  And it starts in 12 minutes."

Then Scott was all, "Just drop me off and go, you don't even need to be at this meeting."  So I did that.

And there was a good reason to go... because I know a bit of the back story for this film.

You see I have a beloved friend and advocacy partner named Becky Estepp.  You all know Becky, she has been a regular on Fox News Channel, and lots of local San Diego area news pieces for years.  If you want to talk a parent in Southern California who can discuss the problems with the vaccine program, and its relationship to the autism epidemic, Becky is your go to gal.

Four years ago, she got a phone call from a high school boy from CHSTV, an awkward sophomore, who said they were making a documentary, and had some questions.  Becky had a long conversation with him, but could tell some of the things she was trying to teach him were a bit over his head.  Then she never heard from anyone on the film again.

Cut to this year when she sees the trailer for "Invisible Threat," and realized THIS was the project she was interviewed for. A totally biased piece, allegedly done by teenagers, that was a bit difficult to believe was done by teenagers.  Why did they not interview her for the actual film?  Great question... I wondered too!

We also wondered, "Kids made this?  Really?"  From my estimation, yes they did.  But it seems pretty obvious that they were lead around by the nose on what what and how to "investigate."  In fact we were told at the outset that one of the kids parents worked for Scholastic and "helped" the kids.  I am sure that Rotary "helped" too.  Also apparently the Gates Foundation, "helped"... so....

Fortunately there was a parking space right by the building and I whipped into my chair with one minute to spare before they started.  A very attractive lady from Vax Maine Kids (I think) explained that these kid had done two award winning documentaries, and were approached by The Rotary Club to do a pro-vaccine documentary.  The kids, of course, turned them down because they wouldn't do something like that, but then agreed to make one on their own terms where they would investigate the issues and then make their movie on what they had learned. (Yes they took the money.)

(P.S. Don't take your medical advice from Play Boy Bunnies, take it from teenagers?)

She explained that this was the first time the film had been shown in New England (Really?  They picked Portland, Maine?) and later explained that one of the reasons that it has not been widely distributed is because the children received death threats after the movie, just like poor Paul Offit (who we have asked for some documentation on these threats, a police report, anything, because, you know... if that shit is really happening, then NOT OK, and we would shame such people into oblivion for it... cause we are kinda sick of being called "baby killers" and being threatened with Child Protective Services as well.)

But apparently the death threats to children are not really a problem as they will be releasing the film broadly on August 1.  Not super clear.  I guess that arrests have been made and the problem is solved?

Of course my cynical self imagines the conversation:
"Well we premiered the film last spring, three days before the beginning of "Autism Awareness Month" to take headlines away from the vaccine injury problem, so aren't people gonna be all. "WHAAA?" if we don't release it until August, just in time for the back to school vaccine push?"
"Um... just tell them there were death threats so we had to hold off the release."  
I text all this to Becky and she is not convinced.  "Don't you think that if that really happened it would be all over San Diego TV?"  Becky makes great points (and is also very physically fit.)

Vax Maine Kids did say that they wanted open and respectful dialog on vaccines issues.  Well they have never contacted me or any of my loud mouth friends in Maine to have this open discussion, but I'll take her word for it that she means it for that event.

So the film begins, and it is all the same tropes.  It's all Wakefield's fault.  Your body is crawling with a bazillion creatures out to kill you.  Mothers of children who have died of "vaccine preventable" illnesses are beautiful and worthy of your compassion.  Mothers of children who believe vaccines cause their child's autism are into hippy dippy crap like rubbing oils on their kids and moving their limbs around to heal them.  The docs that treat their kids are unattractive quacks.  The docs that say vaccines are totally safe are attractive and established and should have angelic music behind them when they speak.  Paul Offit is the super smartest and objective guy ever and he thinks moms like me who write critical things on the internet about the vaccine program are "evil."  (Also, profiteers... which is hilarious and forces me to stifle a laugh.) MMR induced encephalitis is one in one million. (Wait... I thought vaccine injury in general was one in a million?)  And finally, VACCINES ARE SAFE, VACCINES SAVE LIVES, VACCINE REACTIONS ARE RARE, AND VACCINATION IS THE RIGHT CHOICE.

***UPDATE:
Apologies that this post is a bit of a mess.. wrote it at 3am.  I forgot the BEST part of the movie.  Parents who don't vaccinate are made analagus to THE TALIBAN!!

Yes... because every country on earth vaccinates... "except for one, THE TALIBAN!"  Then they point out that Talibanians killed polio vaccine workers.  They fail to point out that it was after the CIA used a fake vaccine campaign to harvest the DNA from Afgahan locals to find out if Osama Bin Lahadeen and family were in the area, which caused haters of The Great Satan to stop participating in vax programs and even attack them.  Because they assumed they were CIA.

Ergo, according to the NYT the CIA is runing vaccine uptake.

Also you are a Talabanian.

But this "documentary" is totally unbiased.***

So by the end of the film I think my blood pressure was 1000/1000.  I don't know why I let my self get so upset about this crap anymore... again... the New England premier and there were 20 people in the room.  And then they called the panelists (and moderator and projectionist) to the front of the room... And then there were 13 audience members... including me. (And from the chit chat at the end... clearly they were almost all friends of the panel/people working on vaccine uptake.)

So I did a little self-talk to calm myself down, which worked a little.  (Damn... I should not have had coffee before I went there.)  So I decided I would not talk, but if I did it would just be some mild questions at the very end.  Just to see where they really were on this stuff.

