In 2008 Johns Hopkins Neurologist Jon Poling went public with the news that his daughter Hannah, who regressed into autism following her 18 month vaccines, was paid by the Vaccine Injury Compensation Program.
CDC, in a public statement, claimed that the Hannah Poling case was "rare" and should not be generalized to "normal" children. Days after the Poling's announcement, the Hiatt family also went public with their VICP ruling that their autistic daughter Madison was also a vaccine injury victim. Then the Banks family went public. Finally, CBS News reported finding 7 more vaccine/autism cases that dated back to 1991, the very beginning of the autism epidemic.
So the autism community wanted to know... just how many cases of autism have been paid by the program that was established in 1986, how "rare" is this, and what did the government know about vaccine injury and autism causation that they were not telling the public and the medical community. After being questioned by a journalist, the department of HHS that oversees the VICP issued the following statement on whether this was an admission that the government was now paying children for vaccine induced autism. The "official response" from HRSA:
"From: Bowman, David (HRSA) [mailto:DBowman@hrsa.gov]
Sent: Friday, February 20, 2009 5:22 PM
To: 'dkirby@nyc.rr.com'
Subject: HRSA Statement
David,
In response to your most recent inquiry, HRSA has the following
statement:
The government has never compensated, nor has it ever been ordered to
compensate, any case based on a determination that autism was actually
caused by vaccines. We have compensated cases in which children
exhibited an encephalopathy, or general brain disease. Encephalopathy
may be accompanied by a medical progression of an array of symptoms
including autistic behavior, autism, or seizures.
Some children who have been compensated for vaccine injuries may have
shown signs of autism before the decision to compensate, or may
ultimately end up with autism or autistic symptoms, but we do not track
cases on this basis.
Regards,
David Bowman
Office of Communications
Health Resources and Services Administration
301-443-3376"
This admission of a link to autism, and the disturbing revelation that the government was not even planning on counting how many autism cases it had paid from the vaccine injury fund, made it clear that HHS's claims of concern for the rise in autism rates and concern for vaccine safety were less than sincere, and that it was time for an investigation into the VICP to find out how many of the cases of vaccine induced encephalopathy (brain damage) resulted in "autistic behavior, autistic symptoms or autism" as Bowman had referenced.
Tomorrow the results of this two year investigation will be revealed and we will get a better look into what the government knows about vaccine/autism causation and how long they have known it.
Live Broadcasting by Ustream
Please tune in to the press conference tomorrow (streaming live on the internet at USTREAM), Tuesday, May 10 at Noon Eastern to the announcement take place on the steps of the US Supreme Court, that ruled only two months ago that vaccine injury cases would never be heard in a court of law, but must go through the corrupt Vaccine Injury Compensation Program.
The EBCALA Press Release:
FOR IMMEDIATE RELEASE
ELIZABETH BIRT CENTER FOR AUTISM LAW AND ADVOCACY (EBCALA)
CONTACT NICOLE WILLIAMS
(301) 625-7772
OR
DANIELLE ORSINO
(480) 200-4411
Investigators and Families of Vaccine-Injured Children to Unveil Report Detailing Clear Vaccine-Autism Link Based on Government’s Own Data
Report Demands Immediate Congressional Action
Directors of the Elizabeth Birt Center for Autism Law and Advocacy (EBCALA), parents and vaccine-injured children will hold a press conference on the steps of the U.S. Court of Federal Claims (717 Madison Place, NW in Washington, DC) on Tuesday, May 10 at 12:00 PM to unveil an investigation linking vaccine injury to autism. For over 20 years, the federal government has publicly denied a vaccine-autism link, while at the same time its Vaccine Injury Compensation Program (VICP) has been awarding damages for vaccine injury to children with brain damage, seizures and autism. This investigation, based on public, verifiable government data, breaks new ground in the controversial vaccine-autism debate.
The investigation found that a substantial number of children compensated for vaccine injury also have autism. The government has asserted that it “does not track” autism among the vaccine-injured. Based on this preliminary investigation, the evidence suggests that autism is at least three times more prevalent among vaccine-injured children than among children in the general population.
The federal government has called autism a “national health emergency,” conservatively affecting 1 in 110 children and costing the country billions of dollars each year.
Because almost all children in the United States are required by law to receive between 30-45 vaccines in order to attend public school, it is crucial that the VICP decide cases with justice and transparency.
EBCALA and the families of the vaccine-injured call on Congress to investigate the VICP, the only forum in which parents may bring claims of vaccine injury on behalf of their children.
WHERE: United States Court of Claims
717 Madison Place, NW
Washington, DC
WHEN: Tuesday, May 10
12:00 PM noon
--
Thank you,
EBCALA Host Committee
News and commentary on the autism epidemic and my beautiful boy who is living with autism.
Showing posts with label Vaccine Induced Encephalopathy. Show all posts
Showing posts with label Vaccine Induced Encephalopathy. Show all posts
May 9, 2011
April 7, 2011
The Most Dangerous Question in Public Health: "What can you tell me about vaccine encephalopathy?"
So Tuesday a thing happened and on Wednesday I talked about the thing on FB and on this blog.
I had no idea when I talked about that thing, the errors of the testimony of a state representative on bills addressing informed consent in vaccination, and her poor behavior following the hearing when I tried to ask her a simple question, would draw such a strong reaction from my readers. She was wrong and behaved badly, but it is SO common in our struggle just to get correct information into the hands of medical professionals and public health officials, that I honestly thought I would get maybe 10 FB comments from fellow activists rolling their eyes that it happened yet again.
I didn't even consider posting the story on my public facebook page (linked on the top right) or putting it on this blog.
But to my surprise, I got more than 200 responses (and counting) on FB and so I posted the whole exchange there in a "note," then after my last email from the subject of my discussion, I was so disgusted that I posted the whole thing here so everyone could see what it is really like to try to talk to a medical professional/public health official about vaccine injury and then be done with it.
But, apparently that is not the end of it, as someone (I assume that it is the subject of my previous post, but cannot say for certain) has flagged the link to my blog on the matter as "objectionable material." So it can no longer be shared on Facebook.
And the crazy thing is, while I suspect the subject of my previous post has flagged my previous post to shut down the conversation on the matter, I also suspect that the irony is completely lost on her that she has upped the ante by trying to shut down the discussion on the fact that she is trying to shut down a discussion!
Portions of my letters to her from yesterday's article (emphasis added):
So not only is my personal discussion with this subject shut down, not only does she want the discussion of the fact that she shut down her her personal discussion with me shut down, NOW she apparently also wants the discussion about the fact that all these shut downs are what is driving down vaccination rates SHUT DOWN!
(So with this discussion on attempts to shut down plain old free speech suffer an attempt by her or her agents or random people to be shut down too? Let's see how long this link is able to be shared on Facebook.)
I was sitting here considering all this, kinda stunned that this person and/or anyone acting on what they believe to be her interests keep upping the ante on this.. why keep escalating her bad behavior... why not just ignore it like 90% of public officials do when they are legitimately criticized... and then it hit me.
What she said to me in her first email to me was that she felt "attacked" by me.
Of course if someone says that, you have to stop and go over the whole thing in your mind and make sure you didn't do anything inappropriate, so I reviewed the whole thing, and nope... standard 'asking a question to a public official in a state office hallway' fare. And... I actually have a control group against which to measure the whole kuffeffel.
Because there were three other doctors who testified at the hearing whom I also stopped in the atrium after the hearing and asked them my question, "What can you tell me about vaccine encephalopathy." Holding out my little book to write notes down in just as I had with "The Subject"
They were very nice. All three gave me basic answers, one made her way out then the other two stayed talking to me, answered a few clarifying questions, stood as if they were happy to keep talking, but frankly I was so spooked by my previous encounter, I whipped their answers down in my book and thanked them and left. I should have actually stayed and talked to them.
And one of the doctors, a pediatrician who talked to me the longest and offered me the most input, was one of the people whose testimony I had corrected. She said, "Vaccines are safe," I told the committee that they were legally "Unavoidably Unsafe" and referenced Bruesewitz v. Wyeth and the 1986 vaccine injury law. So if correcting someone's testimony was grounds for getting yelled at after the hearing, then why was she the nicest and most open?
So this is where my epiphany begins...
I think that I got the reaction that I did from that public official, that made her feel "attacked" because I had actually asked her a VERY dangerous question.
"What can you tell me about vaccine encephalopathy?"
Think about it... that is a very frightening question to both people who know the issues in this debate and those who know nothing in this debate, if they are public officials.
If you know nothing about vaccine encephalopathy, you are about to have your ignorance exposed. Not good if you are pretending to know anything about vaccine safety.
If you know everything about vaccine encephalopathy, then you know that HHS says that it develops into autism, and you are not allowing that inconvenient truth to be the basis for a discussion on vaccine/autism causation, then you are about to have your cover blown.
All so much more true if you are a public health official who can be held accountable for your opinions.
But if your understanding of vaccine encephalopathy is somewhere in the middle, if you know the horrid version of it with seizures and coma and massive brain damage, but don't know that HHS defines it as simply as loss of eye contact, not answering when spoken to and not seeming to recognize people they should, then it is much more likely that you will get the reaction that I did from those three earnest doctors.
Because their answers all fit what I understand to be the general notion of the symptoms of vaccine encephalopathy/encephalitis in the medical community. Fevers, vomiting, seizures, coma and altered mental status. But what I was looking for is, have they been educated on the HHS definition, and do they know that a kid acting "spacey" with that autism hallmark, "loss of eye contact" may be suffering vaccine reaction/brain inflammation, or do they see "loss of eye contact" and in the absence of perceivable seizures, and those more pronounced symptoms instead call it "autism, genetic, no known cause or cure, vaccines don't cause it, send to ABA and Speech."
Because frankly, if I had brought my child in and said, "doc... Chandler is just really spaced out since his shots a few days ago.. he is barely interacting with us," I can't imagine the doc would say anything other than, "well kids get a little sick from their shots and that it totally normal. He will probably feel puny for a few days." When in fact what was likely happening was his immune system ramping up, inflammation ramping up in his brain, brain damage beginning to occur, and autistic regression commencing.
The bottom line is that if physicians do not know how MILD the symptoms of vaccine encephalopathy as stated by HHS actually are, and that reaction leads to brain damage that causes autism, then OF COURSE brain damage being caused by vaccines is being missed and called "autism, no cause no cure blah blah blah." Then what is needed is an education campaign for docs telling them how mild the presentation can look, and that it can progress into as common of disorder as ADS's (1% of the population, not 1 in a million)
In fact, I asked the docs about loss of eye contact as a symptom and Nice Lady said, "it would not just be loss of eye contact, there would have to be other symptoms". I asked, "What symptoms?" She said, "Fevers, nausea, vomiting, seizures."
Now I don't know if she meant any of those or all of those, probably any of those, but again, if there is no fever, or fever took place while baby is asleep, if there is no vommitting, if baby can't report nausea and if there are no seizures (or one took place during the 75% of the day baby is sleeping and momma's eyes are not on him), then does she know that the "other symptoms" can simply present as "acting spacey?"
The other doc who stayed, let's call him Quiet Man, did add, "altered mental status," which is pretty close! But again, was in addition to those dramatic symptoms or instead of. Should have stayed and asked. (Apparently I am a bigger coward than I think I am because I am realizing that I was afraid that people I have just described as "Nice Lady" and "Quiet Man" were going to yell at me).
So if I had taken the VICP Table with me and read the symptoms of vax encph to them, and showed them how mild they were, and asked them if they saw kids like this but thought it was "autism," what would their reaction be?
