FOR IMMEDIATE RELEASE: June 28, 2009
CONTACT: .
Jon Houston, Maloney, (202) 225-7944
Jeff Sagnip, Smith, (202) 225-3765
Legislation Introduced to Require First Comparative
Study of Vaccinated vs. Unvaccinated Populations
WASHINGTON, DC – Reps. Carolyn Maloney (D-NY) and Christopher Smith (R-NJ) have introduced the “Comprehensive Comparative Study of Vaccinated and Unvaccinated Populations Act of 2009,” HR 3069, legislation that would require the Secretary of Health and Human Services to conduct a comprehensive, peer-reviewed, comparative study of vaccinated and unvaccinated populations, which has never before been completed.
“Vaccines have been instrumental in reducing the incidence of many once-common diseases, but we owe it to parents and children to study and resolve the questions that have arisen over the possible link between vaccines and neurological disorders,” said Maloney. “What is ultimately needed to resolve this issue is a comprehensive national study comparing outcomes between vaccinated and unvaccinated children. As the most scientifically advanced country in the world, we should be jumping at the chance to resolve the questions that have been raised. Parents deserve answers, and children deserve no less than absolute certainty and safety.”
“Vaccines have been a truly revolutionary contribution to global public health that I have strongly supported. At the same time, it would be unconscionable if we did not fully investigate every aspect of vaccine safety, including varying vaccines schedules, to ensure that individuals were not being exposed to unnecessary risks,” said Smith. “This study would explore critical questions about our children’s health. Only a comprehensive, national examination of data that contrasts vaccinated children to unvaccinated children will answer some of the questions many if not all parents have about the safety of the vaccines we give our children. Congresswoman Maloney and I feel strongly that this will add greatly to the body of knowledge for the healthcare community and the public.”
Other original cosponsors of the bill include Rep. Bart Gordon (D-TN), Chair of the House Science and Technology Committee, and Reps. Dan Burton (R-IN), Patrick Kennedy (D-RI), Jim Langevin (D-RI), Virginia Brown-Waite (R-FL), and Grace Napolitano (D-CA).
Background: Maloney and Smith have also introduced legislation (H.R. 2618) that would improve the current system for vaccine safety monitoring in this country by assigning responsibility for the nation’s vaccine safety to an independent agency within the Department of Health and Human Services; and another (H.R. 2617) that puts in statute definite timelines for the elimination of mercury from vaccines.
Maloney introduced similar legislation in the 110th Congress. Click here for more information.
News and commentary on the autism epidemic and my beautiful boy who is living with autism.
June 29, 2009
Maloney Vaxxed v. Unvaxxed Study Reintroduced
Call your representative and ask for support for HR 3069.
June 23, 2009
June 11, 2009
New Report Forecasts More Than Doubling of Vaccine Sales by 2013
Market Watch brings you, the health care consumer investor, news that vaccines are booming and expected to boom bigger.
Take a minute to read the report to get a sense of how important yourhealth money is to PHARMA.
Vaccines are a 19.2 Billion dollar a year business. I am sure that with that kind of cash at play that the medical establishment is not at all biased as to vaccine safety.
I don't wanna hear that vaccines are not a money making venture any more.
Gotta run now and go get me some "Tota Teq".
2008 was another stellar year for the world vaccine market. Sales grew 21.5% since 2007 to reach $19.2 billion. Few areas of pharmaceuticals have seen the fast-moving developments in the marketplace that the vaccine market has...
"New products and better-than-expected profits, as well as merger activity, have transformed the vaccine marketplace," says Bruce Carlson, publisher of Kalorama Information. "Continued sales of influenza and cervical cancer vaccines have provided a foundation for growth in the adult market. Meanwhile, the pediatric market was fueled by several major products including Wyeth's pneumococcal vaccines Prevnar and Merck's new rotavirus vaccine TotaTeq."
Take a minute to read the report to get a sense of how important your
Vaccines are a 19.2 Billion dollar a year business. I am sure that with that kind of cash at play that the medical establishment is not at all biased as to vaccine safety.