The panel was a very sweet gray haired older mother in a matronly dress who had lost her teen age son to meningitis, three pediatricians (two female and one male, now come to think of it, I can't remember if the second female was a doc... she didn't say much... might have been a professional advocate), and a former Maine epidemiologist.  One of the pediatricians was from my town, and is well known for publishing the most bone headed vaccines rah rah rah junk in our state via the Bangor Daily News.

Wait... I actually looked the event up.  Here is the panel:
"The public is invited to this free showing at 5 p.m. Wednesday, July 23, at the Portland Public Library. A panel discussion will follow the film. The expert panel will include: Larry Losey, M.D., of Brunswick Pediatrics, Laura Blaisdell, M.D., MPH, of Intermed Pediatrics and Researcher at Maine Medical Center Research Institute, Center for Outcomes Research & Evaluation, Jeri Greenwell, parent and Maine advocate for the National Meningitis Association; Emily Rines, MPH, CHES Community Impact Director at United Way of Greater Portland, and Stephen Sears, M.D., MPH, Chief of Staff, VA Maine Healthcare Systems and former Maine State Epidemiologist."
The first question was from Vax Maine Kids pretty lady (I really should look up her name, but I don't wanna.  Also she had a great skirt on.) It was about social media.  (Here we go..) How did the internet, etc impact their efforts on vaccine uptake.  Then I had to sit through that, "Oh the horrible internet, blah blah blah conspiracies, yadda yadda, misinformation, The End." discussion.  I refrained from shouting that it was the 21st century and every document ever published (Unless it is covered under National Security... and even a lot of those that are covered under National Security) is on the damn internet, and that poo pooing internet information is now exactly equal to saying, "Don't read books.  Or anything printed.  Or hand written." any time before 1987.

None of them said that they had ever learned anything from the critics of the vaccine program.

(Crap... I just looked at the Vax Maine Kids web site.  I really should not have done that.  Did you know that, "the mercury in the preservative Thimerosal has never been shown to harm children or cause autism?"  Wow!  Not even once!)

It should come as no surprise that reasonableness on the issue was inversely proportional to the age of the panelist.

Small ray of light came from Dr. Blaisdell, who opened with, and repeated often, that she wants open dialog with parents, and does not want to push parents.  But later was discouraged that she repeated the absurdity that, "Aluminum is necessary for human life to function," (No.. it really isn't , its a neurotoxin ); she mocked the use of the word "toxins" (even making air quotes when she said it) telling people in that give me a break, condescending tone, "Please don't listen to people who talk to you about "toxins." (I guess she wants the field of Toxicology to shut down?), and claimed that the Jacobson v. Mass SCOTUS ruling said that states can force people to vaccinate (Clearly the woman has neither read it nor met Mary Holland.)

I had been such a good girl and held my tongue, but apparently I got to the "I feel like I'm taking crazy pills" moment because after Losey said the 25th awful thing (I don't even remember what it was, but I did learn from him that if I didn't like my ruling in the VICP that I could go to civil court and sue the vaccine maker.  He had never heard of Bruesewitz v. Wyeth) I let out a snort that I am sure sounded like an angry horse, and my hand involuntarily shot up (Insert joke about how there is probably a vaccine for that.)

(Seriously... ten years of this crap and they STILL can't get basic information about the real problems right?  They are STILL repeating this garbage? JB Handley made the point many years ago, if peds have not bothered to learn by now, it is their own fault.  They shouldn't be coddled any more.)

The only other audience participation up to that point had been a mom who had of course vaccinated her kids, and wanted to know if Maine's philosophical exemption was making it harder to get kids vaccinated and meet public health goals.  Blaisdell made the point that she didn't know, because detailed records are not kept, and not getting the Hep B is not a problem like not getting the Measles vaccine, but opt out rates are higher in states with those exemptions.  Losey, to his credit, recognized that getting rid of the exemption was impossible in the current climate, as the bills being considered in Augusta are all to loosen their hold on pushing parents to vaccinate, and, for at least now anyway, not gonna happen.

So this is toward the end of the panel discussion, and I just unloaded on them.  And not gracefully either.  The angry, talking 60 miles an hour Ginge burst out of me.  I explained that I was the mother of a vaccine injured child and... blah blah insert my creds here... and watching the movie (that they had all extolled) was hard for me because it contained so much that was false and incomplete and sucky.  (I didn't really say sucky.)

I don't even remember all I said, but I took them on/correct them on many of the things they said.  I do remember saying, in that give me a break, condescending tone, "Do you really think the decline in vaccine uptake is because of one British study that came out 15 years ago."  But the big points that I made where that the film addressed NONE of the reasons that we don't participate in the vaccine program any more, that I was going to go ahead and do a point by point take down of the film when it comes out in wide release, and that this does not even address (because they never address it) the real root of the problem, which is the vaccine injury liability they all have.  Which assures that they will never have to be put under oath to testify and be cross examined on all the stupid things they say. (No I didn't say that last part either.)

So Dr. Blaisdell addressed me very nicely/handled me, and asked me questions, so I was like.. "Fuck it... I am just going to keep talking as long as they will let me," which was a while.  But then she brought it around with a "well what would you recommend for us" giving me a final say... again, good, but totally handling me.

"How could I choose just one thing!" my brain screamed.

So I choose two.  Stop attacking "those people on the internet and listen to them/learn from the professionals/stop calling us anti-vaccine" and "realize that because of the vaccine injury and death liability protection you have, that you live in a bubble, with no accountability for what you say and do, that you get to believe whatever you want to believe about vaccines."