If they didn't know it could present so mildly, an earnest doc would have to at least review their "autism" cases, check their shot records, call the families back in and start asking them more questions about the progression of the disorder. They might even contact public health officials and ask for more guidance on differentiating "VE" from "Autism" and then public health is kinda screwed, since they have already admitted that can be the same thing.
Then we are confronted with the potential for the Semmelweiss Reflex OR being honest with this difficult truth and talking about it in the medical community, and then comes the pressure to shut up and if that is not obeyed they know that the Wakefield treatment is coming and on down the hill things go.
And if you are a public health official, forget it. If vaccine encephalopathy is autism then you have to change ALL the vaccine laws and the end result is that the earth willfall into the sun.
So I think that in this unpleasant experience we have tripped over a powerful truth...
The most dangerous question in public health is:
"What can you tell me about vaccine encephalopathy"?
So no wonder THEY want this conversation shut down.
I think that this may need to become our mantra. I think that this needs to be asked of every doctor and every public health official in the vaccine debate. This is the question that begins the discussion that knocks down all the Pharma fallacies about vaccine/autism causation.
1. What can you tell me about vaccine encephalopathy?
2. Do you know how mildly it can present?
3. Do you know that it is the position of HHS that it causes autism?
That is the basic letter I sent for which I was shut down. I think that initiating this simple discussion will likely either make huge public health awareness breakthroughs, or get us shot.
Who knew advocating for our disabled children would be such dangerous work.
UPDATE at 11:52:
The post you just read... yeah... it has already been tagged as spam and blocked on facebook. It happened in under 34 minutes from the time it was posted.
So... I think that we can start the discussion on public officials attempting to shut down the free speech of critical bloggers.
I request that anyone who considers this article and the previous and who requested that this content be blocked from sharing on facebook, come forward and challenge me publicly for anything that I have said or written and explain their attempt at suppressing this conversation.
I had no idea when I talked about that thing, the errors of the testimony of a state representative on bills addressing informed consent in vaccination, and her poor behavior following the hearing when I tried to ask her a simple question, would draw such a strong reaction from my readers. She was wrong and behaved badly, but it is SO common in our struggle just to get correct information into the hands of medical professionals and public health officials, that I honestly thought I would get maybe 10 FB comments from fellow activists rolling their eyes that it happened yet again.
I didn't even consider posting the story on my public facebook page (linked on the top right) or putting it on this blog.
But to my surprise, I got more than 200 responses (and counting) on FB and so I posted the whole exchange there in a "note," then after my last email from the subject of my discussion, I was so disgusted that I posted the whole thing here so everyone could see what it is really like to try to talk to a medical professional/public health official about vaccine injury and then be done with it.
But, apparently that is not the end of it, as someone (I assume that it is the subject of my previous post, but cannot say for certain) has flagged the link to my blog on the matter as "objectionable material." So it can no longer be shared on Facebook.
And the crazy thing is, while I suspect the subject of my previous post has flagged my previous post to shut down the conversation on the matter, I also suspect that the irony is completely lost on her that she has upped the ante by trying to shut down the discussion on the fact that she is trying to shut down a discussion!
Portions of my letters to her from yesterday's article (emphasis added):
...This unwillingness to have an open exchange with me, and your additional pressure on me not to talk about your poor behavior, is exactly why the vaccine rates are dropping in Maine. This happens time and time again. Elected officials, public health officials and medical professionals make untenable vaccine safety statements, members of the public attempt to engage them on the veracity of those statements, and the conversation is shut down, often by bullying those members of the public. This does not inspire confidence in the vaccine program, it alerts the public in a very loud way, that those repeating the mantra, "vaccines are safe" either have something to hide, or know they cannot win a true vaccine safety debate.
When you shut down the debate, you tell the public that you know you are wrong...
...I repeatedly ask the question of public health officials who have chosen the route you are taking the question... "what is your plan?" Refusal to engage vaccine safety advocates and parents of vaccine injured children is not working. Vaccine rates are dropping BECAUSE of the shut down of public debate.
So not only is my personal discussion with this subject shut down, not only does she want the discussion of the fact that she shut down her her personal discussion with me shut down, NOW she apparently also wants the discussion about the fact that all these shut downs are what is driving down vaccination rates SHUT DOWN!
(So with this discussion on attempts to shut down plain old free speech suffer an attempt by her or her agents or random people to be shut down too? Let's see how long this link is able to be shared on Facebook.)
I was sitting here considering all this, kinda stunned that this person and/or anyone acting on what they believe to be her interests keep upping the ante on this.. why keep escalating her bad behavior... why not just ignore it like 90% of public officials do when they are legitimately criticized... and then it hit me.
What she said to me in her first email to me was that she felt "attacked" by me.
Of course if someone says that, you have to stop and go over the whole thing in your mind and make sure you didn't do anything inappropriate, so I reviewed the whole thing, and nope... standard 'asking a question to a public official in a state office hallway' fare. And... I actually have a control group against which to measure the whole kuffeffel.
Because there were three other doctors who testified at the hearing whom I also stopped in the atrium after the hearing and asked them my question, "What can you tell me about vaccine encephalopathy." Holding out my little book to write notes down in just as I had with "The Subject"
They were very nice. All three gave me basic answers, one made her way out then the other two stayed talking to me, answered a few clarifying questions, stood as if they were happy to keep talking, but frankly I was so spooked by my previous encounter, I whipped their answers down in my book and thanked them and left. I should have actually stayed and talked to them.
And one of the doctors, a pediatrician who talked to me the longest and offered me the most input, was one of the people whose testimony I had corrected. She said, "Vaccines are safe," I told the committee that they were legally "Unavoidably Unsafe" and referenced Bruesewitz v. Wyeth and the 1986 vaccine injury law. So if correcting someone's testimony was grounds for getting yelled at after the hearing, then why was she the nicest and most open?
So this is where my epiphany begins...
I think that I got the reaction that I did from that public official, that made her feel "attacked" because I had actually asked her a VERY dangerous question.
"What can you tell me about vaccine encephalopathy?"
Think about it... that is a very frightening question to both people who know the issues in this debate and those who know nothing in this debate, if they are public officials.
If you know nothing about vaccine encephalopathy, you are about to have your ignorance exposed. Not good if you are pretending to know anything about vaccine safety.
If you know everything about vaccine encephalopathy, then you know that HHS says that it develops into autism, and you are not allowing that inconvenient truth to be the basis for a discussion on vaccine/autism causation, then you are about to have your cover blown.
All so much more true if you are a public health official who can be held accountable for your opinions.
But if your understanding of vaccine encephalopathy is somewhere in the middle, if you know the horrid version of it with seizures and coma and massive brain damage, but don't know that HHS defines it as simply as loss of eye contact, not answering when spoken to and not seeming to recognize people they should, then it is much more likely that you will get the reaction that I did from those three earnest doctors.
Because their answers all fit what I understand to be the general notion of the symptoms of vaccine encephalopathy/encephalitis in the medical community. Fevers, vomiting, seizures, coma and altered mental status. But what I was looking for is, have they been educated on the HHS definition, and do they know that a kid acting "spacey" with that autism hallmark, "loss of eye contact" may be suffering vaccine reaction/brain inflammation, or do they see "loss of eye contact" and in the absence of perceivable seizures, and those more pronounced symptoms instead call it "autism, genetic, no known cause or cure, vaccines don't cause it, send to ABA and Speech."
Because frankly, if I had brought my child in and said, "doc... Chandler is just really spaced out since his shots a few days ago.. he is barely interacting with us," I can't imagine the doc would say anything other than, "well kids get a little sick from their shots and that it totally normal. He will probably feel puny for a few days." When in fact what was likely happening was his immune system ramping up, inflammation ramping up in his brain, brain damage beginning to occur, and autistic regression commencing.
The bottom line is that if physicians do not know how MILD the symptoms of vaccine encephalopathy as stated by HHS actually are, and that reaction leads to brain damage that causes autism, then OF COURSE brain damage being caused by vaccines is being missed and called "autism, no cause no cure blah blah blah." Then what is needed is an education campaign for docs telling them how mild the presentation can look, and that it can progress into as common of disorder as ADS's (1% of the population, not 1 in a million)
In fact, I asked the docs about loss of eye contact as a symptom and Nice Lady said, "it would not just be loss of eye contact, there would have to be other symptoms". I asked, "What symptoms?" She said, "Fevers, nausea, vomiting, seizures."
Now I don't know if she meant any of those or all of those, probably any of those, but again, if there is no fever, or fever took place while baby is asleep, if there is no vommitting, if baby can't report nausea and if there are no seizures (or one took place during the 75% of the day baby is sleeping and momma's eyes are not on him), then does she know that the "other symptoms" can simply present as "acting spacey?"
The other doc who stayed, let's call him Quiet Man, did add, "altered mental status," which is pretty close! But again, was in addition to those dramatic symptoms or instead of. Should have stayed and asked. (Apparently I am a bigger coward than I think I am because I am realizing that I was afraid that people I have just described as "Nice Lady" and "Quiet Man" were going to yell at me).
So if I had taken the VICP Table with me and read the symptoms of vax encph to them, and showed them how mild they were, and asked them if they saw kids like this but thought it was "autism," what would their reaction be?
If they didn't know it could present so mildly, an earnest doc would have to at least review their "autism" cases, check their shot records, call the families back in and start asking them more questions about the progression of the disorder. They might even contact public health officials and ask for more guidance on differentiating "VE" from "Autism" and then public health is kinda screwed, since they have already admitted that can be the same thing.
Then we are confronted with the potential for the Semmelweiss Reflex OR being honest with this difficult truth and talking about it in the medical community, and then comes the pressure to shut up and if that is not obeyed they know that the Wakefield treatment is coming and on down the hill things go.
And if you are a public health official, forget it. If vaccine encephalopathy is autism then you have to change ALL the vaccine laws and the end result is that the earth willfall into the sun.
So I think that in this unpleasant experience we have tripped over a powerful truth...
The most dangerous question in public health is:
So no wonder THEY want this conversation shut down.
I think that this may need to become our mantra. I think that this needs to be asked of every doctor and every public health official in the vaccine debate. This is the question that begins the discussion that knocks down all the Pharma fallacies about vaccine/autism causation.
1. What can you tell me about vaccine encephalopathy?
2. Do you know how mildly it can present?
3. Do you know that it is the position of HHS that it causes autism?
That is the basic letter I sent for which I was shut down. I think that initiating this simple discussion will likely either make huge public health awareness breakthroughs, or get us shot.
Who knew advocating for our disabled children would be such dangerous work.
UPDATE at 11:52:
The post you just read... yeah... it has already been tagged as spam and blocked on facebook. It happened in under 34 minutes from the time it was posted.
So... I think that we can start the discussion on public officials attempting to shut down the free speech of critical bloggers.
I request that anyone who considers this article and the previous and who requested that this content be blocked from sharing on facebook, come forward and challenge me publicly for anything that I have said or written and explain their attempt at suppressing this conversation.
April 2, 2011
World Autism Awareness Day: Autism Exists, Let's Celebrate? Even Though It's Killing our Children?
My regular readers already know how I feel about Autism Awarness Day/Month. Everyone is aware already, how about actually doing something about it? No... instead let's just wear blue and do nothing. Except, of course, give money to Autism Speaks. Their party budget is getting low and Geri Dawson has horses to feed.*
Anne Dachel makes the case yet again this year:
Anne is right. And I gotta wonder, exactly how long this PR BS is going to continue.