I don't wanna hear that vaccines are not a money making venture any more.
Gotta run now and go get me some "Tota Teq".
June 9, 2009
ABC's Claire Shipman on the Oprah Newsweek Story
She has a must read on this story on the Huffington Post. A story that seems to have quite some legs.
Must read.
"Last year we at ABC news ran a series on autism, and new methods being used to diagnose it which are--to say the least--controversial. The medical community and established autism community tried hard to get us to kill the report..."
Must read.
June 7, 2009
How Allopathic Medicine is Shooting Itself in the Foot by Attacking Oprah
The health zeitgeist is changing rapidly in this country, and many in the mainstream medial community have not noticed.
Health care has become expensive, it is not able to address many of the complaints that patients have, when it can, side effects can be serious. Most importantly, mainstream medicine can't explain why everyone in this country is so sick.
But the wellness movement can.
It has said that we are overfed and undernourished, over medicated and in poor health, and that we are toxic. That we don't need another pharmaceutical to fix the problem, we need to go back to the symbiotic relationship we had with the planet we grew up on, and only introduce hard core chemicals into our bodies when absolutely necessary.
And guess what... people everywhere are finding out that they are right! When they stop eating processed foods and drinking diet soda, when they go organic and non GMO, when they get rid of gluten and artificial sweeteners, and start taking vitamins, they feel better and can often go off pharmaceuticals on which they have been dependent.
And really, this is what Allopathic medicine has been telling us to do for years. To exercise and eat right and take responsibility for our own health.
But now that we are doing it, they are not so happy.
Because many of them don't like the conclusions that we come to when we really and truly take responsibility for our own health.
So unfortunately, instead of being excited that Americans are doing what they have always told us to do, and partnering with them to learn from the masses what the masses are learning and experiencing and thinking and believing and implementing in regards to keeping themselves out of doctors offices, they have chosen to actually mock them.
Oprah, who is the bell weather of what is going on in the mind of the American Housewife as much as she is an influence on said demographic, is being attacked on the cover of Newsweek for allowing guests to present health opinions that are alternative or complementary to allopathic medicine.
They actually entitled the piece, "Crazy Talk: Oprah, Wacky Cures & You."
Have those who have decided to mock not noticed that "wacky cures" are going mainstream? Have they not noticed that the reason that they are going mainstream is because they work, and work quite sensibly? Do they not realize that they are making fun of a good section of their clientele who is now going to the health food store to try to correct problems before going to the Doc?
This fascinating article today out of Baltimore about the voodoo that is going on in hospitals like the shock trauma center at the University of Maryland Medical Center.
I have already told you about the Maine CDC autism conference for the states medical professionals introducing them to GI distress, dietary intervention and toxic and vaccine triggers for autism.
Clearly, a growing number in mainstream medicine are willing to go where the evidence is leading them and like their layman counterparts, embrace what is working despite the fact that it goes against their traditional sensibilities.
But too many are just making fun of the entire movement, and trying to prevent the slide away from their practices by body checking Oprah.
Those that choose that course are going to run into a few problems.
First off, Big Beef already went after Oprah, guns blazing, and lost big time. So the woman has already proven that she is up for a fight and won't be bullied into altering her course if she believes it is the right one.
Second, they underestimate Oprah's audience's loyalty to Oprah. They know her and have known her for decades. They have gotten a lot of good things from her, and even those who are not Oprah worshipers, don't think she is a nut. Those who watch her, and who hasn't during some portion of their lives, are not going to be convinced by Newsweek that she is dangerous.
Third, their attack just comes across as elitist. "You are not smart enough to know what is good for you, only we know what is good for you." If that approach worked then "The Doctors" would be trouncing Oprah in the ratings.
Fourth, while they are pushing the treatment of symptoms, Oprah is giving air time to people that are exploring correcting the metabolic problems that caused the symptoms so that they can be prevented and won't come back. THAT should be their job. She is scooping MM because they are so married to their pharmaceuticals.