Oh... also they called me "passionate" a lot, which is a polite/dismissive way of noting that I am a super angry woman.  Which I am.

"Oppression makes a wise man mad."

And then I shut up.

And then their tone changed.  They were more balanced, they addressed me directly, and in the wrap up question, they suddenly acknowledged that safety is a problem, that they need to do more to avoid vaccine reactions, and parents like me must be engaged.

Of course we know what people really want, because they actually DO the things that are important to them.

So on the way out I made sure to sign the registry with my contact info, since engaging parents and learning how to avoid vaccine injury is important.  So I'm sure they will call, right?  I am sure my phone will be ringing off the hook tomorrow with questions like, "What are these eighty plus studies you mentioned about vaccine induce autism and their mechanisms?  What are the ways you think vaccine reactions can be avoided?  Where is this information from federal officials on vaccine injuries?  What was that you said about aluminum and the vaccine schedule not being safety tested?"

I think I will clear my schedule tomorrow.  And perhaps Friday in case they want to have lunch and look at my research.

And then I can spend the day surfing facebook because they won't call me.  Or anyone else like me.  Because they never do.  Because they don't have to.  The threat to them for harming children with their mis information and bad practices is not an "invisible threat" it is a non existent threat.

They get to do and believe whatever they want.  The only consequence is the occasional crazy mom showing up to rant at them.

Update!

Check below!  A doc that does what she says she wants... you know... words and actions!  Wow.

Second time evah a doc has actually followed up with me on stuff.  The first was like five years ago, a med student wrote me and said, "I disagree with everthing you say, but I do have one question."  That one question turned into years of conversations long into the beginning of his practice.



April 17, 2014

I Refuse To Be Enlisted Into The "Mommy Wars"

So the attack on vaccine resistant parents in the media this "autism awareness month" has been nothing like any of us has ever seen before.  Even Paul Offit has taken a departure from his oh so laid back and wise doctor act to get nasty on us.  Pharma needs not only for parents to be ok with the current recommended schedule, but to be open to the open ended vaccine schedule that will include the 200 or so vaccines they have in their development pipeline.  They do not want to come to terms with the fact that their market has reached it saturation point and it is all downhill from here for their vaccine profits.

So because they could not sell us, and because they could not bully us, they have now taken the tack of getting us to bully us.  As Meghan at LivingWhole.org so succinctly put it in her piece The Hate Debate, "...whether or not we vaccinate is now part of the “Mommy Wars.”  Setting mother against mother, to bully them into violating their evolutionary and God given instincts on how to protect their child, to do what Pharma says instead.
" As if mothers didn’t have enough things to be divided over, you’ve made it so that wherever we go be it daycares, schools, or playgroups we are ridiculed, judged, shunned, and our children as a whole are blamed for the re-emergence of diseases that never left and for spreading diseases they’ve never had. You made this a “Mommy War” issue when you somehow insinuated that a woman isn’t a good mother unless she vaccinates her child. You made this a mommy issue when I had to kneel down and explain to my three-year-old child why she was being discriminated against. You made this a mommy issue when you supported and promoted the following hateful belief system:

 “[On the topic of vaccines.] We owe it to our children–all of our children–to speak out against this dangerous and misguided parenting choice before more are infected with horrifying diseases that were extinguished decades ago. Choosing not to vaccinate is not yet another anodyne trend in personal parenting. It’s not a quirk; it’s a menace—and a growing one at that.” – Bethany via the Federalist Papers

 You know what makes a good mother, one who actually educates herself, questions what is put into her child’s body and makes an informed decision (whether she chooses to vaccinate or not). Call me a menace, call me a misguided parent, and blame me for spreading “horrifying diseases” that are actually neither horrifying nor extinguished. If it makes you feel better to fuel fire and spread hate than by all means proceed, as it doesn’t make your side of the movement look very good. I will neither hate nor discriminate against a mother’s decision on the issue of vaccination. No, I will not be part of the hate debate."

So I am here to say that I refuse to participate in the "Mommy Wars."  It would be very easy for me to judge parents who are not treating their child's "autism" medically, but I have no right.  Just as no one else has the right to judge me for my vaccine decisions.  

So if you see a child being physically abused by their parents, or cases of neglect where they are not being fed, clothed, housed and placed under the care of a health care provider, then please call child protective services and express your concern.  But if you just don't agree with a parents medical choices, especially because some crap mass media outlet dripping in pharma ads has tried to turn you into the vaccine patrol, time to take a deep breath, deprogram yourself, and stand down.

I support autism families who choose not to do biomed.  It is hard for me, it is not my choice, it is not what I want for their children, but I KNOW that it is not my decision to make for that child.  It is theirs.  And I have NO INTENTION on making their life harder, or even making them feel pressured, to do something that they are not comfortable with. 

I am horrified that any mother could write the things that I am seeing online to the effect of, "if they don't vaccinate they should have their kids taken away from them."  That is just flat out evil.  How any mother could wish that on another is horrifying.  I started my career in child protective services as a case worker, and even the abusive and neglectful parents... I was still rooting for them to get their crap together and be able to parent their children again.  It only happened in one of my cases in two years, but it still makes my cry when I think about that mother who was able to step up and be there for her daughter again.

I don't ever want to see a family ripped apart because of their medical choices.  And I don't want to make people feel bad for their earnest decisions.

With other autism moms, I listen like a friend, if I have something that might help them with what they are struggling with, I usually say something like, "I know of some new medical interventions that might help with his aggression/tummy trouble/attentional issues/etc, so lemme know if you are interested in exploring any of them," and then I leave it at that.  And if they never bring anything up, I don't either.  If they don't want to talk about their aggressive vaccine choioces, then I don't either.  And I support them in their parenting.