And the biomed community isn't even being remotely polite about this any more. These are the two images that are being passed around on facebook today:


Last year I began a new blog. Lives Lost to Autism. I got more than a little bit sick of the blatant fear mongering of death by diseases that are NOT killing Americans, like measles, while the deaths of our children caused by their autism go unlamented and ignored by health authorities.
Last year 10 children died of Pertussis and the response was a national campaign to get people vaccinated (both adults and children), new state vaccine mandates are being pushed through, and the press on it has been everywhere. Last year at least 27 children and adults died as a direct result of autism, and unless you are in the autism community, or one of these deaths happened in your town, you probably never knew it. Even then, it is always an isolated incident, yes? (There were 41 reported deaths following the pertussis vaccine last year, but that is a whole other story.)
And those 27 autism deaths are only the ones who came across my google alerts for "autism deaths" or "autism died" or "autism drowning." The test I use on how to include them is basically, "would this have happened to this this person was neurotypical?" Who knows how many more went unreported or didn't get picked up by google. I would love to quote an actual statistic on how often autism kills, or how their incidence of premature death compares to the general population, but no public health agency cares enough to track this.
But insurance companies, whose bottom lines are effected by deaths and actually need to know if autism is deadly, won't sell life insurance policies on children with autism younger than 10, because it is not a good risk for them. See the problem there?
Our precious ones drowned, were murdered by caretakers and loved ones, were shot by police, suffocated while being restrained, were hit by cars, burned to death in fires, died from neglect and were killed by seizures. A few of them even killed others during their own melt downs.
Bryan Nevins, age 20, died because, on a hot day, he could not simply open the door of a van and get out. His institutional caretaker was on her cell phone and forgot about him for five hours. She is in jail now.
Autism kills and our government could not give less of a damn.
Autism Speaks doesn't seem to want to make that point that autism kills more than whooping cough, because then the public might actually begin to see this as a public health emergency and demand results... and then were would AS be? The party financing would dry up. Better for them to let autism linger and keep sucking up cash from suckers as they pretend to do something about it. Autism Speaks has found quite the cash cow.
(Speaking of... Guidestar finally posted AS's 2009 tax returns... they took in 45.5 million, and less than a quarter of it went to grants to do what the purported purpose of the org is, "Autism Speaks (AS) funds research into the causes, prevention, treatment and cure for autism. AS raises public awareness about autism and its effects on individuals, families, and society. AS aims to bring the autism community together to urge government and the provate sector to take action to address this urgent global health crisis." Of the whole list, "autism awareness" is the only thing that I think they actually have accomplished since their inception.)
And HHS's admissions that yes, vaccines CAN AND DO CAUSE AUTISM would mean that HHS has been able to do something about this FOR YEARS and has not done it. It means that those vaccine cases can be avoided by screening for mitochondrial disorders, autoimmunity and toxicity, and treated early on if doctors were actually taught that "vaccine induced encephalopathy" exists and if recognized and treated immediately that it may minimize or even prevent many cases of autism from developing.
And that might also mean that the people who have been sitting on this information for years, and decades, might suffer some consequences.
But AS has decided to ignore HHS's own claims of vaccine autism causation and openly declared that everyone should stop talking about the vaccine autism link.
Better that we just "wear blue" because dealing with all that ugliness would just be too ugly.
This is my post on "Autism Awareness" from 2008 entitled, "Insensitive Jerk Makes a Good Point". Nick sees all the signs that tell him that Autism is everywhere, but tells him nothing about what to do about it. And this was three years ago. I should try to track Nick down and see if he has figured out what he can do about it yet.
Make sure you wear blue, write a check to AS, vaccinate your baby, give him a dose of Tylenol, feed him GMO's and then go back to sleep. They experts are handling it for you.
Insensitive Jerk Makes a Good Point
By Ginger Taylor, Adventures In Autism
APRIL 13, 2008
Last week Nick Jameson, college smart ass, wrote a piece on his reaction to the autism awareness campaign currently under way. One currently struggling with autism might be put off by his callousness until one remembers that he is only 22 and that we were all pretty much insensitive smart asses at 22.
I would encourage all to allow Nick a chance to grow and check back with him in 10 years or so when he is expecting his first child and see if maturity has tempered his stance.
But what is useful from Nick, random college punk, is this reaction:
Does Nick know that there are successful treatments available? Does Nick know that there are some kids who are completely recover from autism? Does Nick know that there are things that he can do to prevent his own children (should he ever become soft hearted enough for a woman to agree to marry and/or procreate with him) from slipping in to autism?
Apparently not. And that is the fault of the media who won't report the whole story.
So our young Nick has made a great point. One that parents like me have been trying to make for years now. "Autism Exists" is a message that everyone got a few years back now. But the important message, "Autism is Treatable and Preventable" is one that the media will not share with him.
What is it going to take for them to tell the whole story?
In ten years, when Nick is expecting, will he have heard this message from the media? Or, like us, will he hear it from another parent on the playground after Nick Jr. is diagnosed with autism?
Addendum: Autism Speaks had a huge chance this month to get the treatment message out and yet again, they are screwing children by with holding the important message. They certainly have the cash to do it.
/End 2008 article
*Ok... I actually have no idea if Geri Dawson has horses, but I do know she lives on a ranch or a farm or something, so horses... not out of the question really.
Anne Dachel makes the case yet again this year:
I have a hard time each year with AUTISM AWARENESS DAY/MONTH. This is the Fourth Annual International Autism Awareness Day. How long are we going to pretend that all this autism is normal and acceptable? Seriously, how bad do the numbers have to get?
A number of stories out in the news calling for the public to "celebrate" the day. Today is World Autism Awareness Day by Kristina Chew "Today, April 2, is the fourth annual World Autism Awareness Day, during which 'autism organizations around the world celebrate the day with unique fundraising and awareness-raising events.' "
Pueblo Chieftain: Blue balloons raise autism awareness, "The baby blue balloons that Jonah and his classmates at Beulah Heights Elementary School released were to celebrate the beginning of National Autism Awareness Month. The event is celebrated each April, while the World Autism Awareness Day is today."
Sioux Falls Argus Leader: 5 questions: Shedding light on autism, "The falls will be colored blue by lights in support of the Autism Speaks' global Light It Up Blue campaign to celebrate World Autism Awareness Day and Autism Awareness Month."
Lufkin Daily News: Peavy students working to raise autism awareness, "Because of the prominence of the disorder in boys, blue is the official color for autism awareness and the reason the entire Peavy campus was encouraged to don the color Friday to celebrate Autism Awareness Month."
Berkshires.com: Diversity Takes Center Stage in the Berkshires, "'We have so many people supporting this committee right now,' said MaryLee Daniels, director of the Berkshire office of the Department of Developmental Services, and committee member.
"BFAIR, BCArc, the list goes on as to how many organizations support this initiative. We especially want people to join us in celebrating three different months of diversity. Of course, last month was Black History month. This month is Developmental Disabilities month and next month is Autism Awareness month. We have so much to celebrate here."
What is there to celebrate?
Lots of stories are about lighting things up in blue for autism awareness. Lots of them talk about autism being a developmental disorder affecting one percent of children whose cause is unknown. This is done without any alarm or demand for answers. We have been conditioned to accept autism as the perpetual mystery.
As the parent of a son in his 20’s with autism, I’ve had several decades of experts knowing nothing about this disorder. Is this to be the epidemic without a cause?
Looming in the background is the reality of what autism is doing to us. As I listen to the dire predictions about the hard economic times we're in and the need for austerity, I have to ask how in the world we're going to address the needs of the generation of children with autism about to descend on America as adults.
Dr. Thomas Insel is the wet blanket in all this celebration, acceptance, and awareness of autism.
He's the head of the Interagency Autism Coordinating Committee created by Congress to deal with with the disorder and he says that 80 percent of Americans with autism are under the age of 18. He's warned us we have to prepare for a million dependent adults "who may be in need of significant services." The IACC now calls autism "a national health emergency."
Maybe a better name for April 2 is World Autism Emergency Day.
Anne Dachel
Media editor: Age of Autism
Anne is right. And I gotta wonder, exactly how long this PR BS is going to continue.
And the biomed community isn't even being remotely polite about this any more. These are the two images that are being passed around on facebook today:
Last year I began a new blog. Lives Lost to Autism. I got more than a little bit sick of the blatant fear mongering of death by diseases that are NOT killing Americans, like measles, while the deaths of our children caused by their autism go unlamented and ignored by health authorities.
Last year 10 children died of Pertussis and the response was a national campaign to get people vaccinated (both adults and children), new state vaccine mandates are being pushed through, and the press on it has been everywhere. Last year at least 27 children and adults died as a direct result of autism, and unless you are in the autism community, or one of these deaths happened in your town, you probably never knew it. Even then, it is always an isolated incident, yes? (There were 41 reported deaths following the pertussis vaccine last year, but that is a whole other story.)
And those 27 autism deaths are only the ones who came across my google alerts for "autism deaths" or "autism died" or "autism drowning." The test I use on how to include them is basically, "would this have happened to this this person was neurotypical?" Who knows how many more went unreported or didn't get picked up by google. I would love to quote an actual statistic on how often autism kills, or how their incidence of premature death compares to the general population, but no public health agency cares enough to track this.
But insurance companies, whose bottom lines are effected by deaths and actually need to know if autism is deadly, won't sell life insurance policies on children with autism younger than 10, because it is not a good risk for them. See the problem there?
Our precious ones drowned, were murdered by caretakers and loved ones, were shot by police, suffocated while being restrained, were hit by cars, burned to death in fires, died from neglect and were killed by seizures. A few of them even killed others during their own melt downs.
Bryan Nevins, age 20, died because, on a hot day, he could not simply open the door of a van and get out. His institutional caretaker was on her cell phone and forgot about him for five hours. She is in jail now.
Autism kills and our government could not give less of a damn.
Autism Speaks doesn't seem to want to make that point that autism kills more than whooping cough, because then the public might actually begin to see this as a public health emergency and demand results... and then were would AS be? The party financing would dry up. Better for them to let autism linger and keep sucking up cash from suckers as they pretend to do something about it. Autism Speaks has found quite the cash cow.
(Speaking of... Guidestar finally posted AS's 2009 tax returns... they took in 45.5 million, and less than a quarter of it went to grants to do what the purported purpose of the org is, "Autism Speaks (AS) funds research into the causes, prevention, treatment and cure for autism. AS raises public awareness about autism and its effects on individuals, families, and society. AS aims to bring the autism community together to urge government and the provate sector to take action to address this urgent global health crisis." Of the whole list, "autism awareness" is the only thing that I think they actually have accomplished since their inception.)
And HHS's admissions that yes, vaccines CAN AND DO CAUSE AUTISM would mean that HHS has been able to do something about this FOR YEARS and has not done it. It means that those vaccine cases can be avoided by screening for mitochondrial disorders, autoimmunity and toxicity, and treated early on if doctors were actually taught that "vaccine induced encephalopathy" exists and if recognized and treated immediately that it may minimize or even prevent many cases of autism from developing.
And that might also mean that the people who have been sitting on this information for years, and decades, might suffer some consequences.
But AS has decided to ignore HHS's own claims of vaccine autism causation and openly declared that everyone should stop talking about the vaccine autism link.
Better that we just "wear blue" because dealing with all that ugliness would just be too ugly.
This is my post on "Autism Awareness" from 2008 entitled, "Insensitive Jerk Makes a Good Point". Nick sees all the signs that tell him that Autism is everywhere, but tells him nothing about what to do about it. And this was three years ago. I should try to track Nick down and see if he has figured out what he can do about it yet.