Lastly, their best arguement is disingenuous and quite obviously so. It is the same one that "THEY" are making to discourage biomedical treatment for kids with autism. It is the arguement that "these interventions have not been adequately tested".
In many cases, if not most, natural remedies have not been tested to the same rigors as some pharmaceuticals. But the reason that this arguement does not resonate with those beginning to implement wellness practices is that doctors making these complaints are not running out and testing vitamin D and Fish Oil. They are not calling for good studies into who is helped by a gluten free diet and why.
Out of the abundance of the heart, the mouth speaks, and if Oprah's critics truly cared about the safety and efficacy of these treatments, they would be calling for increasing the budgets for CAM (Complementary and Alternative Medicine) research, and partnering with CAM practitioners to do it. I mean theoretically they would want people to be healthier and medical care to be cheaper, right?
But then again, Big Cinnamon doesn't throw lavish dinners for doctors and the Tumeric industry does not give away diamond earrings. (See how cynical I can get about disingenuous doctors? It is not like I am the only one who was all rah rah mainstream medicine, got royally screwed by them, and then started taking into consideration all that has corrupted it... I might have been the exception five years ago, but I might be becoming the rule.)
The other problem with your "not enough research" arguement, is that some of these "crazy cures" have been used by cultures for thousands of years before anyone put the scientific method down on paper. If they believe that doctors are earnest and want people to get better, then that must have been true before the industrial revolution, and while not as refined as research today, they had to have had some basis for treatments that lasted hundreds and even thousands of years.
Health crazes come and go, but garlic is forever.
So advice to the Oprah haters, consider that she is not the cause of your problems, she is the result. Oprah is listing to American women, you are not.
Mocking your opponent does not add to your credibility or make people trust you. It makes people suspicious that you are out of arguments and have turned to bullying to keep people in your corner.
ADDENDUIM: Heard from a doc tonight who took exception with my post, a doctor whom I consider one of the ones who IS listening and not one who is stuck in rusty paradigms. I wrote this post quickly and wanted to go back and make sure I was clear on exactly to whom my criticisms are directed.
They are directed to those in mainstream medicine who OPENLY MOCK complementary and alternative medicine.
I do not include in this doctors who are listening and open and respectfully disagree with one CAM treatment or another. On the contrary, they are an important part of the fruitful debate from which good treatment emerges. I don't think physicians in that position need to make fun of others because if they have thoughtfully considered and rejected any given approach, then they have a cogent arguement to make and there is no need to belittle others.
I sense that he also may have been concerned that I may have been promoting Suzanne Summers treatments in some way. Frankly, I don't know a single thing about what she is practicing, and didn't know that she had anything to do with health and wellness until the Newsweek article came out. In my ignorance I will leave others to debate the merits and pitfalls of whatever it is she is espousing.
UPDATE: Jake Crosby takes the failing Newsweek Magazine to task.
UPDATE: Newsweek fails. Sold for one dollar.
Health care has become expensive, it is not able to address many of the complaints that patients have, when it can, side effects can be serious. Most importantly, mainstream medicine can't explain why everyone in this country is so sick.
But the wellness movement can.
It has said that we are overfed and undernourished, over medicated and in poor health, and that we are toxic. That we don't need another pharmaceutical to fix the problem, we need to go back to the symbiotic relationship we had with the planet we grew up on, and only introduce hard core chemicals into our bodies when absolutely necessary.
And guess what... people everywhere are finding out that they are right! When they stop eating processed foods and drinking diet soda, when they go organic and non GMO, when they get rid of gluten and artificial sweeteners, and start taking vitamins, they feel better and can often go off pharmaceuticals on which they have been dependent.
And really, this is what Allopathic medicine has been telling us to do for years. To exercise and eat right and take responsibility for our own health.
But now that we are doing it, they are not so happy.
Because many of them don't like the conclusions that we come to when we really and truly take responsibility for our own health.
So unfortunately, instead of being excited that Americans are doing what they have always told us to do, and partnering with them to learn from the masses what the masses are learning and experiencing and thinking and believing and implementing in regards to keeping themselves out of doctors offices, they have chosen to actually mock them.