Are you a mommy?  Then I support you and want you to have the best chance at raising your little ones that you know better than anyone. 

I am not going to participate in the "Mommy Wars."



January 30, 2014

Annual Birthday Fundraiser


As today is my 29th... I mean 34th birthday, I will celebrate me by focusing on me. 

If my work has been of service to you this past year, I hope you will consider putting a little birthday gift in the tip jar.

Thank you for being my community and my support.  

December 29, 2013

New Years To Do: Opt Out of Your State Vaccine Database

Today the Washington Post printed a story entitled, "2013 is the year that proved your ‘paranoid’ friend right."  So now that we are all on the same page that the US government is completely run amok, is all up in in everyone's business, and that those of us who trusted that it would look out for our own good (rather than the corporate $$$ interests of their donors or their own profit and power) were naive babies... and that none of the three branches give a crap that you don't like what they are doing... let's look forward to how to avoid the next thing that they are gonna do to piss people off.  That right now... of course... we are called crazy for considering might become a possibility.

THE COMING VACCINE PUSH!  (who are we kidding... they are constantly pushing...)

Paul Offit, Pharma Face for Vaccines, of course, has been telegraphing this for years.  Pharma goes, "what completely insane thing do we wanna do that we know we will never get away with?"  Then they tell Offit to write about that thing, then they get their blogdoggies to push that thing, cause God Offit said the thing, then five years later, they are actually pushing the thing out in the open like it is totally sane and people in positions of power to make that thing happen are all... "well yeah... we should do that thing!  People have been talking about it for years!"  (As they cash the Pharma check.)

We are in the middle of such a thing now.  Three years ago Offit was quoted in The Lancet suggesting that parents must complete an education program (to of course tell them what a bad choice they are making) before having the right to opt out of vaccinating their children.
“Offit suggests one way to raise vaccination rates is to make it harder for people not to get themselves or their children vaccinated. This could mean, for example, attending educational classes that teach the public what the safety profiles of different vaccines are, before they are allowed to opt out of vaccination. “You have to convince people that a choice not to get a vaccine is not a risk-free choice; it’s just a choice to take a different risk.”
Jump ahead two years, and what do you know...  a pediatrician in the legislature, backed by AAP and every Pharma whore ever... introduces AB2109 in California, requiring that parents must complete an education program (to of course tell them what a bad choice they are making) before having the right to opt out of vaccinating their children.  Apparently they had been lobbying for it quietly for at least a year, so by the time it came up for a vote, parents were too late to get legislators on their side.

One year later... what's that Paul Offit?  You are teaching an online education program to tell parents what a bad choice they are making if they opt out of vaccinating?  YOU DON'T SAY?!  Wow... who saw that coming!



How long before these all merge and you have to take Offit's propeganda course before you are ALLOWED to make decisions on what goes into your own body or the bodies of your children in your state/school system/medical practice/profession?  Stay tuned to find out.

So let's stop being niave and pretending these things happen organically, rather than being planned in marketing boardrooms years in advance.

On to state vaccine registries.

While no one was noticing... all fifty states set up databases of who has and has not been vaccinated with what.  And yes you and your kids are probably in there.

"Ginger, that's crazy!  We have medical privacy... surely that would violate our privacy rights!"

"Wake up and smell the 1984," I say.

Here is the CDC's master list of all the state databases: CDC Immunization Information Systems (IIS)

Here is my state's information on the program:  ImmPact:  Maine Immunization Information System

Here is what the program is for:
Intent:  The Immunization Information System is intended to be a repository for accurate and up to date immunization records for all persons born, residing, or receiving vaccine in the State of Maine. The primary purpose of the system is to collect data related to vaccine administration, and to promote effective and cost efficient prevention of vaccine preventable diseases.
Note the language, "all persons."  That is me and us and everyone here.

Here is how the program works:
4.         Establishment Of The Immunization Information System:

            A.        All children born in Maine and registered in the Electronic Birth Certificate system shall have their demographic data entered into the Immunization Information System (hereinafter referred to as the “IIS”).

            B.         The Department may use any birth record, Medicaid record, school record, or immunization record for the purposes of obtaining an individual’s Immunization and Demographic Information and entering that Information into the IIS.

            C.         An Immunization Provider who administers immunizations with vaccines provided by the Department shall record or report all immunizations administered directly into the Immunization Information System, or through other methods as approved by the Department, within five (5) working days of administering the immunization.

            D.        All Patients will be informed during an initial immunization encounter with an Immunization Provider of the inclusion of their immunization record and demographic information into the IIS, and will be provided with the opportunity to opt-out of the IIS. All Patients will automatically have their immunization and demographic information maintained in the IIS, unless a Patient states in writing on a form prescribed by the Department, that he or she wants to opt out of the IIS.
Note that they are supposed to tell you this ahead of time, and that if you don't want in, you have to opt out. (Hey Mainers... do you even know about this database?)

Here is the bit on confidentiality:

5.         Confidentiality Of The Immunization Information System


            A.        Identifying information contained in the IIS shall only be disclosed to Authorized Users and the individual that it identifies, except in the case of an authorized exchange (as specified in Section 10-C), or in the event of a public health emergency, as defined by statute.

            B.         Authorized Users must sign a user agreement in a form prescribed by the Department that sets forth the terms for using the IIS. Any such Agreement shall include a confidentiality clause, as well as provisions related to penalties for unauthorized disclosure.