HAPPY PHONY, BS, ARCHAIC, DESCRIPTION OF BEHAVIORS DIAGNOSIS THAT TELLS US NOTHING ABOUT WHAT IS GOING ON MEDICALLY SO WE CAN KEEP IGNORING THE TOXIC CAUSES OF WHATEVER THE HELL IT REALLY IS WHILE IT CONTINUES TO KILL PEOPLE CELEBRATION DAY!
Make sure you wear blue, write a check to AS, vaccinate your baby, give him a dose of Tylenol, feed him GMO's and then go back to sleep. They experts are handling it for you.
Insensitive Jerk Makes a Good Point
By Ginger Taylor, Adventures In Autism
APRIL 13, 2008
Last week Nick Jameson, college smart ass, wrote a piece on his reaction to the autism awareness campaign currently under way. One currently struggling with autism might be put off by his callousness until one remembers that he is only 22 and that we were all pretty much insensitive smart asses at 22.
I would encourage all to allow Nick a chance to grow and check back with him in 10 years or so when he is expecting his first child and see if maturity has tempered his stance.
But what is useful from Nick, random college punk, is this reaction:
For example, what is the purpose of putting up a billboard that is telling me a child is born with autism every 20 minutes? What can I possibly do other than sit in my car and mutter to myself, “Well that sucks.” Maybe if there was a cure or even ways to help prevent autism, it might make more sense to have a billboard. Then it would reinforce concepts in people’s head that they could apply later like “only you could prevent forest fires” or “don’t eat cheese before noon.” But frankly, all this billboard is really saying is, “Beware, autistic people are everywhere,” and I’m sure that isn’t the message they want to get across. We already know autism exists; give us something we can work with. If the autism front wants to put us through a year of sappy ads and TV specials, than at least make it worth the time and money and headache. Teach us something. I was on my way to New York City this weekend and every toll booth was littered with autism propaganda. Did I learn anything? No. There are more intelligent ways to get out a message to the public.
Does Nick know that there are successful treatments available? Does Nick know that there are some kids who are completely recover from autism? Does Nick know that there are things that he can do to prevent his own children (should he ever become soft hearted enough for a woman to agree to marry and/or procreate with him) from slipping in to autism?
Apparently not. And that is the fault of the media who won't report the whole story.
So our young Nick has made a great point. One that parents like me have been trying to make for years now. "Autism Exists" is a message that everyone got a few years back now. But the important message, "Autism is Treatable and Preventable" is one that the media will not share with him.
What is it going to take for them to tell the whole story?
In ten years, when Nick is expecting, will he have heard this message from the media? Or, like us, will he hear it from another parent on the playground after Nick Jr. is diagnosed with autism?
Addendum: Autism Speaks had a huge chance this month to get the treatment message out and yet again, they are screwing children by with holding the important message. They certainly have the cash to do it.
/End 2008 article
*Ok... I actually have no idea if Geri Dawson has horses, but I do know she lives on a ranch or a farm or something, so horses... not out of the question really.
January 10, 2011
Our Book: Vaccine Epidemic: How Corporate Greed, Biased Science, and Coercive Government Threaten Our Human Rights, Our Health, and Our Children
Funny the timing of things, right?
Last May, just before Dr. Wakefield's appearance at the Center for Personal Rights rally (of which I was a coordinator) and the launch of Wakefield's book "Callous Disregard", seemingly out of nowhere, with no real precipitating event, the media was flooded with stories, old stories, unfounded stories, about how Dr. Wakefield's research was bogus, that the vaccine/autism link has been disproven and declared the vaccine safety debate over.
Imagine my surprise when this week, seemingly out of nowhere, with no real precipitating event, the media was flooded with stories, old stories, unfounded stories, about how Dr. Wakefield's research was bogus, that the vaccine/autism link has been disproven and declared the vaccine safety debate over.
It might lead someone to wonder... does the vaccine safety/choice community and/or Dr. Wakefield have any events and/or books coming out for which this might be an attempt to sabotage/distract/end around/disparage/discredit and generally torpedo? I mean they did that with "Callous Disregard" in the spring and to "Age of Autism" last fall, should I be looking for a new book from those who care about vaccine safety?
Fortunately, I already know the answer to that question is... wait for it... YES!
And I know that because I am proud to share that I am a contributing editor and co-author (along with Andrew Wakefield and more than twenty others) of the upcoming book, brought to you by the Center for Personal Rights, announced today:

How crazy that AGAIN, just like last May, that Wakefield has been declared a dastard, and vaccines cleared of all wrong doing RIGHT BEFORE our community comes out with media on the vastness of the problems in the vaccine program... darn the luck, I tell ya. Boy... do we have bad timing or what!
And that the source of this damning "new information" (which was actually from March of 2010) is once again, Brian Deer, who has mined the (illegally obtained) medical files of the children in Wakefield's paper to find evidence of "fraud" (by which he means that kids GP's who knew nothing about bowel disease and autism took different notes than the internationally known specialists in the field doing in depth research and medical evaluations on the children). Brian Deer.... who for those of you who have lost track, was the man who made the complaint that Wakefield's GMC trial was in response to (but who is also a "journalist" reporting on it... wrap your brain around those ethics if you can)... Deer has has managed to find "fraud" that was undectable by the parents of the children involved in the research project, Wakefield's 12 coauthors on the paper, the prosecutors and judges in Wakefield's 6 year/3 million dollar GMC trial, and the entire medical community and autism community, in the 13 years since this paper has been published.
Wow... that Brian Deer is one talented "journalist". So talented in fact, that he, among all journalists and doctors and people on planet earth, is allowed to illegally obtain the medical records of children, and not only escape arrest and prosecution for doing so, but is granted special dispensation to actually PUBLISH information, over the protests of the children's parents, that he claimed came from the files... in a medical journal! And not just that, but gets to have his unverifiable allegations broadcast by every mainstream media outlet in the US! (Anyone wonder why this is not being broadcast in the UK? Might there be legal problems with doing that there? Never mind... I am probably concerning myself over nothing.)
/end sarcasm
If it is not clear to you this far, let me be frank about it. The coverage of the vaccine/autism debate that you see in the media, is not scientific debate or earnest investigation... it is a dog fight. And Pharma plays dirty.
The vaccine industry is a 27 billion dollar per year business. It is as near as you get to the Federal Reserve and the Treasury as a license to print money. Vaccines are marketed and purchased by the US government and vaccine makers are immune from any financial or any other kind of liability when their vaccines kill or maim the American people. If you had a product line that you didn't have to advertise, that every child in the country had to buy (several times) and that you could not be sued for, and that even when one of your products was known to cause widespread death and damage, you could STILL go a decade or more with out having to go to the expense of updating it... how hard would you fight to keep that golden goose a'layin'? OK... pretend you have the gutter ethics of Merck, and GSK (who make MMR in the US and the UK respectively) and then tell me how hard you would fight. Ruining a man's life to prevent billions or trillions in future losses and potentially damaging a few kids is really nothing at all. It certainly would not have been the first time, nor the last. (Have I mentioned that Deers "investigations" have been mostly published by James Murdoch's newspaper? Did I mention that Murdoch is on the board of directors of GSK who makes the MMR? Or that Deer was "assisted" by Pharma's investigationhit squad firm? So many coincidences, many more to wade through over at Age of Autism.)
Vaccine Epidemic is a real threat to those 27 billion in profits. Our book is a very serious, very in depth analysis, by a cadre of smart and respected professionals (and me), that outlines the international medical standard of informed consent, stories of a variety of vaccine damage, legal implications/historical perspectives/financial concerns/political machinations/medical opinions of vaccinations and presents information on much of the damage that 25 years of pharmaceutical liability protection has done to the vaccine program and to our children.
What you have witnessed in the media this week is a frenzied effort to convince you that:
1. This one research paper represents all of the concerns about the vaccine program. (Our book has almost 400 citations... and we didn't cite the Wakefield paper 400 times).
2. That Wakefield has been "discredited". (He hasn't).
3. That the vaccine/autism debate is settled and that all the questions have been "asked and answered". (It is actually expanding and the evidence that there is a causal association is mounting, not diminishing).
And if you read Vaccine Epidemic, you will see why the medical community and Pharma throwing out the Wakefield paper and declaring the debate "closed", is like carving a pothole in I-95 in Virginia and declaring the interstate from Florida to Maine "closed".
They don't want the media taking our book seriously and they sure as heck don't want you to read it.
So please buy our book and decide for yourself. Is the message that you are getting on NBC the truth, the whole truth and nothing but the truth? Or do you need to take responsibility for your family's vaccine decisions in your own hands, based on your own research from original sources?
UPDATE: From the Department of Backfire
Yesterday our book was ranked below 250,000 on Amazon. At the moment it is #2,886 and climbing.
Offit's book, out last week, is 8,569
Wakefield's Callous Disregard, a year old, has climbed back up to 7,706 and number 10 in autism.
When they did this to Wakefield last spring, they put his book on the Amazon top ten list. So thank you to Brian Deer and Pharma? I guess? Keep slinging mud and the people will keep seeing through your CYA tactics and looking for the truth in how to best raise their children.
Last May, just before Dr. Wakefield's appearance at the Center for Personal Rights rally (of which I was a coordinator) and the launch of Wakefield's book "Callous Disregard", seemingly out of nowhere, with no real precipitating event, the media was flooded with stories, old stories, unfounded stories, about how Dr. Wakefield's research was bogus, that the vaccine/autism link has been disproven and declared the vaccine safety debate over.
Imagine my surprise when this week, seemingly out of nowhere, with no real precipitating event, the media was flooded with stories, old stories, unfounded stories, about how Dr. Wakefield's research was bogus, that the vaccine/autism link has been disproven and declared the vaccine safety debate over.
It might lead someone to wonder... does the vaccine safety/choice community and/or Dr. Wakefield have any events and/or books coming out for which this might be an attempt to sabotage/distract/end around/disparage/discredit and generally torpedo? I mean they did that with "Callous Disregard" in the spring and to "Age of Autism" last fall, should I be looking for a new book from those who care about vaccine safety?
Fortunately, I already know the answer to that question is... wait for it... YES!
And I know that because I am proud to share that I am a contributing editor and co-author (along with Andrew Wakefield and more than twenty others) of the upcoming book, brought to you by the Center for Personal Rights, announced today:
How crazy that AGAIN, just like last May, that Wakefield has been declared a dastard, and vaccines cleared of all wrong doing RIGHT BEFORE our community comes out with media on the vastness of the problems in the vaccine program... darn the luck, I tell ya. Boy... do we have bad timing or what!
And that the source of this damning "new information" (which was actually from March of 2010) is once again, Brian Deer, who has mined the (illegally obtained) medical files of the children in Wakefield's paper to find evidence of "fraud" (by which he means that kids GP's who knew nothing about bowel disease and autism took different notes than the internationally known specialists in the field doing in depth research and medical evaluations on the children). Brian Deer.... who for those of you who have lost track, was the man who made the complaint that Wakefield's GMC trial was in response to (but who is also a "journalist" reporting on it... wrap your brain around those ethics if you can)... Deer has has managed to find "fraud" that was undectable by the parents of the children involved in the research project, Wakefield's 12 coauthors on the paper, the prosecutors and judges in Wakefield's 6 year/3 million dollar GMC trial, and the entire medical community and autism community, in the 13 years since this paper has been published.