Oprah, who is the bell weather of what is going on in the mind of the American Housewife as much as she is an influence on said demographic, is being attacked on the cover of Newsweek for allowing guests to present health opinions that are alternative or complementary to allopathic medicine.
They actually entitled the piece, "Crazy Talk: Oprah, Wacky Cures & You."
Have those who have decided to mock not noticed that "wacky cures" are going mainstream? Have they not noticed that the reason that they are going mainstream is because they work, and work quite sensibly? Do they not realize that they are making fun of a good section of their clientele who is now going to the health food store to try to correct problems before going to the Doc?
This fascinating article today out of Baltimore about the voodoo that is going on in hospitals like the shock trauma center at the University of Maryland Medical Center.
I have already told you about the Maine CDC autism conference for the states medical professionals introducing them to GI distress, dietary intervention and toxic and vaccine triggers for autism.
Clearly, a growing number in mainstream medicine are willing to go where the evidence is leading them and like their layman counterparts, embrace what is working despite the fact that it goes against their traditional sensibilities.
But too many are just making fun of the entire movement, and trying to prevent the slide away from their practices by body checking Oprah.
Those that choose that course are going to run into a few problems.
First off, Big Beef already went after Oprah, guns blazing, and lost big time. So the woman has already proven that she is up for a fight and won't be bullied into altering her course if she believes it is the right one.
Second, they underestimate Oprah's audience's loyalty to Oprah. They know her and have known her for decades. They have gotten a lot of good things from her, and even those who are not Oprah worshipers, don't think she is a nut. Those who watch her, and who hasn't during some portion of their lives, are not going to be convinced by Newsweek that she is dangerous.
Third, their attack just comes across as elitist. "You are not smart enough to know what is good for you, only we know what is good for you." If that approach worked then "The Doctors" would be trouncing Oprah in the ratings.
Fourth, while they are pushing the treatment of symptoms, Oprah is giving air time to people that are exploring correcting the metabolic problems that caused the symptoms so that they can be prevented and won't come back. THAT should be their job. She is scooping MM because they are so married to their pharmaceuticals.
Lastly, their best arguement is disingenuous and quite obviously so. It is the same one that "THEY" are making to discourage biomedical treatment for kids with autism. It is the arguement that "these interventions have not been adequately tested".
In many cases, if not most, natural remedies have not been tested to the same rigors as some pharmaceuticals. But the reason that this arguement does not resonate with those beginning to implement wellness practices is that doctors making these complaints are not running out and testing vitamin D and Fish Oil. They are not calling for good studies into who is helped by a gluten free diet and why.
Out of the abundance of the heart, the mouth speaks, and if Oprah's critics truly cared about the safety and efficacy of these treatments, they would be calling for increasing the budgets for CAM (Complementary and Alternative Medicine) research, and partnering with CAM practitioners to do it. I mean theoretically they would want people to be healthier and medical care to be cheaper, right?
But then again, Big Cinnamon doesn't throw lavish dinners for doctors and the Tumeric industry does not give away diamond earrings. (See how cynical I can get about disingenuous doctors? It is not like I am the only one who was all rah rah mainstream medicine, got royally screwed by them, and then started taking into consideration all that has corrupted it... I might have been the exception five years ago, but I might be becoming the rule.)
The other problem with your "not enough research" arguement, is that some of these "crazy cures" have been used by cultures for thousands of years before anyone put the scientific method down on paper. If they believe that doctors are earnest and want people to get better, then that must have been true before the industrial revolution, and while not as refined as research today, they had to have had some basis for treatments that lasted hundreds and even thousands of years.
Health crazes come and go, but garlic is forever.
So advice to the Oprah haters, consider that she is not the cause of your problems, she is the result. Oprah is listing to American women, you are not.
Mocking your opponent does not add to your credibility or make people trust you. It makes people suspicious that you are out of arguments and have turned to bullying to keep people in your corner.
