tag:blogger.com,1999:blog-7771487.post3380904683922013869..comments2024-03-27T15:43:53.969-04:00Comments on Adventures in Autism: Jon Shestack of CAN and Autism Speaks Makes A Personal ResponseGinger Taylorhttp://www.blogger.com/profile/04200286625735078479noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-7771487.post-2191024309119132292007-06-29T23:44:00.000-04:002007-06-29T23:44:00.000-04:00Jon Shetack - your silence is deafening.You said t...Jon Shetack - your silence is deafening.<BR/><BR/>You said that you would continue the conversation by answering Ginger's questions. You claimed that you were a slow typist and would take a couple days to answer.<BR/><BR/>You asked all of us a favor to give you time to answer.<BR/><BR/>Your two days is now two weeks.<BR/><BR/>Nothing from you. Nothing from anyone at AS.<BR/><BR/>This is not about AS - it is about you.Unknownhttps://www.blogger.com/profile/10711702198977876912noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-31517635925922396282007-06-28T01:09:00.000-04:002007-06-28T01:09:00.000-04:00JON we trusted you - we gave you our money. You tu...JON we trusted you - we gave you our money. You turned over $3million of OUR MONEY to Autism Speaks.<BR/><BR/>You owe us.<BR/>==========<BR/><BR/>This is real simple<BR/><BR/>What are the actions Jon!<BR/><BR/>ACTION not a script.<BR/><BR/>Report change.<BR/><BR/>Tell of of what you have done.<BR/><BR/>What were your safeguards when you turned over CAN to AS.<BR/><BR/>Why don't you have any influence.<BR/><BR/>Autism Speaks as an organization is very capable of reorganizing with<BR/>TREATMENT NOW! as a part of what they do.<BR/><BR/>Have parents on the BOD - have officers replaced. Set up a parent<BR/>review of the money spent not scientist that get the money<BR/><BR/>Have KATIE as President. The President Mark Rothmeyer now is primarily<BR/>a money raiser at $400,000 a year - let him raise money not raise hopes.<BR/><BR/>If television ratings go down - people are replaced<BR/><BR/>AS - your ratings are down<BR/><BR/>Bernie NEVER NEVER was fooled by talk<BR/><BR/>He always said - what have they done<BR/><BR/>It has been a month - NOTHING - no follow-up no dialog<BR/><BR/>It is time to be honest with us<BR/><BR/>We gave you money.<BR/><BR/>---------<BR/><BR/>But John - there is no change -<BR/><BR/>Change is easy and speaks volumesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-34714992442770087112007-06-24T12:59:00.000-04:002007-06-24T12:59:00.000-04:00After witnessing the antics of Autism Speaks, read...After witnessing the antics of Autism Speaks, reading their financial statements and knowing some of the self-serving agendas of their board, I decided to distance myself from their "organization". <BR/><BR/>Standing back no longer appears to be enough with AS. I promise from this point on to faithfully tell at least one person every day about the greed agenda under AS's glitsy campaigns for our children. <BR/><BR/>Some of us have "worked" on the front lines for years and I, for one, do not appreciate being pushed aside and having my hard work SINCE THE 1980s being used to further their pitiful greed.<BR/><BR/>To hold up a banner of "helping children with autism" while lining your own pockets is about as low as you can get on the human scumbag scale. I am beyond disgusted by Autism Speaks.<BR/><BR/>Dawn Cortez McKee<BR/>Farmington, NYAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-18588032923629972572007-06-22T09:51:00.000-04:002007-06-22T09:51:00.000-04:00Every day that goes by, AS's silence gets louder a...Every day that goes by, AS's silence gets louder and louder.<BR/><BR/>I want to give Mr. Shestack every chance to respond to us, as he seems to be working in good faith in this exchange that he has started. But I am becoming more and more skeptical that AS itself will begin to do the same. <BR/><BR/>AS has lots and lots of money and lots and lots of time, unlike us. If we can find the time to write about our concerns with the way the organization functions, then they can certainly find the time to answer. <BR/><BR/>And the truth about people is that they find the time to do the thing they really want to do. If they are not answering, it because they don't want to, and they believe that they can get away with not having to.<BR/><BR/>I think that we can be patient with their silence for a time, but I think that your time line is more generous than mine would be.