Wow... that Brian Deer is one talented "journalist". So talented in fact, that he, among all journalists and doctors and people on planet earth, is allowed to illegally obtain the medical records of children, and not only escape arrest and prosecution for doing so, but is granted special dispensation to actually PUBLISH information, over the protests of the children's parents, that he claimed came from the files... in a medical journal! And not just that, but gets to have his unverifiable allegations broadcast by every mainstream media outlet in the US! (Anyone wonder why this is not being broadcast in the UK? Might there be legal problems with doing that there? Never mind... I am probably concerning myself over nothing.)
/end sarcasm
If it is not clear to you this far, let me be frank about it. The coverage of the vaccine/autism debate that you see in the media, is not scientific debate or earnest investigation... it is a dog fight. And Pharma plays dirty.
The vaccine industry is a 27 billion dollar per year business. It is as near as you get to the Federal Reserve and the Treasury as a license to print money. Vaccines are marketed and purchased by the US government and vaccine makers are immune from any financial or any other kind of liability when their vaccines kill or maim the American people. If you had a product line that you didn't have to advertise, that every child in the country had to buy (several times) and that you could not be sued for, and that even when one of your products was known to cause widespread death and damage, you could STILL go a decade or more with out having to go to the expense of updating it... how hard would you fight to keep that golden goose a'layin'? OK... pretend you have the gutter ethics of Merck, and GSK (who make MMR in the US and the UK respectively) and then tell me how hard you would fight. Ruining a man's life to prevent billions or trillions in future losses and potentially damaging a few kids is really nothing at all. It certainly would not have been the first time, nor the last. (Have I mentioned that Deers "investigations" have been mostly published by James Murdoch's newspaper? Did I mention that Murdoch is on the board of directors of GSK who makes the MMR? Or that Deer was "assisted" by Pharma's investigation
Vaccine Epidemic is a real threat to those 27 billion in profits. Our book is a very serious, very in depth analysis, by a cadre of smart and respected professionals (and me), that outlines the international medical standard of informed consent, stories of a variety of vaccine damage, legal implications/historical perspectives/financial concerns/political machinations/medical opinions of vaccinations and presents information on much of the damage that 25 years of pharmaceutical liability protection has done to the vaccine program and to our children.
What you have witnessed in the media this week is a frenzied effort to convince you that:
1. This one research paper represents all of the concerns about the vaccine program. (Our book has almost 400 citations... and we didn't cite the Wakefield paper 400 times).
2. That Wakefield has been "discredited". (He hasn't).
3. That the vaccine/autism debate is settled and that all the questions have been "asked and answered". (It is actually expanding and the evidence that there is a causal association is mounting, not diminishing).
And if you read Vaccine Epidemic, you will see why the medical community and Pharma throwing out the Wakefield paper and declaring the debate "closed", is like carving a pothole in I-95 in Virginia and declaring the interstate from Florida to Maine "closed".
They don't want the media taking our book seriously and they sure as heck don't want you to read it.
So please buy our book and decide for yourself. Is the message that you are getting on NBC the truth, the whole truth and nothing but the truth? Or do you need to take responsibility for your family's vaccine decisions in your own hands, based on your own research from original sources?
UPDATE: From the Department of Backfire
Yesterday our book was ranked below 250,000 on Amazon. At the moment it is #2,886 and climbing.
Offit's book, out last week, is 8,569
Wakefield's Callous Disregard, a year old, has climbed back up to 7,706 and number 10 in autism.
When they did this to Wakefield last spring, they put his book on the Amazon top ten list. So thank you to Brian Deer and Pharma? I guess? Keep slinging mud and the people will keep seeing through your CYA tactics and looking for the truth in how to best raise their children.
December 22, 2010
Death of Elias Tembenis Ruled Vaccine Induced
The Vaccine Injury Compensation Program has ruled that the death of Elias Tembenis, son of Harry and Gina Tembenis, board members of the National Autism Association, was a DTaP vaccine injury.
"Conclusion: Petitioners have satisfied the legal requirements for proving that Elias’s December 26, 2000 DTaP vaccination was a legal cause of his epilepsy and death."
The ruling can be found here.
September 28, 2010
The Government Knows How Vaccines Cause Autism, But Won't Tell Us
Over the last few years, the federal government has made several statements that they know that there is a scenario by which a seemingly healthy, fully functioning child can be vaccinated and regress into autism. But instead of telling the medical community and the public what that is, they have decided to withhold that information and make parents guess.
In the Hannah Poling case, a panel of HHS doctors were forced to admit that her vaccines cause her autism. Her father was a Johns Hopkins neurologist, her mother a nurse and a lawyer, they gave her every test under the sun and closed any hole that the government could wiggle out of in trying to deny that her autism was a vaccine injury. The government has tried its damnedest to wordsmith both the concession document and every other statement that they have been forced to make on the case to make it sound like vaccines really don't cause autism, but they have frankly done a sucky job of it, and each of these non-denial denials concocted by lawyers and pr men is more embarrassingly bad than its predecessor.
First we had the concession document itself which would not refer to what Hannah has as "autism", which is what she has, but called it, "features of autism spectrum disorder", which is both factually correct and complete bullshit. Any person diagnosed with any disorder also has the features of that disorder. Hannah Poling has DSM diagnosed full syndrome autism.
Then out came the vaccine program apologists who tried to blame the victim and make it sound like it wasn't really the vaccines fault that Hannah got sick, it was that Hannah was a poor receptacle for the super wonderful vaccine.
Then Julie Gerberding appeared on CNN to tell Dr. Gupta that vaccines can cause autism in children with mitochondrial disorders, but that vaccines could not cause autism. And he let her get away with that. Julie stressed that this occurrence is "rare". This is difficult for families to swallow since there are tens of thousands with the same story as Hannah.
She went on to claim that the fact that mitochondrial disorders and vaccine induced autism are linked should not be generalized to "normal" children, but fails to tell us which babies are the "normal" ones. Hannah seemed "normal" before her shots. So did my son. If you are not looking for abnormal, aren't ALL children considered "normal" before their vaccine induce regressive autism? If not, it wouldn't be regressive, would it.
HRSA's David Bowman let us know that vaccines don't cause autism, they just cause brain damage that may turn into autism, but that they don't check to see how often that happens. This statement not only beats Clinton's CYA for hanging his testimony on what the definition of the word "IS" is, it also torpedos Gerberding's "rare" claim, as he admits that they don't even check to see how often this happens.
So now the government's position is that vaccines don't "cause" autism, the just "result" in autism.
But since the beginning of this revelation two years ago that they know of a scenario in which a seemingly "normal" child can be vaccinated and regress into autism, have they shared that with the medical community and the public so that children can be screened to see if they are the ones that are vulnerable? No. Anne Schuchat of CDC says that would be to expensive.
Instead, they have withheld that information and are now making autism families actually GUESS at why and how their children regressed into autism from their vaccines.
Last week HRSA issued a letter to autism families in the vaccine program letting them know that they were rejecting the previously submitted MMR and thimerosal claims, and that families had to come up with a new theory or risk their cases being thrown out. (Because they are the government, that's why).
Mary Holland, appearing on Fox News this week:
So for two years HHS has been open with us that they know what vaccine induced autism is, but they are not going to tell families with children what it is... they have to guess.
These people do not deserve to hold positions in government, they deserve jail time.
In the Hannah Poling case, a panel of HHS doctors were forced to admit that her vaccines cause her autism. Her father was a Johns Hopkins neurologist, her mother a nurse and a lawyer, they gave her every test under the sun and closed any hole that the government could wiggle out of in trying to deny that her autism was a vaccine injury. The government has tried its damnedest to wordsmith both the concession document and every other statement that they have been forced to make on the case to make it sound like vaccines really don't cause autism, but they have frankly done a sucky job of it, and each of these non-denial denials concocted by lawyers and pr men is more embarrassingly bad than its predecessor.
First we had the concession document itself which would not refer to what Hannah has as "autism", which is what she has, but called it, "features of autism spectrum disorder", which is both factually correct and complete bullshit. Any person diagnosed with any disorder also has the features of that disorder. Hannah Poling has DSM diagnosed full syndrome autism.
Then out came the vaccine program apologists who tried to blame the victim and make it sound like it wasn't really the vaccines fault that Hannah got sick, it was that Hannah was a poor receptacle for the super wonderful vaccine.
Then Julie Gerberding appeared on CNN to tell Dr. Gupta that vaccines can cause autism in children with mitochondrial disorders, but that vaccines could not cause autism. And he let her get away with that. Julie stressed that this occurrence is "rare". This is difficult for families to swallow since there are tens of thousands with the same story as Hannah.
She went on to claim that the fact that mitochondrial disorders and vaccine induced autism are linked should not be generalized to "normal" children, but fails to tell us which babies are the "normal" ones. Hannah seemed "normal" before her shots. So did my son. If you are not looking for abnormal, aren't ALL children considered "normal" before their vaccine induce regressive autism? If not, it wouldn't be regressive, would it.
HRSA's David Bowman let us know that vaccines don't cause autism, they just cause brain damage that may turn into autism, but that they don't check to see how often that happens. This statement not only beats Clinton's CYA for hanging his testimony on what the definition of the word "IS" is, it also torpedos Gerberding's "rare" claim, as he admits that they don't even check to see how often this happens.
So now the government's position is that vaccines don't "cause" autism, the just "result" in autism.
But since the beginning of this revelation two years ago that they know of a scenario in which a seemingly "normal" child can be vaccinated and regress into autism, have they shared that with the medical community and the public so that children can be screened to see if they are the ones that are vulnerable? No. Anne Schuchat of CDC says that would be to expensive.
Instead, they have withheld that information and are now making autism families actually GUESS at why and how their children regressed into autism from their vaccines.
Last week HRSA issued a letter to autism families in the vaccine program letting them know that they were rejecting the previously submitted MMR and thimerosal claims, and that families had to come up with a new theory or risk their cases being thrown out. (Because they are the government, that's why).
Mary Holland, appearing on Fox News this week:
So for two years HHS has been open with us that they know what vaccine induced autism is, but they are not going to tell families with children what it is... they have to guess.
These people do not deserve to hold positions in government, they deserve jail time.
September 17, 2010
Vaccines Don't Cause Autism, and Guns Don't Kill People

A few days ago I posted a letter from HRSA responding to a media inquiry into the question of whether or not the Hannah Poling case showed that the government believed that vaccines caused autism.
[note: "encephalopathy" is a medical term for brain damage or a change in brain functioning.]
From: Bowman, David (HRSA) [mailto:DBowman@hrsa.gov]
Sent: Friday, February 20, 2009 5:22 PM
To: 'dkirby@nyc.rr.com'
Subject: HRSA Statement
David,
In response to your most recent inquiry, HRSA has the following
statement:
The government has never compensated, nor has it ever been ordered to
compensate, any case based on a determination that autism was actually
caused by vaccines. We have compensated cases in which children
exhibited an encephalopathy, or general brain disease. Encephalopathy
may be accompanied by a medical progression of an array of symptoms
including autistic behavior, autism, or seizures.
Some children who have been compensated for vaccine injuries may have
shown signs of autism before the decision to compensate, or may
ultimately end up with autism or autistic symptoms, but we do not track
cases on this basis.
Regards,
David Bowman
Office of Communications
Health Resources and Services Administration
301-443-3376
I have decided to play "If someone else said it", to show the sheer fraud at play in this statement, and of course, to ask the media if such poor quality lying and frank admissions of dereliction of duty would pass muster were it not coming from the government, and about such a sacred cow as childrens' vaccines.