ADDENDUIM: Heard from a doc tonight who took exception with my post, a doctor whom I consider one of the ones who IS listening and not one who is stuck in rusty paradigms. I wrote this post quickly and wanted to go back and make sure I was clear on exactly to whom my criticisms are directed.
They are directed to those in mainstream medicine who OPENLY MOCK complementary and alternative medicine.
I do not include in this doctors who are listening and open and respectfully disagree with one CAM treatment or another. On the contrary, they are an important part of the fruitful debate from which good treatment emerges. I don't think physicians in that position need to make fun of others because if they have thoughtfully considered and rejected any given approach, then they have a cogent arguement to make and there is no need to belittle others.
I sense that he also may have been concerned that I may have been promoting Suzanne Summers treatments in some way. Frankly, I don't know a single thing about what she is practicing, and didn't know that she had anything to do with health and wellness until the Newsweek article came out. In my ignorance I will leave others to debate the merits and pitfalls of whatever it is she is espousing.
UPDATE: Jake Crosby takes the failing Newsweek Magazine to task.
UPDATE: Newsweek fails. Sold for one dollar.
May 28, 2009
May 27, 2009
Contradictory Rulings in the Vaccine Court
[An alternate version of this piece was written in response to an article in Utah Stories.]
Many have cited three cases in which The Health and Human Service's vaccine court ruled out vaccines as a cause of a child's autism, but don't mention the 10 cases (discovered by CBS News) that were won in that court by children with autism.
Three of those 10 families have gone public, The Polings, The Banks and The Hiatts.
The Poling case is the only one that received mainstream media coverage.
Only ten days after we heard that the court said MMR doesn't cause autism, we heard that the same court said that MMR caused Baily Banks autism.
Shouldn't we be shouting a collective, "WHAT?!" to The Department of Health and Human Services for their contradictory positions?
Here is the thing, when the Department of Health and Human Services puts the Department of Health and Human Services on trial, and the Department of Health and Human Services wins, that is not news. When they put themselves on trial and loose, as in the Poling, Banks and Hiatt cases THAT IS NEWS!
THOSE are the cases we should be demanding answers from the government on.
The Poling family has requested that their daughters case files can be made public so everyone can know the reasoning behind HHS's decision, but HHS isn't sharing any of their insight into WHY Hanna deservesa million 20 million bucks for her vaccine injury.
So let's not boil this debate down to scientist v. tv stars. There are MANY in the scientific and public health community who believe that vaccines are involved in the autism epidemic.
And apparently HHS itself does too because it keeps paying claims for autistic kids.
Please take a moment and check out the VICP's vaccine injury table for yourself. You will note that "encephalopathy" is listed as a compensated injury for DTaP and MMR.
Then scroll down to the middle of the page and look at the symptoms of encephalopathy for 18 month olds:
1. Loss of eye contact
2. Unresponsive to stimuli except for loud shouts
3. Seems disconnected from the world around him
THAT is a description of a child with "autism".
THAT was a description of MY son after his DTaP shot for which he was diagnosed with "autism".
The government has ruled that vaccines do and do not cause autism. Are You ok with that solid, definitive, case closed argument?
I REALLY hope not.
It is time for HHS to make the Poling documents public, and to answer to the public for their untenable, illogical position.
Many have cited three cases in which The Health and Human Service's vaccine court ruled out vaccines as a cause of a child's autism, but don't mention the 10 cases (discovered by CBS News) that were won in that court by children with autism.
Three of those 10 families have gone public, The Polings, The Banks and The Hiatts.
The Poling case is the only one that received mainstream media coverage.
Only ten days after we heard that the court said MMR doesn't cause autism, we heard that the same court said that MMR caused Baily Banks autism.