            C.         Authorized Users shall not disclose information from the IIS about an individual except to another Authorized User when allowed by these rules, or by state and federal laws addressing patient confidentiality.
Isn't that Adorable?!  (Must have been written before 2012.)

You can read all the rules here.

Who cares if they know exactly what vaccines you and your kids have had?  Well this is where a little clause in the Obamacare law can make things relevant to your interests (emphasis mine):
H.R. 3590 An Act Entitled The Patient Protection and Affordable Care Act, 
TITLE IV, 
Subtitle C-Creating Healthier Communities, 
section 4204,  Immunizations, 
(b):Demonstration Program To Improve Immunization Coverage-
‘(1) IN GENERAL- The Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall establish a demonstration program to award grants to States to improve the provision of recommended immunizations for children, adolescents, and adults through the use of evidence-based, population-based interventions for high-risk populations.
‘(2) STATE PLAN- To be eligible for a grant under paragraph (1), a State shall submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require, including a State plan that describes the interventions to be implemented under the grant and how such interventions match with local needs and capabilities, as determined through consultation with local authorities.
‘(3) USE OF FUNDS- Funds received under a grant under this subsection shall be used to implement interventions that are recommended by the Task Force on Community Preventive Services (as established by the Secretary, acting through the Director of the Centers for Disease Control and Prevention) or other evidence-based interventions, including--
‘(A) providing immunization reminders or recalls for target populations of clients, patients, and consumers;
‘(B) educating targeted populations and health care providers concerning immunizations in combination with one or more other interventions;
‘(C) reducing out-of-pocket costs for families for vaccines and their administration;
‘(D) carrying out immunization-promoting strategies for participants or clients of public programs, including assessments of immunization status, referrals to health care providers, education, provision of on-site immunizations, or incentives for immunization;
‘(E) providing for home visits that promote immunization through education, assessments of need, referrals, provision of immunizations, or other services;
‘(F) providing reminders or recalls for immunization providers;
‘(G) conducting assessments of, and providing feedback to, immunization providers;
‘(H) any combination of one or more interventions described in this paragraph; or
‘(I) immunization information systems to allow all States to have electronic databases for immunization records.

States will be given money to come to your house and give your children their "recommended" vaccines.  (One bully school system already tried it, took a local news crew along to film it, and they both were sued for it. Video here.)

You know what states love?  Money.
Federal Government: "Hey State....  Wanna million dollars to count the number of dots on all the backs of all the salmon in your state?"

State:  "Sure... why not

Federal Government: "What about ten million for a door to door vaccination program?"

State:  "Hell, yeah!"

The only thing preventing all states from asking for this cash for door to door vaccination?  The fear of doors slammed in faces and angry voters calling to yell at the Governor VaxALot.

But I am sure there will be a campaign on the way to get people to accept that too.

So in the mean time.  Contact your state IIS and get your names off the database.

ADDENDUM:

Some have asked about how to opt out.  Check with your state.  Here is how to do it in Maine:

6.         Individual’s Right To Opt Out Of The Immunization Information System             A.        Any individual may choose to be excluded from the IIS, thereby limiting future access to his or her Immunization Records and Demographic Information from the IIS, by submitting a signed and witnessed document to his or her Immunization Provider on a form prescribed by the Department. The Department’s form shall contain, at a minimum, the following information:                         (1)        the Patient’s name;                         (2)        the Patient’s address;                         (3)        the Patient’s date of birth;                         (4)        the Patient’s signature;                         (5)        the Witness’s signature                         (6)        the Patient’s reason for the requested exclusion; and                         (7)        the Department address.             B.         The Patient is responsible for notifying any Immunization Provider at each encounter of the decision to be excluded from the IIS. No Immunization Provider or health plan shall be liable for entering a previously excluded Patient into the Registry if that Patient did not provide that Immunization Provider or health plan with written notice of the exclusion. This rule does not relieve the excluded Patient from the obligation to comply with current immunization requirements set forth in State Law.             C.         Upon being notified that a Patient wants to be excluded from the IIS, the Immunization Provider is responsible for opting out that Patient from the IIS, and continues to be responsible for the maintenance of appropriate immunization record keeping for the Patient.             D.        In the event that an individual does not have an Immunization Provider, that Patient shall notify the Department directly in writing on the prescribed form of his or her decision to be excluded from the IIS.

August 11, 2013

Vaccine Trials Course at Johns Hopkins University, Institute of Higher Brain Washing. I Mean... Learning.

So biomed mom Shannon Strayhorn took a class on from my alma mater, Johns Hopkins University, on vaccine trials.  She offers us a little insight into the brain washing that is taking place inside the halls of "higher learning."

So I took a class this summer from Johns Hopkins on VAX trials.  The class was "Vaccine Trials: Methods and Best Practice".  I started taking as many vaccine/health/eviro health classes as possible because I think we need to approach the subject from every imaginable way. Knowing what is being taught and what kind of conversations are bring had is important to being able to provide truth in a public way. Of course every time I said something they would say it has to be backed up with science (I had all the links on there).

They would not read them. Then they would respond that they needed to be peer reviewed medical/science papers (they were if they bothered to read). Then without reading they would repeat again that there is no science.

I would bang my head and once again share all the links (pages of them). Then I would get "well millions of them couldn't possibly be wrong" (Ha!).
In response of course I asked them to read the science and feel free to counter it with their own to prove me wrong (none could or did-not one paper). So then they would give me their resumes...blablabla...I have a PhD, I work in the industry, etc.

So of course I shut up...NOT!