From: Heston, Charlton(HRSA) [mailto:CHeston@hrsa.gov]
Sent: Friday, February 20, 2009 5:22 PM
To: 'citizen@usa.com'
Subject: HRSA Statement
Citizen,
In response to your most recent inquiry, HRSA has the following
statement:
The government has never compensated, nor has it ever been ordered to
compensate, any case based on a determination that death was actually
caused by gunshot. We have compensated cases in which people
exhibited a perforation, or general hole in the body. Perforation
may be accompanied by a medical progression of an array of symptoms
including bleeding, organ damage, or death.
Some people who have been compensated for gunshot injuries may have
shown signs of dying before the decision to compensate, or may
ultimately end up dead or with fatal symptoms, but we do not track
cases on this basis.
Regards,
Charlton Heston
Office of Communications
Gunshot Injury Compensation Program
Health Resources and Services Administration
301-443-3376
What Bowman is saying is that 'vaccines don't really cause autism, they cause brain damage that may cause autism. And we don't pay attention if it does.'
When this PR failure ran in 2009, no one else in the media picked up on it.
This week, two mainstream journalists have actually reported on the ridiculous position that the government has taken that 'vaccines don't "cause" autism, vaccines merely "result" in autism'. The first is Sharyl Attkisson at CBS, who wrote about it here and whose interest apparently was piqued enough for her to take a hard look at the "encephalopathy" shell game that HHS is playing which led to a follow up piece here: Autism, Vaccines and Brain Damage: What's in a Name? Atkisson is the latest journalist to figure out that just calling the autism cases in the VICP "encephalopathy" is their very transparent attempt to maintain some sort of denial of the widespread damage the vaccine program is doing.
She reports:
But there's a trade-off: occasionally, vaccines cause injury or death. Very rarely, patients are left with what's known as "encephalopathy", the medical term for brain damage.
In fact, CBS News has found nearly 1,300 cases in which vaccine-related brain damage has been compensated in court over the past 20 years.
1,300 hundred cases of vaccine brain damage paid by the government more than blows away the made up statistic parroted far and wide that serious vaccine damage is "ONE IN A MILLION". Because for that to be true, there would need to be 1,300,000,000 vaccinated people in the US. Which is one billion too many people.
And this 1,300 number ONLY includes brain damage, not other injuries or deaths. The total number of cases paid is 2,503. Let's say we have 300 million people vaccinated in this country in the last twenty years. That would mean that if the government has actually found, recognized and compensated every serious vaccine adverse reaction (and we know that ain't happening) then vaccine injury is about 1 in 120,000. Given that only about 1 percent of vaccine injuries are ever even reported, and that few people who fall seriously ill are ever told that their circumstance might be a vaccine reaction, if we factor that in, then we are looking at 1 in 12,000.
Keep in mind that 1 in 100 has autism, and 1 in 6 children have a developmental disability or delay, and those populations are not exactly scoured to see how many of them are vaccine injuries, and well... that is how you get a citizenry that stops believing the government.
So as there has been no research comparing vaccinated people to unvaccinated people, we can't really know the true rate of vaccine injury. My estimate is somewhere between 1 in 120,000 and 18% of the population. Lets hope someone with time and money can narrow that down for us someday.
The second journalist to have a light bulb pop in over her head, is Alisyn Camerota at Fox News, who points out the "fishy legal language" the government is using. Dr. Manny also seems to be coming to grips with the hard truth, because as I recall, years ago he was ruling out vaccines in autism.
Let's see if any other reporters are woken up by the VICP announcement of paying a child around twenty million dollars for "autism-like symptoms". (You know because people with autism have autism like symptoms, a man with no legs is also missing his big toe, I am five pounds overweight, my great, great, great grandfather currently has a mitochondrial disorder where his cells just don't make enough energy to properly power his brain, or any other small subset of a larger more dramatic condition that is both completely true and completely misleading to the listener who expects the government to tell them the truth. Did I mention that Hannah Poling has full syndrom, DSM diagnosed Autism, with a capitol "A"?)
And if you check that HRSA National Vaccine Injury Compensation Program Statistic Report page one more time, you will note that there is now a "1" in the "Compensable" column of the Autism Omnibus Proceedings. Of course HRSA has added an asterisk next to it with the following note:
"HHS has never concluded in any case that autism was caused by vaccination."
And now you can go back to the beginning of this article to remind yourself that HHS only compensates for bullet holes, not for bleeding or death.
Update:
I missed this one
Karen DeSoto at MSNBC also gets the wake up call and wants to know what the hell is going on. She notes that it is the government that has sealed the case when the Polings had requested it be open to the public so it could be of value in answering the questions we all have.
With all the attacks on them since the concession was made public, including people stalking their daughter, would they still be open to that? I don't think it matters. With out even mentioning the name Poling or one detail about Hannah, HHS could say, "Here is one process by which a seemingly neurotypical child can get autism from vaccination". Or if they want to maintain their BS legal word game cover, "This is a process by which a child with an undiagnosed mitochondrial disorder may develop autism like symptoms as a result of vaccination".
I hope that DeSoto follows up on this. She is right. Parents every where should be screaming WTH? at HHS.
Update:
Fox News follows up a week later. Becky Estepp of SafeMinds and TACA is on, and has to give Dr. Mark Siegel a lesson in vaccines.
Update:
This post is generating much traffic, so I will go ahead and add the news piece that really exposed how badly the government was lying to try to keep people from waking up to the fact that HHS has been paying these cases for almost twenty years. Julie "Vaccines Cause Autism and Do Not Cause Autism" Gerberding.
July 15, 2010
We Finally Get a Vaxxed v. Unvaxxed Study, Vaccinated Primates Have Brain Changes Seen In Autism
We finally get a vaccinated v. unvaccinated study. No... no actual children yet, but infant rhesus macaque monkeys.

And no wonder main stream medicine doesn't want vaccine studies with an actual baseline (completely unvaccinated), because the results are dramatic.
The infant primates vaccinated according to the US vaccine schedule (equivalent to their size/development rate, pre 2002 shots WITH full doses of mercury) showed the same brain changes found in children with autism. The amygdala, the fear and anxiety center, did not mature properly in the vaccinated group, and those differences did not appear until AFTER the 12 month vaccines were given.
The abstract:
The full paper: Hewitson et. al.
The editorial written by the editor of the journal, who says:
Mark Blaxill and Dan Olmsted's discussion of the paper: New Study Shows Vaccines Cause Brain Changes Found in Autism
It should be noted that in the spring of 2008, The American Academy of Pediatrics was informed of this study. At the conclusion of the DAN conference in Cherry Hill, NJ in April of 2008, Dr. Jerry Kartzinel personally discussed it with Dr. Louis Cooper who was there representing the AAP. Cooper skirted the issue, acting as if he was concerned with the cost of the study, and Kartzinel replied that the study was fully funded and underway. Cooper was clearly not comfortable with the discussion of the study, and changed the subject. In their discussion of what Cooper had seen at the conference and how to proceed with some sort of partnership between ARI and AAP, Cooper had already stated to Kartzinel:
To my knowledge, AAP never got back to anyone on their input into, or involvement with, this primate study. Note that the study was not published by Pediatrics, where it belongs, as it is AAP's journal and AAP is Pharma's main vaccine distributor. I am sure they want this buried as deep as is possible.
I am interested to see what AAP's public comment will be on this. If there is one.
AAP's (@ameracadpeds)twitter page can be found here: http://twitter.com/ameracadpeds
Feel free to call this post to their attention.
And no wonder main stream medicine doesn't want vaccine studies with an actual baseline (completely unvaccinated), because the results are dramatic.
The infant primates vaccinated according to the US vaccine schedule (equivalent to their size/development rate, pre 2002 shots WITH full doses of mercury) showed the same brain changes found in children with autism. The amygdala, the fear and anxiety center, did not mature properly in the vaccinated group, and those differences did not appear until AFTER the 12 month vaccines were given.
The abstract:
Influence of pediatric vaccines on amygdala growth and opioid
ligand binding in rhesus macaque infants: A pilot study
Acta Neurobiol Exp 2010, 70: 147–164
©2010 by Polish Neuroscience Society - PTBUN, Nencki Institute of Experimental Biology
Laura Hewitson1,2,*, Brian J. Lopresti3, Carol Stott4, N. Scott Mason3 and Jaime Tomko1
1Department of Obstetrics and Gynecology, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA;
2Thoughtful House Center for Children, Austin, TX, USA; 3Department of Radiology, University of Pittsburgh School of
Medicine, Pittsburgh, PA, USA; 4Independent Chartered Scientist, Cambridge, UK;
*Email: lch1@pitt.edu
This longitudinal, case-control pilot study examined amygdala growth in rhesus macaque infants receiving the complete US childhood vaccine schedule (1994-1999). Longitudinal structural and functional neuroimaging was undertaken to examine central effects of the vaccine regimen on the developing brain. Vaccine-exposed and saline-injected control infants underwent MRI and PET imaging at approximately 4 and 6 months of age, representing two specific timeframes within the vaccination schedule. Volumetric analyses showed that exposed animals did not undergo the maturational changes over time in amygdala volume that was observed in unexposed animals. After controlling for left amygdala volume, the binding of the opioid antagonist [11C]diprenorphine (DPN) in exposed animals remained relatively constant over time, compared with unexposed animals, in which a significant decrease in [11C]DPN binding occurred. These results suggest that maturational changes in amygdala volume and the binding capacity of [11C]DPN in the amygdala was significantly altered in infant macaques receiving the vaccine schedule. The macaque infant is a relevant animal model in which to investigate specific environmental exposures and structural/functional neuroimaging during neurodevelopment.
Key Words: rhesus macaques, Macaca mulatta, non-human primates, animal model, neuroimaging, PET, MRI, amygdala, opioids, ethyl mercury, thimerosal, neurotoxicity
The full paper: Hewitson et. al.
The editorial written by the editor of the journal, who says:
An alarming finding is reported by Hewitson and coworkers showing that, in infant monkeys that were immunized, the amygdala does not show the normal pattern of maturation but is hypertrophied. Although these are only preliminary data, given the well-known role of the amygdala in generation of fear and other negative emotions, they support the possibility that there is a link between early immunization and the etiology of autism.
Mark Blaxill and Dan Olmsted's discussion of the paper: New Study Shows Vaccines Cause Brain Changes Found in Autism
It should be noted that in the spring of 2008, The American Academy of Pediatrics was informed of this study. At the conclusion of the DAN conference in Cherry Hill, NJ in April of 2008, Dr. Jerry Kartzinel personally discussed it with Dr. Louis Cooper who was there representing the AAP. Cooper skirted the issue, acting as if he was concerned with the cost of the study, and Kartzinel replied that the study was fully funded and underway. Cooper was clearly not comfortable with the discussion of the study, and changed the subject. In their discussion of what Cooper had seen at the conference and how to proceed with some sort of partnership between ARI and AAP, Cooper had already stated to Kartzinel:
"I’m concerned about immunization policy and how you protect immunization."
To my knowledge, AAP never got back to anyone on their input into, or involvement with, this primate study. Note that the study was not published by Pediatrics, where it belongs, as it is AAP's journal and AAP is Pharma's main vaccine distributor. I am sure they want this buried as deep as is possible.
I am interested to see what AAP's public comment will be on this. If there is one.
AAP's (@ameracadpeds)twitter page can be found here: http://twitter.com/ameracadpeds
Feel free to call this post to their attention.