"In his conclusion, Special Master Abell wrote:
The Court found that Bailey's ADEM was both caused-in-fact and proximately caused by his vaccination. It is well-understood that the vaccination at issue can cause ADEM, and the Court found, based upon a full reading and hearing of the pertinent facts in this case, that it did actually cause the ADEM. Furthermore, Bailey's ADEM was severe enough to cause lasting, residual damage, and retarded his developmental progress, which fits under the generalized heading of Pervasive Developmental Delay, or PDD. The Court found that Bailey would not have suffered this delay but for the administration of the MMR vaccine, and that this chain of causation was not too remote, but was rather a proximate sequence of cause and effect leading inexorably from vaccination to Pervasive Developmental Delay.
And he added this:
Petitioner's theory of PDD caused by vaccine-related ADEM causally connects the vaccination and the ultimate injury, and does so by explaining a logical sequence of cause and effect showing that the vaccination was the ultimate reason for the injury.
Shouldn't we be shouting a collective, "WHAT?!" to The Department of Health and Human Services for their contradictory positions?
Here is the thing, when the Department of Health and Human Services puts the Department of Health and Human Services on trial, and the Department of Health and Human Services wins, that is not news. When they put themselves on trial and loose, as in the Poling, Banks and Hiatt cases THAT IS NEWS!
THOSE are the cases we should be demanding answers from the government on.
The Poling family has requested that their daughters case files can be made public so everyone can know the reasoning behind HHS's decision, but HHS isn't sharing any of their insight into WHY Hanna deserves
So let's not boil this debate down to scientist v. tv stars. There are MANY in the scientific and public health community who believe that vaccines are involved in the autism epidemic.
And apparently HHS itself does too because it keeps paying claims for autistic kids.
Please take a moment and check out the VICP's vaccine injury table for yourself. You will note that "encephalopathy" is listed as a compensated injury for DTaP and MMR.
Then scroll down to the middle of the page and look at the symptoms of encephalopathy for 18 month olds:
1. Loss of eye contact
2. Unresponsive to stimuli except for loud shouts
3. Seems disconnected from the world around him
THAT is a description of a child with "autism".
THAT was a description of MY son after his DTaP shot for which he was diagnosed with "autism".
The government has ruled that vaccines do and do not cause autism. Are You ok with that solid, definitive, case closed argument?
I REALLY hope not.
It is time for HHS to make the Poling documents public, and to answer to the public for their untenable, illogical position.
May 26, 2009
Low Dose Naltrexone and ALA Being Used For Cancer and MS
Mercola is highlighting interviews with Dr. Burton M. Berkson who has been successfully using LDN and ALA on terminal cancer patients, around half of which are surviving.
"However, more recently, researchers have discovered that at very low dosages (3 to 4.5 mg), naltrexone has immunomodulating properties that may be able to successfully treat cancer malignancies, and a wide range of autoimmune diseases like rheumatoid arthritis, multiple sclerosis (MS), Parkinson’s, fibromyalgia, and Crohn’s disease, just to name a few.
Added benefits include its low-cost, and few, if any, of the detrimental side effects you normally experience with pharmaceutical drugs.
[also being used for:]
* Hepatitis C
* Diabetic neuropathies
* Lupus
* Dermatomyositis (an inflammatory muscle disease)
* Ulcerative colitis
* Other autoimmune diseases"
May 25, 2009
Memorial Day: C. Chandler Perine

Marine Corps 1st Lt. C. Chandler Perine was my uncle and he loved me.
He died in the service of his country on November 15, 1970 at the age of 26 when the plane he was piloting suffered mechanical failure during take off from McGuire AFB, New Jersey
Chan, my father's younger brother, served as a helicopter pilot in Vietnam, a football player in college and "class flirt" in high school.
He is dearly missed.
My youngest son, Chandler Perine Taylor, is named in honor of him.
May 19, 2009
CDC Admits Autism is Environmental
I missed writing about many stories this year, but wanted to call this to your attention to this story from February, as it represents a paradigm shift in CDC's autism causation stance.