I kindly said while I am soooooo impressed with their degrees and careers that I find it scary that someone so educated could in fact get to that point considering they couldn't even be bothered to read the science, and couldn't counter one little mom like myself. I asked if it was necessary to post my resume too? I was told we are just parents who are so clueless and don't understand what the difference is between causation and correlation, that the discussion was going to be stopped because it was off topic, and that it wasn't necessary to counter what I shared because the science was in and definite. Definitely in.

Bahahaha....oh it is in....but it is clearly not showing what they want!

It was completely out of their typical playbook:

1. Deny science.
2. Pretend parents are dumb.
3. Make it all about Wakefield and say things he never said.
4. Pretend no other science exists.
5. Use your PhD to convince people they must believe you because you are smarter.
6. When panicked reference their idol Offit.
7. Deny any corruption or financial ties unless you need to defend why you think Wakefield was wrong in which case that is allowed.
8. Claim correlation and say how you understand the stupid parents are desperate and how bad you feel for not having answers and in same breathe say they must not understand science.
9. Deny any and all proof that pharma has a history of lies and corruption and if someone points that way redirect and say how awesome of a job you do taking safety as the priority.
10. Pretend you have no idea who Thorsen is or if pressed claim it doesn't matter.
11. Use terms like "studies in other countries" (because people won't know) or say crap like "mercury has been removed" (use MMR because you think that is what we want to hear) or if all else fails talk about antigens.
12. Blame parents.
13. Accuse parents of following newspapers, and celebrities.
14. Repeat there is no science.
15. Repeat your degree.

Oh and i totally fell for that too....because you know I am just another desperate, uneducated, Mom, who clearly knows nothing. Bring it on!!

Just for the record I will say that the discussion is mostly driven by those enrolled and the instructors mainly just redirected and said these subjects where off topic although we did get into it over the idea that the science is "in". The peers if you will, carried the wonderful condescending comments. The class itself was not very controversial and really about just what "should be done and how in trials" and other than the discussions and a few things I personally didn't agree with, it was not a bad class and actually refreshing seeing a different side (by the books without corruption-the way things should be!

P.S. Ended with a 98% in the class.  No clue how that is possible when I am so dumb.

 Seems they just wander around campus repeating, "There is no science. There is no science. There is no science."  Sorry to break it to ya... but there is more than just a little bit of science.

No wonder it is getting so easy for us to do this work.  They just get more and more absurd.

Course info:


Vaccine Trials: Methods and Best Practices
Karen R. Charron, BSN, MPH, CCRC
Associate Lecturer
Center for Immunization Research

Amber Bickford Cox, MPH, CCRC
Research Associate
Center for Immunization Research
This course will explore the process of evaluating investigational vaccines in clinical trials including informed consent, recruitment, enrollment, safety evaluation, and quality data collection.
About the Course
Vaccines are evaluated through a series of clearly defined controlled studies to assess these investigational products for safety, immunogenicity and efficacy before they are approved for licensure.  All clinical vaccine trials are bound by international ethical guidelines and, in the case of US trials, Food and Drug Administration (FDA) regulations.
Good Clinical Practice is defined by the International Conferences on Harmonization (ICH) as: “A standard for the design, conduct, performance, monitoring, auditing, recording, analysis, and reporting of clinical trials that provides assurance that the data and reported results are credible and accurate, and that the rights, integrity and confidentiality of trial subjects are protected.”
That’s a tall order, so how is it done?  Individuals who enroll as subjects in these trials play an essential role in the development and evaluation of new and improved candidate vaccines.  They are average citizens who volunteer to roll up their sleeves and, in the process, make a tremendous difference in society.  So why do they volunteer and what safeguards do we put in place to protect their rights, safety and well-being while in the trial?  What are the responsibilities of the investigators, sponsors and ethics committees who conduct and oversee these trials? 
Along with our colleagues, we will introduce you to how GCP is applied in clinical vaccine trials to ensure proper and ethical scientific conduct. The course will use examples from real vaccine trials to demonstrate the application of the FDA Code of Federal Regulations and ICH GCP Guidelines to explore methods and best practices involved in implementing phase I and II vaccine clinical trials.  This short course offering through Coursera is based on our work at the Center for Immunization Research and an in-depth graduate course taught at the Johns Hopkins Bloomberg School of Public Health.
We hope it inspires you to work in this exciting field.
Course Syllabus
This course will cover the following topics: A brief review of vaccine history and types; how vaccine trials are conducted, including which data are collected and how those data are managed and evaluated; appropriate processes to ensure human subjects protection and informed consent; methods for recruitment and enrollment of participants; and vaccine safety assessment. Upon successfully completing this course, students will be able to:
Describe the types of vaccines in use today
Describe how vaccines are evaluated in phase I and II clinical trials
Identify key regulatory requirements, considerations and ethical standards for human subjects protection and informed consent. 
Discuss how clinical trials are conducted with an emphasis on quality data and protection of the rights, safety and well-being of volunteers.
Recommended Background
The pre-requisite for this class is a basic understanding of vaccines.  For those without this background, the CDC Epidemiology and Prevention of Vaccine-Preventable Diseases (Pink book) is an available resource providing information on routinely used vaccines and the diseases they prevent! http://www.cdc.gov/vaccines/pubs/pinkbook/index.html.
A course on Vaccines is also taught by Paul Offit through Coursera which may be helpful to those enrolling in this course but is not required. 
Course Format
The course will involve weekly lectures followed by a short assessment assignment.
FAQ
Who should enroll in this course?
The audience for this class includes: Those currently working in clinical trials, pre-clinical development, regulatory and ethical review of research and students of public health, medicine, nursing, and biological sciences
Do I need a textbook for this course?
All the material needed for this course can be found on the web or within the lectures. The course will reference the US Code of Federal Regulations 21 CFR 50, 56 and 312 and the ICH Standards of Good Clinical Practice E6. You can also find electronic versions on the web. USFDA and ICH GCP E6. For those with strong interest in this field, we recommend that you purchase a printed GCP reference book at www.clinicalresearchresources.com.
Syllabus
Course Schedule
- Week 1
Course Overview (Karen Charron and Amber Cox)
Lecture 1: Type of Vaccines, How Vaccines are Administered, and the Vaccine Development Process (Neal Halsey)
Lecture 2: Essential Elements of a Vaccine Protocol (Karen Charron)
- Week 2
Lecture 3: Characteristics and Outcomes of Vaccine Trials (Clayton Harro)
Lecture 4: Protection of Human Subjects (Amber Cox)
- Week 3
Lecture 5: Vaccine Trials in Pediatric Populations (Elizabeth Schappell)
Lecture 6: Vaccine Management and Preparation (Hye Kim and Vivian Rexroad)
- Week 4
Lecture 7: Data Management, Quality Assurance, and Quality Control (Karen Charron)
- Week 5
Lecture 8: Community Involvement and Recruitment (James Williams)
Lecture 9: Study Start-Up and Implementation (Karen Charron)
- Week 6
Lecture 10: Screening Volunteers (Karen Charron)
Lecture 11: Enrollment and Implementation Procedures (Karen Charron)
- Week 7
Lecture 12: Safety Assessments and Management of Adverse Events (Anna Durbin)