December 4, 2008
The DOD Aknowledges Autism as a Vaccine Injury
Please read David Kirby's article on the DOD documents that recognize autism as an adverse reaction to the DTaP vaccine, and that thimerosal toxicity, which may also cause autism, be treated with methyl B12 and chelation. In fact DOD is paying for chelation and DAN! doctors for military dependents.
And this stuff is still considered "controversial"???
Additionally, the DOD urges caution in giving multiple vaccines and in not continuing to vaccinate those who have shown previous vaccine reactions.
I am looking forward to the discussion that follows and from hearing from DOD doctors on why they have put out these statements.
But I suspect that it is because, unlike civilian medical authorities and private practices, the military cannot jettison their vaccine injured personnel and dependents. They will have to care for these people, sometimes for the rest of their lives.
So unlike Medicine/Pharma/Federal Government, vaccine injury effects the DOD bottom line, and their actual reason for existing... military readiness.
The Pentagon - A Voice of Reason on Vaccines and Autism?
UPDATE: DOD yanks up the welcome mat and puts out a "gone fishin" sign. Anderson Cooper ditches the story, then unditches it. Army dad says high ranking military officials believe vaccines cause autism.
Several military autism families are digging into this and I would encourage those who are interested in the DOD story to keep an eye on Autism Salutes.
Keep in mind, the Navy was the first organization to implement chelation. In the 1950's they began giving EDTA to those with lead poisoning from paint on ships.
And this stuff is still considered "controversial"???
Additionally, the DOD urges caution in giving multiple vaccines and in not continuing to vaccinate those who have shown previous vaccine reactions.
I am looking forward to the discussion that follows and from hearing from DOD doctors on why they have put out these statements.
But I suspect that it is because, unlike civilian medical authorities and private practices, the military cannot jettison their vaccine injured personnel and dependents. They will have to care for these people, sometimes for the rest of their lives.
So unlike Medicine/Pharma/Federal Government, vaccine injury effects the DOD bottom line, and their actual reason for existing... military readiness.
The Pentagon - A Voice of Reason on Vaccines and Autism?
UPDATE: DOD yanks up the welcome mat and puts out a "gone fishin" sign. Anderson Cooper ditches the story, then unditches it. Army dad says high ranking military officials believe vaccines cause autism.
Several military autism families are digging into this and I would encourage those who are interested in the DOD story to keep an eye on Autism Salutes.
Keep in mind, the Navy was the first organization to implement chelation. In the 1950's they began giving EDTA to those with lead poisoning from paint on ships.
October 18, 2008
Every Child By Two Wants to Take the Vaccine Debate to Oprah
Amy Pisani, director of Every Child By Two, (a vaccine advocacy non-profit funded by Pharma) has asked her supporters to write to the Oprah show and ask "that she dedicate a show to the science behind the question of whether vaccines cause autism".
We here at Adventures in Autism think that is a GREAT idea.
It is LONG past time to have an ACTUAL public debate between physicians, researchers and parent advocates that believe that there is a link and those that think there is not, an ACTUAL debate on the merits of the arguement. Have your opponent right there to respond, rather than just having AAP and CDC issue statements that they cannot be questioned on.
As a matter of fact Pamela Felice of The Educated Parent got in touch with Oprah earlier this year and asked for exactly that.
So if you are so inclined, I would encourage you to write to the Oprah show and let them know that you would like to see such a debate, not just Paul Offit and ECBT being given an hour to say whatever they want unchallenged, but an actual, equal time, debate.
Time and time again, those of us on this side of the debate have requested that CDC/AAP/those who deny the vaccine autism connection appear on TV alongside us to actually debate the issue, but apart from Larry King's program last spring with Jenny McCarthy, that request is pretty much universally turned down. And CDC would not even show up to sit next to AAP on Larry King. They just issued one of those damn statements to be read.
Is the topic of a vaccine/autism connection is of so little importance, and so little concern to the American public, that they can't spare one single person to show up and talk about it?
So we thank Ms. Pisani for being willing to participate in this public debate. Let Oprah know that this is the debate that you have been waiting to see!
Dear Oprah,
I am the mother of a child who regressed into autism following his 18 month vaccinations. I have been reading and writing about the vaccine/autism connection for four years and believe that there is more than sufficient evidence to prove a link.
More importantly, apparently so does the Department of Health and Human Services as they have been quietly paying children with vaccine induced autism from the Vaccine Injury Compensation Fund for more than 15 years now, and they list the symptoms of autism under vaccine induced 'acute encephalopathy' on the VICP's web site. In addition, the head of the CDC, Julie Gerberding, went on CNN this spring and said that vaccines trigger autism in a subset of the population.
It is been incredibly frustrating to see advocates of the vaccine autism connection, like Jenny McCarthy, appear on national programs like yours to discuss it, and hear that CDC/HHS ubiquitously refuses to appear along side them and have an actual debate and be questioned on their claims. Instead they issue a statement to be read at the end of the show that they can never be questioned on.
Do they think that this is not an important enough issue for them to send one person to speak on their behalf? If the science is so sound that vaccines don't cause autism, then why are they so afraid to show up and be questioned on it?
However, it is my understanding that Amy Pisani of Every Child By Two has contacted the show and asked for an episode on the autism/vaccine connection, and I am writing to support her in her request. What this country needs is OPEN debate on this issue between physicians/researchers and parents on both sides on what the science really says, what the science is silent on, and who is overstating their case.
I think that Ms. Pisani has envisioned an hour for her and her experts (ECBT is funded by pharmaceutical companies) to extol the virtues of vaccines and ignore the questions and points that parents like me and our physicians would make, but honestly, that is pretty much what has been going on in this country for the last decade.
So instead, I hope you will consider Pamela Felice's request to your show from last spring:
Personally, I would like to see Bernadine Healey expound on her understanding of the state of the research and why she is of the opinion that we can't no longer say that vaccines don't cause autism, or neurologist Jon Poling explain his understanding of the relationship between vaccine induced autism and undiagnosed mitochondrial disorders.
Thank you for your attention this vital issue.
Ginger Taylor, M.S.
AdventuresInAutism.com
We here at Adventures in Autism think that is a GREAT idea.
It is LONG past time to have an ACTUAL public debate between physicians, researchers and parent advocates that believe that there is a link and those that think there is not, an ACTUAL debate on the merits of the arguement. Have your opponent right there to respond, rather than just having AAP and CDC issue statements that they cannot be questioned on.
As a matter of fact Pamela Felice of The Educated Parent got in touch with Oprah earlier this year and asked for exactly that.
So if you are so inclined, I would encourage you to write to the Oprah show and let them know that you would like to see such a debate, not just Paul Offit and ECBT being given an hour to say whatever they want unchallenged, but an actual, equal time, debate.
Time and time again, those of us on this side of the debate have requested that CDC/AAP/those who deny the vaccine autism connection appear on TV alongside us to actually debate the issue, but apart from Larry King's program last spring with Jenny McCarthy, that request is pretty much universally turned down. And CDC would not even show up to sit next to AAP on Larry King. They just issued one of those damn statements to be read.
Is the topic of a vaccine/autism connection is of so little importance, and so little concern to the American public, that they can't spare one single person to show up and talk about it?
So we thank Ms. Pisani for being willing to participate in this public debate. Let Oprah know that this is the debate that you have been waiting to see!
Dear Oprah,
I am the mother of a child who regressed into autism following his 18 month vaccinations. I have been reading and writing about the vaccine/autism connection for four years and believe that there is more than sufficient evidence to prove a link.
More importantly, apparently so does the Department of Health and Human Services as they have been quietly paying children with vaccine induced autism from the Vaccine Injury Compensation Fund for more than 15 years now, and they list the symptoms of autism under vaccine induced 'acute encephalopathy' on the VICP's web site. In addition, the head of the CDC, Julie Gerberding, went on CNN this spring and said that vaccines trigger autism in a subset of the population.
It is been incredibly frustrating to see advocates of the vaccine autism connection, like Jenny McCarthy, appear on national programs like yours to discuss it, and hear that CDC/HHS ubiquitously refuses to appear along side them and have an actual debate and be questioned on their claims. Instead they issue a statement to be read at the end of the show that they can never be questioned on.
Do they think that this is not an important enough issue for them to send one person to speak on their behalf? If the science is so sound that vaccines don't cause autism, then why are they so afraid to show up and be questioned on it?
However, it is my understanding that Amy Pisani of Every Child By Two has contacted the show and asked for an episode on the autism/vaccine connection, and I am writing to support her in her request. What this country needs is OPEN debate on this issue between physicians/researchers and parents on both sides on what the science really says, what the science is silent on, and who is overstating their case.
I think that Ms. Pisani has envisioned an hour for her and her experts (ECBT is funded by pharmaceutical companies) to extol the virtues of vaccines and ignore the questions and points that parents like me and our physicians would make, but honestly, that is pretty much what has been going on in this country for the last decade.
So instead, I hope you will consider Pamela Felice's request to your show from last spring:
With autism awareness month approaching in April and in light of the recent court ruling regarding Hannah Polling's vaccine related autism, I thought it might be interesting for Oprah to host a debate on the topic of vaccine safety.
Some suggested guests might include; David Kirby, author of Evidence of Harm, Dr. Robert Sears, Author of The Vaccine Book , Dr. Boyd Haley, head of the Chemistry Dept at Kentucky State University, Dr. Jerry Kertzinel, the DAN! Dr. treating Jenny McCarthy's son and Barbbra Lowe Fisher of the National Vaccine Information Ctr. on the Critic side.
Possible panelists who support the current vaccine program might include, Dr. Paul Offit, Dr. Julie Gerberding, Director of the CDC, a representative of the American
Academy of Pediatrics and/or a representative of Every Child By Two.
Personally, I would like to see Bernadine Healey expound on her understanding of the state of the research and why she is of the opinion that we can't no longer say that vaccines don't cause autism, or neurologist Jon Poling explain his understanding of the relationship between vaccine induced autism and undiagnosed mitochondrial disorders.
Thank you for your attention this vital issue.
Ginger Taylor, M.S.
AdventuresInAutism.com
September 23, 2008
Congressional Vaccine-Autism Briefing - Call your Congressman!
If you don't see all your representatives on the list, call them first thing in the AM and ask them to attend.
If you do see your representatives on the list, call them and thank them for going and let them know how important this is to you.
If you do see your representatives on the list, call them and thank them for going and let them know how important this is to you.
FOR IMMEDATE RELEASE: September 23, 2008
CONTACT: Carlos Jimeno, 718-230-4250;
David Kirby 718-208-6883
VACCINE-AUTISM BRIEFING ON CAPITOL HILL TO DRAW MEMBERS OR STAFF FROM
125 HOUSE AND SENATE OFFICES
--Updates on Science, Policy, and Politics on the Agenda--
WASHINGTON, DC Rep. Carolyn Maloney (R-NY) will sponsor a special briefing on the vaccine-autism debate on Wednesday, September 24 at 2:00 PM in Room 210 of the Cannon House Office Building in Washington, DC.
David Kirby, investigative journalist and author of The New York Times bestseller “Evidence of Harm, Mercury in Vaccines and the Autism Epidemic A Medical Controversy,” will inform Members and their staff about developments in this debate from science, public policy, politics and law.Kirby will be joined Mark Blaxill, Director of the Coalition for SAFE MINDS.
Among the issues to be discussed are:
● A recent Vaccine Court case in which the federal government conceded that vaccines induced autism in one girl with an underlying mitochondrial dysfunction.