From Age of Autism:
From Age of Autism:
Las Vegas Sun Reports: CDC Admits Autism is Environmental
Las Vegas sun Managing Editor's Note: Thank you to Marshall Allen of the Las Vegas Sun for this article in which Dr. Catherine Rice, Director of the CDC's National Center for Birth Defects states that vaccines and other environmental insults are possible causes of autism. I think the genetics only crowd and vaccine deniers' luck is running out, don't you? Please click HERE to read the full article at the Las Vegas Sun. You can thank Mr. Allen for running this article HERE. Please do. Kim
So are there more autistic children, or is the broadening definition causing more children to be classified as autistic?
It’s impossible to say for sure, Rice said. Awareness of autism is increasing, which leads to more effective identification, but it’s also possible that it’s increasing. Even with the more inclusive definition, the number of autistic children seems to be on the rise, Rice said.
It’s not known what causes autism.
Researchers say environmental factors could contribute to the onset of the disorders. Studies have linked autism to air pollutants, pesticides, pet medications and even drugs used in the birthing process, such as Pitosin, Rice said.
“It could be anything from the exposures in our physical surroundings — chemicals around us in homes, clothes, products, medications we take and food we eat,” Rice said.
Rice said the recognition that environmental factors play a role in causing autism shows that there is common ground in the debate about whether vaccines play a role in the disorders.
May 18, 2009
Ashley's Day
One year ago today we lost Ashley.
Her mother Michele has asked that we honor her memory today by doing the things that Ashley loved best.
Her mother Michele has asked that we honor her memory today by doing the things that Ashley loved best.
In Loving Memory - Ashley Brock
Thursday, May 14, 2009
As most of you are aware, I have been struggling for the past year with the death of my sweet daughter, Ashley. With the first anniversary of her death rapidly approaching on May 18th, I have been frantically searching for the most meaningful way to commemorate the occasion. Initially, the plan was to go to Maine because this is where I feel closest to her and where Ashley developed her skills and captivating personality. Unfortunately, circumstances did not cooperate. So, I was faced with the challenge of developing an alternative plan. Did I just give up and try to disappear and pretend the day didn’t exist? No, that would be disgracing her honor and everything she stood for. What could possibly be extraordinary enough to capture her essence? Initially, every suggestion seemed so trivial. So, I embarked on a journey that led me down memory lane to develop a plan to “celebrate” Ashley. Then, I realized the answer really was very simple.
Ashley taught me to enjoy the simple pleasures in life. She was passionate about so many things and truly lived each and every moment to the fullest, without any regard for others’ opinions. Therefore, the best way for me to survive May 18th was to embrace everything that Ashley was enthusiastic about and perform them with her zest for life. It would mean a lot to us, if you would do the same. For one day, put the house work, the TV and the daily distractions aside and spend time with your kids, nieces, nephews, students, neighbors and other family/community members doing the things that Ashley enjoyed. Get back to what is truly important and what’s right in our world – the children, our future.
You will have quite an extensive list of activities to choose from, as Ashley’s passions were many. She was a very active child who loved the outdoors, particularly the beach or the park. Ashley loved bike riding, basketball, bubbles, swinging, painting, reading and singing. Her favorite color was red and you often saw her wearing a fire helmet and carrying cards. She loved Baby Einstein, Mozart, tickles, dictionaries, umbrellas, dogs, balls, trains, red wagons, and balloons! Her favorite outings were to the zoo, water park, circus, aquarium and fire station. Take advantage of this day to do something that Ashley would have enjoyed and to remember all that is still good in the world.
According to Alexis, we are going to have a full agenda of going to the indoor water park and zoo, blowing bubbles, bike riding, singing “You Are My Sunshine” and releasing red balloons with our personal messages of how Ashley has improved our life. I am not sure that I am truly up for all the festivities, but I am determined to provide Alexis with stability and positive memories of her loving sister of whom she misses immensely. Please feel free to share anything special you do in Ashley’s honor. It does my heart good to know that she is remembered and valued for the truly unique individual that she was.