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-83047093836844854132007-06-22T01:54:00.000-04:002007-06-22T01:54:00.000-04:00Maybe all the attention that AS is receiving will ...Maybe all the attention that AS is receiving will wake them up. Hello? Are you listening? <BR/><BR/>I'd say that if we do not see some noticeable changes, or better yet and official announcement, within the next month or two we need to jump ship from AS.Dadof6Autistickidshttps://www.blogger.com/profile/08872142455240124466noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-3895883973574308592007-06-20T00:46:00.000-04:002007-06-20T00:46:00.000-04:00GingerI'd like to respond to your response, but it...Ginger<BR/>I'd like to respond to your response, but it will take me a few days. I'm a terrible typist, and I really have to think about this stuff before I put it on paper. But thanks for posting. I really appreciate it.<BR/><BR/>Jon Shestackjon Shestackhttps://www.blogger.com/profile/03544357515225881698noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-40044459711430804162007-06-20T00:26:00.000-04:002007-06-20T00:26:00.000-04:00Jon,Again, I appreciate you thinking enough of me ...Jon,<BR/><BR/>Again, I appreciate you thinking enough of me to post it here. I don't think leaving it elsewhere in addition diminishes that, because posting this on a blog that has been so critical of AS is a risk. <BR/><BR/>I respect people who take responsible risks.<BR/><BR/>I too want the discussion to take a turn toward peace, but it seems more and more clear that until real action is taken, people who have been burned just are not going to respond to such appeals.<BR/><BR/>But I am a firm believer that one does the right thing no matter what the outcome is. Approaching the opposition in humility and trying to find common ground is always admirable.<BR/><BR/>I will be following up with AS to see if they will offer earnest answers to the questions I have asked. I want to give them ample room to do so.<BR/><BR/>If there is anyone specifically you think I should try to be in touch with to facilitate more open, honest dialog, let me know.<BR/><BR/>GingerGinger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-83473217396873387472007-06-20T00:02:00.000-04:002007-06-20T00:02:00.000-04:00Ginger,I did chose your blog because, though I dis...Ginger,<BR/>I did chose your blog because, though I disagree with a lot of what you say, and think that sometimes you indulge in a dialogue that generates more heat than light, I like the way you write about autism and your son. You are compassionate, but don't whitewash . And I hoped you would treat me as any other activist deseves to be treated, with kindness. <BR/>I did also post on Autism Vox because I read that blog and think the blogger sems smart and fair.<BR/>I also asked unlocking autism to help post, because they are old friends of mine, and frankly I'm not that adept at the medium.<BR/><BR/>Thanks for putting it up on the site. I was really hoping to generate a bit more peace and less strife, but I guess the outcome is out of my control.<BR/>best,<BR/>Jon Shestackjon Shestackhttps://www.blogger.com/profile/03544357515225881698noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-52125970748088566732007-06-19T20:21:00.000-04:002007-06-19T20:21:00.000-04:00I think Ellen S.'s response on John Best's blog (H...I think Ellen S.'s response on John Best's blog (Hating Autism-Fore Sam)regarding Shestack says it perfectly.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-41725758274307943482007-06-19T17:17:00.000-04:002007-06-19T17:17:00.000-04:00Face it---he's as bad as the rest of them at Autis...Face it---he's as bad as the rest of them at Autism Speaks. That's pretty clear. They've all shown their true colors at this point.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-3891241906733963222007-06-19T16:27:00.000-04:002007-06-19T16:27:00.000-04:00I think that he spread the message wider than just...I think that he spread the message wider than just one blog is a good thing.<BR/><BR/>The man called on his own board to examine itself, that is an important public statement. I hope that everyone will hold AS to answering his charge.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-90474626063149696112007-06-19T12:21:00.000-04:002007-06-19T12:21:00.000-04:00The phoniness continues. He just copies the same c...The phoniness continues. He just copies the same comment on this and other people's blogs. He didn't just chose your blog. Why are people giving this organization the time of day?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-5274467637740580232007-06-19T12:13:00.000-04:002007-06-19T12:13:00.000-04:00Don't know if I'd be so honored. He left comments ...Don't know if I'd be so honored. He left comments on another blog as well.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-30991535526902750602007-06-19T12:10:00.000-04:002007-06-19T12:10:00.000-04:00Greetings Ginger---Mr. Shestack kindly left the sa...Greetings Ginger---Mr. Shestack kindly left the same comment on <A HREF="http://www.autismvox.com" REL="nofollow">Autism Vox</A>.kristinahttps://www.blogger.com/profile/01104388229716638534noreply@blogger.com