tag:blogger.com,1999:blog-7771487.post112693996721579407..comments2024-03-27T15:43:53.969-04:00Comments on Adventures in Autism: The AAP Ignores Autism this AnnumGinger Taylorhttp://www.blogger.com/profile/04200286625735078479noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7771487.post-1127023105139267832005-09-18T01:58:00.000-04:002005-09-18T01:58:00.000-04:00See above Update on additional seminars on autism ...See above Update on additional seminars on autism offered by the AAP.<BR/><BR/>Whew. They are not ignoring our kids. Blood pressure dropping.<BR/><BR/>I would really like to see the Bauman lecture, or all of them really, to see how far into the current biomed treatments they will go.<BR/><BR/>These aren't seminars on chelation, but it is enough to let me know they have not dismissed us, so I can go ahead and withdraw the "Hubris" charge.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1127010578167186702005-09-17T22:29:00.000-04:002005-09-17T22:29:00.000-04:00What boggles my mind is not that the AAP chooses t...What boggles my mind is not that the AAP chooses to avoid (ignore?) the question of mercury as a possible cause of or contributor to autism, but the fact that they seem to be <STRONG>ignoring autism altogether</STRONG>. <BR/><BR/>Fine, they don't believe that mercury poisoning is a cause of autism. <STRONG>Something is</STRONG>. With CDC reporting 1 in 166 kids today being autistic I would think they would be at least a little bit interested, as a professional organization, in at least discussing the latest research in cause, identification, and treatment. <BR/><BR/>How can a pediatrician that does not understand the causes and treatments for a disorder, any disorder, provide the proper and appropriate care for a child that suffers from that disorder? How can a pediatrician help identify early symptoms of autism in children so they can give parents a heads up?Bretthttps://www.blogger.com/profile/05692538865185004176noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1126988402928634592005-09-17T16:20:00.000-04:002005-09-17T16:20:00.000-04:00Although our pediatrician is a wonderful person, a...Although our pediatrician is a wonderful person, and seems very knowledgeable on so many issues, her refusal to even take a look at this issue has been frustrating to us. Like most pediatricians with whom my wife speaks on a professional or personal basis (she is a nurse anesthetist and comes into contact with many doctors on a daily basis), our pediatrician doesn't even want to look at anything beyond the official position papar of the AAP. <BR/><BR/>One of the nice things about being in Chicago during our recent Katrina-forced "vacation" was the chance to take our son to his DAN! doc who practices in that area. Despite the distance, we're really starting more and more to think of her, rather than the pediatrician, as our son's doctor.<BR/><BR/>And although Paul Offitt is the only person that I have yet labeled a "shill," I have likened him to neither Hitler nor Beelzebub. In the interest of candor, however, I have on occasion referred to him as "Lord Vader." The problem with Dr. Offitt is not that he holds opinions different from us; the problem is his complete lack of candor. He has made countless television appearances, always speaking in kindly tones about how he really feels sorry for all of the misguided and misinformed parents. Not once has he disclosed that he holds a patent on a thimerosal-containing vaccine, or that he is under contract to an industry group that pays him (how much is anyone's guess) to "educate" physicians and the public on the benefits of vaccination. Oddly enough, the newtowks on which Dr. Offitt appears -- who rely so much on advertising revenue from members of that same industry group -- don't seem to feel it's of any relevance either. <BR/><BR/>No Wrigley, you are wrong. Most of us have spoken to doctors who don't believe the connection or the benefits of biomedical interventions. Indeed, many of us heard of our children's ASD diagnoses from such individuals. I know of nobody who tried to jump down the throats of such doctors. And I would never compare any of those doctors to Paul Offitt. All we are asking is that our pediatricians actually take a real look at a major health issue rather than simply scan what their association is spoon-feeding them.Wade Rankinhttps://www.blogger.com/profile/12986780783735604000noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1126986076581665792005-09-17T15:41:00.000-04:002005-09-17T15:41:00.000-04:00Wrigley,First, the point of the conference is not ...Wrigley,<BR/><BR/>First, the point of the conference is not a PR move to impress parents (clearly as they would have addressed what is currently the most hotly debated children’s disorder, even if only to go over a laundry list of research that is being done, the usual way the establishment tries to appease upset parents). It is to educate their members on what they think is most important topics in medicine today. <BR/><BR/>Autism did not make that list.<BR/><BR/>And, respectfully, you are wrong here. Parents on the whole are not going to jump down the throats of doctors who are actually looking at the information coming to light and being straight with them <BR/><BR/>I met with my own Ped a three weeks ago, and we talked for an hour (he was really generous with his time for me). He was really impressed with Chandler's progress, but when I asked him to look into the idea of telling the parents of his other autistic patients about DAN doctors or even referring to them, he said that the whole discussion was over his head at this point, and that it was hard enough for him to keep up with established western medicine, much less read about alternate treatments. He figured that the AAP was smarter on the subject than he was and he would go by what they recommended. I didn't even mention the AAP. <BR/><BR/>He was really nice and really honest, and despite the fact that he did not budge at all, I really respect him for listening with humility. <BR/><BR/>It told me that the AAP really is the linch pin in getting the word out that biomed treatment even exists. When I read that the AAP is not even talking to docs about autism at all this year, I was totally floored. <BR/><BR/>That is not honest and open. That is hoping that if they just ignore the problem, it will go away. <BR/><BR/>That is hubris.<BR/><BR/>As for Offit being evil, I have not mentioned Paul Offit here except to mention that his opinions should be judged on their merit as any other doctor in the debate or that congress found him in violation of ethics in the RotoShield investigation.<BR/><BR/>Neither ranked him up there with Hitler.<BR/><BR/>I understand that some parents do think that he is Hitler, but I am not here to defend any one else’s Hitler analogies. I only defend my own statements.<BR/><BR/>Also the only person I think is Hitler was Hitler. So enough with the Hitler comparisons already.<BR/><BR/>I will be writing about some really bizarre statements Offit put out in regard to vaccine safety, specifically that he believes that research indicates that children can safely receive 100,000 vaccinations in one sitting safely.<BR/><BR/>I wrote him to confirm that he was not misquoted, and he replied that he was not and that the 100,000 number was a conservative number. All I can think when I hear that kind of stuff is that he doesn’t even take vaccine safety concerns seriously.<BR/><BR/>That is hubris if I have ever heard it.<BR/><BR/>The AAP ignoring what could be the biggest iatrogenic disease in history is also hubris. <BR/><BR/>Bottom line for me, there is a proverb that says, "out of the abundance of the heart, the mouth speaks".<BR/><BR/>The fact that the AAP is not addressing causes or treatments of autism, especially now when new studies on what it is and how it might be treated are coming out weekly now, as the entire discussion is coming to a head, let's me know that they really don't want to talk about autism. <BR/><BR/>How in the world could I get the message that the American Association of Pediatrics cares about my son's medical condition?Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1126977312191132282005-09-17T13:15:00.000-04:002005-09-17T13:15:00.000-04:00whut wrigley sedwhut wrigley sedAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1126942712040687982005-09-17T03:38:00.000-04:002005-09-17T03:38:00.000-04:00Not so much hubris. More like they know they can'...Not so much hubris. More like they know they can't win. <BR/> Unless they ask <B>Mom's against mercur</B> or <B>No mercury</B> or <B>Mercury is Evil</B> to type up a statement that they will read unquestioningly, they'll have a hundred screaming angry parents trying to jump down their throats.<BR/><BR/>Tell me I'm wrong here. You already have Paul Offitt ranked up there with Hitler and Beelzebub. Who else is going to be anxious to join him?Anonymousnoreply@blogger.com