● Possible links between mitochondrial dysfunction and autistic regression, and information on several ASD children with mitochondrial issues;
● State-of-the-art research underway at top universities on the connection between environmental toxins, mitochondrial function, oxidative stress, glutathione depletion, neuro-inflammation and autistic encephalopathy;
● Research agendas from the CDC and NIH that include investigations into links between vaccines and neuro-immune disorders
● The scope and implications of the autism epidemic. How scientific politics is preventing policy from catching up to the problem.
● Ongoing research into connections between mercury exposure and autism. Why most of what is reported is inaccurate.
● Reframing concerns over the vaccine program: It’s not a question of being pro or con vaccines, but rather a question of safety management.
David Kirby and Mark Blaxill are available for interviews. More information is at www.evidenceofharm.com and www.safeminds.com
THERE ARE NOW 126 CONGRESSIONAL OFFICES CONFIRMED:
HOUSE
Rep. Carolyn Maloney (D-NY)*
Rep. Chris Smith (R-NJ) Autism Caucus Co-Chair (“He read EOH cover to cover”)*
Rep. Hank Johnson (D-GA)
Rep. Dan Burton (R-IN)*
Rep. Tom Price (R-GA)
Rep. Christopher Carney (D-PA) (Will attend in person)*
Rep. Carney’s Health Care Legislative Aide
Rep. Kirsten Gillibrand (D-NY)
Rep. Paul Brown (D-GA) (Will try to attend in person)
Rep. Michael McNulty (D-NY) (“Likely)*
Rep. Gary Ackerman (D-NY)*
Rep. Marsha Blackburn (R-TN)
Rep. Lincoln Davis (D-TN)*
Rep. Neil Abercrombie (D-HI)*
Rep. Steven LaTourette (R-OH)
Rep. Charlie Wilson (D-OH)*
Rep. Eliot Engel (D-NY) (Will attend in person)*
Rep. Xavier Becerra (D-CA)*
Rep. Earl Blumenauer (D-OR)*
Rep. Michael Capuano (D-MA)*
Rep. Andre Carson (D-IN)*
Rep. John Duncan (R-TN) (Will try to attend in person)*
Rep. Jim Langevin (D-RI)*
Rep. Robert Brady (D-PA)*
Rep. Gabrielle Giffords (D-AZ)*
Rep. Phil Gingrey (R-GA)*
Rep. Gene Green (D-TX)*
Rep. Marcy Kaptur (D-OH)*
Rep. Patrick Kennedy (D-RI)*
Rep. Susan Davis (D-CA)*
Rep. Ron Kind (D-WI)*
Rep. John Kline (R-MN) ("They really want to be a part of this.")*
Rep. Mark Steven Kirk (R-IL)*
Rep. Raul Grijalva (D-AZ)
Rep. Jim Langevin (D-RI)*
Rep. Sander Levin (D-MI)*
Rep. Mike Michaud (D-ME)*
Rep. Frank LoBiondo (R-NJ)
Rep. Phil English (R-PA)*
Rep. Anna Eshoo (D-CA) (Most likely)*
Rep. Vito Fossella (R-NY) (Either in person or will send staff)*
Rep. Barney Frank (D-MA) (Very likely)*
Rep. Thaddeus McCotter (D-MI)*
Rep. Jim McGovern (D-MA)*
Rep. Steven Lynch (D-MA)*
Rep. Louie Gohmert (D-TX)
Rep. Ed Whitfield (R-KY) (“Will try”)
Rep. Jim Matheson (D-UT)*
Rep. Doris Matsui (D-CA) (In person or a staffer will be there)*
Rep. Carolyn McCarthy (D-NY)*
Rep. John McHugh (R-CA)*
Rep. Buck McKeon (R-CA)*
Rep. Gregory Meeks (D-NY) (“Will make every attempt possible”)*
Rep. Brad Miller (D-NC)*
Rep. Jo Bonner (R-AL)
Rep. Gresham Barrett (R-SC)
Rep. Duncan Hunter (R-CA)
Rep. Rush Holt (NJ) (“Will try to attend in person, or else send staff rep”)*
Rep. Virgil Goode (R-VA)*
Rep. John Barrow (D-GA) (“Will attend in person, pending events that day”)
Rep. Patrick Kennedy (D-MA) (“Will try to send someone”)*
Rep. Marilyn Musgrave (R-CO) (“Staffer will most likely attend”)*
Rep. Tammy Baldwin (D-WI)*
Rep Van Hollen (D-MD)
Rep.Jim Moran (D-VA) (“We are ALL very interested in this issue.”)*
Rep. Chip Pickering (R-MS) (“Congressman Pickering is passionate about this issue.”)*
Rep. Frank Pallone (D-NJ) (“Staffer will most likely be there.”)*
Rep. Bill Pascrell (D-NJ) (“Staffer will probably be present.”)*
Rep. Collin Peterson (D-MN)*
Rep. John Peterson (R-PA)*
Rep. Todd Platts (R-PA)*
Rep. John P. Murtha (D-PA)*
Rep. David Price (D-NC)*
Rep. Adam Putnam (R-FL)*
Rep. Rodney Alexander (R-LA)
Rep. Nita Lowey (D-NY)*
Rep. Linda Sanchez (D-CA) “Staffer will probably be present”*
Rep. Grace Napolitano (D-CA)*
Rep. Mike Rogers (R-MI)*
Rep. Adam Schiff (D-CA) (“Will do their best to get a staffer there”)*
Rep. Pete Sessions (R-TX)*
Rep. Joe Sestak (D-PA) (“Will try their best to have someone there”)*
Rep. Tom Bishop (D-NY) (“It’s on his schedule”)
Rep. Nick Rahall (D-WV)*
Rep. Bart Stupak (D-MI)*
Rep. Bennie Thompson (D-MS)*
Rep. Pat Tiberi (R-OH) (“Will do their best”)*
Rep. Fred Upton (R-MI) (“Will do their best”)*
Rep. Zach Wamp (R-TN) (“Will be there in person along with his health staffer”)*
Rep. Bob Latta (R-OH) (“Will try to attend”)
Rep. Anthony Weiner (D-NY)*
Rep. Dave Weldon (R-FL) (“Will try to be there in person, if not a staffer go”)*
Rep. David Wu (D-OR)*
Rep. Patrick McHenry (R-NC)
Rep. Virginia Brown-Waite (R-FL)
Rep. Niki Tsongas (D-MA)
Rep. Joe Wilson (R-SC) (“Will attend in person or send a staff person”)*
SENATE
Sen. Evan Bayh (D-IN) (“Likely”)
Sen. John Isakson (R-GA)*
Sen. Thad Cochrane (R-MI) (“Will try”)
Sen. Sherrod Brown (D-OH)*
Sen. Maria Cantwell (D-WA)*
Sen. Bob Corker (R-TN)
Sen. Lamar Alexander (R-TN)
Sen. Robert Casey (D-PA)
Sen. Jeff Sessions (R-AL)
Sen. Hillary Clinton (D-NY) (“Will try to send someone”)*
Sen. Patty Murray (D-WA)
Sen. Saxby Chambliss (R-GA)
Sen. Frank Lautenberg (D-NJ)
Sen. Kent Conrad (D-ND)
Sen. Jack Reed (D-RI)
Sen. Sheldon Whitehouse (D-RI)
Sen. Byron Dorgan (D-ND)
Sen. Norm Coleman (R-MN)
Sen. John McCain (R-AZ) (“Health staffer will try”)
Sen. Lindsay Graham (R-SC)
Sen. Tim Johnson (D-SD)
Sen. John Thune (R-SD) (“Staff person will try to attend”)
Sen. Chuck Schumer (D-NY)*
Sen. Barbara Mikulski (D-MD) (“Will try to have health staffer attend”)*
Sen. Mary Landrieu (D-LA)
Sen Mitch McConnell (R-KY)
Sen. Lisa Murkowski (R-AK)
Sen. Richard Burr (R-NC)
Sen. George Voinovich (R-OH) (“Will try”)
Sen. John Kerry (D-MA)
HOUSE: 96
SENATE: 30
DEM: 76
GOP: 50
ALSO ATTENDING:
Kate Mevis - FDA
* Denotes a member of the 2007 2008 Coalition for Autism Research and Education (Autism Caucus) of the 110th Congress.
July 8, 2008
The CDC to Study Vaccine Induced Encephalopathy!
Finally! The CDC's Clinical Immunization Safety Assessment Network is currently looking for subjects to "evaluate the association between viral vaccines and encephalopathy/encephalitis through a detailed evaluation of children with encephalopathy/encephalitis as well as control children".
Their message to doctors:
"If you have a patient who you think might be eligible for the study, please complete the following two questions and provide your contact information. We thank you for your help in this important study."
This is a HUGELY important subject, one we have been waiting for them to examine, and we want to make sure that they have all the subjects they need for this study, so please take a moment to see if your child might be a candidate.
Does your child have an encephalopathy?
According to HHS's Vaccine Injury Compensation Table symptoms are:
And the Merck Manual notes that these symptoms can be preceded by:
If this sounds like your child, because boy howdy it sounds just like mine, call your pediatrician and let him know about the study to see if your child indeed has an encephalopathy and should be enrolled!
Oh wait... hold on a second... there are some exclusion criteria... Let me check them out...
Ok... so if your child has the above, but DOESN'T have:
THEN they want to study them to see if their encephalopathy might have anything to do with their vaccines. You know, the HEALTHY kids with encephalitis.
So as long as the swelling in your child's brain that was caused by vaccines didn't cause or was not related to any of the above symptoms, CDC wants to get to know your child.
But that pretty much counts our all our kids... now doesn't it.
Never mind.
UPDATE: The day this post went up, the site with the study on it went down. Quite a coincidence.
I check the wayback machine and found that the call out for this study, which can be found here, was posted at the end of 2004. Was it ever undertaken?
Since the study has been there for almost four years, and went down the day that I wrote about it, I am just going to go ahead and assume that the correlation of these two events is likely more than just a temporal association.
Their message to doctors:
"If you have a patient who you think might be eligible for the study, please complete the following two questions and provide your contact information. We thank you for your help in this important study."
This is a HUGELY important subject, one we have been waiting for them to examine, and we want to make sure that they have all the subjects they need for this study, so please take a moment to see if your child might be a candidate.
Does your child have an encephalopathy?
According to HHS's Vaccine Injury Compensation Table symptoms are:
Loss of eye contact
Seizures
Not responding to external stimuli
Seems disconnected from the world around them
And the Merck Manual notes that these symptoms can be preceded by:
Nonspecific Gastrointestinal disorders.
If this sounds like your child, because boy howdy it sounds just like mine, call your pediatrician and let him know about the study to see if your child indeed has an encephalopathy and should be enrolled!
Oh wait... hold on a second... there are some exclusion criteria... Let me check them out...
Ok... so if your child has the above, but DOESN'T have:
A history of medical disease
A history of congenital problems
A history of developmental delay
Any immune system dysfunction
Any family history of immune dysfunction
Fevers and Seizures with in 72 hours
THEN they want to study them to see if their encephalopathy might have anything to do with their vaccines. You know, the HEALTHY kids with encephalitis.
So as long as the swelling in your child's brain that was caused by vaccines didn't cause or was not related to any of the above symptoms, CDC wants to get to know your child.
But that pretty much counts our all our kids... now doesn't it.
Never mind.
UPDATE: The day this post went up, the site with the study on it went down. Quite a coincidence.
I check the wayback machine and found that the call out for this study, which can be found here, was posted at the end of 2004. Was it ever undertaken?
Since the study has been there for almost four years, and went down the day that I wrote about it, I am just going to go ahead and assume that the correlation of these two events is likely more than just a temporal association.
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