August 9, 2013

CDC No Longer Denying Vaccine/Autism Link?

So the Actual Reporter, eagle eye Sharyll Attkisson posted this note on her facebook page... and apparently CDC has had the following on their autism page on the CDC web site for 18 months:

Causes and Risk Factors

We do not know all of the causes of ASDs. However, we have learned that there are likely many causes for multiple types of ASDs. There may be many different factors that make a child more likely to have an ASD, including environmental, biologic and genetic factors.
  • Most scientists agree that genes are one of the risk factors that can make a person more likely to develop an ASD.
  • Children who have a sibling or parent with an ASD are at a higher risk of also having an ASD.
  • ASDs tend to occur more often in people who have certain genetic or chromosomal conditions. About 10% of children with ASDs also have been identified as having Down syndrome, fragile X syndrome, tuberous sclerosis, or other genetic and chromosomal disorders.
  • When taken during pregnancy, the prescription drugs valproic acid and thalidomide have been linked with a higher risk of ASDs.
  • We know that the once common belief that poor parenting practices cause ASDs is not true.
  • There is some evidence that the critical period for developing ASDs occurs before birth. However, concerns about vaccines and infections have led researchers to consider risk factors before and after birth.
  • A small percentage of children who are born prematurely or with low birthweight are at greater risk for having ASDs.
ASDs continue to be an important public health concern. Like the many families living with ASDs, CDC wants to find out what causes the disorder. Understanding the risk factors that make a person more likely to develop an ASD will help us learn more about the causes. We are currently working on one of the largest U.S. studies to date, called Study to Explore Early Development (SEED). SEED is looking at many possible risk factors for ASDs, including genetic, environmental, pregnancy, and behavioral factors.

I laughed when I first read that bullet point I highlighted.  Took a team of lawyers to craft that one, now didn't it!

Screen shot for posterity.  Full size here.




July 29, 2013

Dr. Koren Boggs Does Not Want To Talk About Her Idiotic Statements

So here is the story...

Thalia Michelle and Rainna Moran were promoting the Thinking Mom's Revolution book, and went on a local New Orleans station to discuss on a show called The 504 with Melanie Hebert.  They also had a local ABA therapist, PhD Koren Boggs.  Boggs did not like their vaccine stance, it got heated, so Ms. Hebert had Boggs and TMR back on the following night to debate the issue.  Kim Spencer was up for TMR this time, and wiped the floor with Boggs, who actually even repeated the "thimerosal in the MMR" cluelessness.

So I got mad, wrote this piece, and made this video, which ran last week on the TMR blog:
Dr. Koran Boggs Is An Idiot
by Ginger Taylor

It's harsh... I know... but I can't take this crap any more.  She should know better.

It has been NINE YEARS for me since my son regressed after DTaP, Hep B and three other shots, while I have to hear the lie that, "there is no association between vaccines and autism," repeated over and over and over and over...  That made me nuts back when there were less than ten research papers that showed a link, and now I know of 70!

Including one that showed that our own federal government has paid at least 83 autism cases from the Vaccine Injury Compensation Program, while also pretending that vaccines could not possibly cause autism. 

I just can't stand the deceit any more. 

So when I saw Kim's debate with Dr. Koran Boggs, I got so angry I had to stop half way through and take a long break just so I didn't have a neurological event.

Then I just needed to rant:


You can see why the seasoned Pharma/Public Health talking heads never agree to be in a debate with any of us.  They can't get away with the usual BS talking points.  ;)

So the list of research is growing steadily, as more people see it and sent me studies that I have missed, so these links will be updated regularly.  You can view it on my blog, on Facebook to share there, or in a Word doc.  Please spread them around any time you hear the lie that "the vaccine/autism causation theory has been debunked because is based on one retracted British study and the opinion of a playboy model and that there is not one study that supports the theory that vaccines cause autism."

In fact, share them right now.  Then share this video.

And here is the information on Bill Posey bill's to force the vaxxed/unvaxxed study that CDC still won't do after thirty plus years.  Call your congressman and ask him to be a co-sponsor.  Do it.  And then share it too.

Now on the Japan study... she is referring to Honda's study, "No effect of MMR withdrawal on the incidence of autism: a total population study."  If you read the abstract, which I have linked to, it gives the impression that this is a study that compares kids who got the MMR to unvaccinated children, to see if there was a difference in autism rates: 

"The MMR vaccination rate in the city of Yokohama declined significantly in the birth cohorts of years 1988 through 1992, and not a single vaccination was administered in 1993 or thereafter."

However, when you read the actual study itself, you find that the study was done when Japan (which using the MMR with the Urabe strain Mumps vaccine) realized that it was causing meningitis, and yanked the vaccine.  They replaced it with the single dose version of the Measles vaccine, the Mumps vaccine and the Rubella vaccine: 

"However, due to a high frequency of reports of aseptic meningitis, a suspected side effect of the mumps vaccine (Urabe strain), the program was terminated in April 1993. Subsequently, only monovalent vaccines were administered. Following a reform of the Immunization Law in 1994, measles and rubella vaccinations were each specified for children between the ages of 12 and 90 months (the measles vaccine was recommended between 12 and 24 months of age and the rubella vaccine between 12 and 36 months). The mumps vaccination was voluntary and aimed at children one year of age or older who had not contracted mumps. It was also stipulated that an interval of at least four weeks separate administration of vaccinations."

So this not a vaxxed v. unvaxxed study, this is a vaxxed v. vaxxed slightly differently study. The way this study is done, it actually asks the question, "is the MMR that Japan was using the SOLE cause of autism."  And not one person in the debate thought the MMR was the only cause of autism at the time.  In 2005 when the study was published, David Kirby had just written Evidence of Harm, parents were trying to find Hg free vaccines and as we know... Thimerosal was never in the MMR.

If anything is to be gained at all from this study, it is evidence that splitting up the MMR vaccine into individual shots may not be of any help in avoiding an autism regression. 

And we can see that from her poor understanding of the Honda study, Dr. Boggs either ONLY read the abstract, and made some assumptions, or someone just told her that this was a vaxxed/unvaxxed study and she didn't bother to check for herself.  (Likely the same person who told her that there is no research that supports the vaccine/autism causation theory.)

And here is CDC's MMWR on the chelation deaths.  1 boy with autism.  1 girl with lead poisoning, both accidently given Na2EDTA instead of the appropriate drug for them, CaEDTA, with which they had both been treated successfully prior to the drug mix up.  A third woman died, believed to be using the same version of EDTA, and all three deaths were associated with hypocalcemia (basically the Na2EDTA pulled all the calcium out of their blood.)  In talking with docs, it is my understanding that Calcium EDTA is now becoming the standard drug for chelating both adults and children.  We chelated our own son with IV CaEDTA with wonderful results and no side effects.

So, to Dr. Boggs... Kim said you were wrong, and as we see here, you were wrong.  No Thimerosal in the MMR, vaxxed/unvaxxed autism research does not exist per CDC's own testimony under oath only 8 months ago, and we have presented here 70 research papers that show not just one, but MANY links between vaccines and autism.


We await your formal letter retracting your false claims, and I believe it would be most appropriate for you to send the letter to Ms. Hebert so it may be read on her show, "The 504," where you disseminated your errant information in the first place.

Because it is all about the science... and the children... right?

That same day I wrote to Boggs, and copied her director at Children's Hospital of New Orleans and the reporter who aired the stories:

-------- Original Message --------
Subject: Your 504 debate appearance
Date: Thu, 25 Jul 2013 13:39:47 -0400
From: Ginger Taylor 
To: Koren Boggs 
CC: Kim Spencer, Jodi Kamps , Melanie Hebert


Dear Dr. Boggs,

I am the mother of a child who regressed into autism following his 18 month vaccines and now work in vaccine safety advocacy nearly full time.  I hold a Masters of Science from Johns Hopkins in mental health, and I am currently providing research for the House Committee on Oversight & Government Reform for their upcoming hearings into the federal Vaccine Injury Compensation Program (the second in this past year their series on vaccine safety, autism, and associated disorders.)

As some one who has been looking at the vaccine/autism issue for almost a decade, while working to heal my son, it was extremely upsetting to me to hear you repeating falsehoods on your appearance on The 504. 

I was moved to make a video addressing you directly and taking apart your claims.  It is now posted, along with a letter and links disproving your statements, on the Thinking Mom's Revolution web site. 
http://thinkingmomsrevolution.com/when-doctors-lie-oh-hell-no/  It is harsh and direct (deservedly, I believe), and I am hoping that it will humble you to the point that you examine yourself and your claims, and that you will do the right thing and retract your statements that:

1.  There was mercury in the MMR.  (You have confused two different autism causation theories)
2.  That there is vaccinated v. unvaccinated autism research.  (Note the video of the CDC being forced under oath eight months ago to admit there is none.)
3.  There is no research supporting vaccine autism causation, and the entire theory is based on one study published fifteen years ago.  (70 Studies that show a link.)

I await your reply to my video and demand for a formal retraction.  Kim Spencer was right, and you do a disservice to your credibility, to Ms. Spencer, and to all those affected by autism, by letting your errant pronouncements stand.

--

Ginger Taylor, MS
Adventures In Autism
Facebook
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Vaccine Epidemic
818-402-9672

Aaaaaaaaaaaaannd.... no response.