I would like to thank those of you who have stood by my family in this most difficult time in spite of our erratic behavior. Words cannot adequately convey the range of emotions that we have experienced – anger, despair, disbelief, depression and so forth. I know that it is often difficult to know what to say or do to support us and unfortunately, there is no perfect answer. Frankly, when it comes to grief it is often easier to indicate what NOT to do or say. Well intentioned people often feel like they need to say SOMETHING, when perhaps a hug is the best approach. Over the past year, I developed a list of “What Not To Do”. It was meant to be therapeutic, so don’t over analyze. Hopefully, it will put everyone at ease and let them know the best way to approach grieving parents.
1) Don’t avoid talking about Ashley. Sure I may get sad sometimes, but it makes me feel good that people remember her and how special she really was. I NEED to feel like she had a purpose and that my family is not the only people that miss her.
2) Don’t assume my life is easier now. This was perhaps the most shocking and infuriating thing that occurred after her death. I actually received letters inferring that I would now get some much needed rest and peace. While my life with Ashley was challenging because of her disability, I can tell you that life without her is far more empty and less meaningful. She brought laughter, purpose and unconditional love to my life.
3) Please do not indicate that she is now in a better place. While people’s intentions may be good, by doing this, they diminish everything we sacrificed to make her life the best it could possibly be. I will always be so proud of how hard she worked to learn even the simplest of tasks that both you and I take for granted. While I can only hope that heaven is as magnificent as described, I know that our home was a much better place because she was in it.
4) Don’t tell us that time heals all wounds or that things will get better in time. How can life be BETTER when I no longer have my daughter? It defies the natural order to life. Parents are not supposed to bury their children. This is a situation that cannot be fixed. We are forever altered as individuals and as a family. However, we are frantically searching for “our new normal” because life as we knew it will never be the same. I realize that this makes many individuals uncomfortable, but that is not the intent. It is simply a fact. While the “old Michele” may have disappeared, the goal is for a “new Michele” to eventually emerge with a resilience that will help Alexis realize her full potential.
5) Don’t avoid us or not invite us to activities because you assume we won’t be up for it. If you are uncomfortable or don’t know what to say or do, it is certainly understandable. You also may be correct that we either can’t or are not interested in going out; however, inviting us let’s us know that you are thinking of us and will be there for us when we emerge from our fog. Sometimes the very best support for someone who is grief stricken is simply letting them know you are thinking about them and that you care or an act of kindness. Keep it simple. More is less, so to speak.
I yearn to be able to turn back time. I have replayed the tragic day in my head more times than I can count. The what ifs are endless. I prayed to God to let it be me and not my sweet, innocent child. Obviously, that was not the plan. As I struggle to find new meaning in life, I know I do not say or show it often enough, but your support is valued and crucial to my survival. On this day, I swear to you that I WILL find a way to make Ashley’s death not be in vain and to prevent similar tragedies from occurring. If we can spare even one family from having to endure the pain we have suffered, then we may find some solace.
I beg of you to learn from all that Ashley had to teach us:
• Be tolerant and compassionate to those that are different by attempting to see the world through their eyes, for they are wise beyond their years.
• Live life with no regrets by seizing every opportunity to enjoy even the simplest of things and by following your passions.
• Focus on the present and the activity at hand instead of being consumed by the future and outside distractions.
• Love unconditionally and don’t be afraid to let others know how you feel.
• Finally and perhaps most importantly, as you are faced with challenges, remember, if there is a will, there is a way.
Rest in peace, my sweet Ashley. You have made me a better person and for that I am eternally grateful. I love you - Mommy
May 17, 2009
Hyperbaric Treatment for Children With Autism
Conclusion: "Children with autism who received hyperbaric treatment at 1.3 atm and 24% oxygen for 40 hourly sessions had significant improvements in overall functioning, receptive language, social interaction, eye contact, and sensory/cognitive awareness compared to children who received slightly pressurized room air."
Hyperbaric treatment for children with autism: a multicenter, randomized, double-blind, controlled trial
Daniel A Rossignol1 email, Lanier W Rossignol1 email, Scott Smith1 email, Cindy Schneider2 email, Sally Logerquist2 email, Anju Usman3 email, Jim Neubrander4 email, Eric M Madren5 email, Gregg Hintz6 email, Barry Grushkin7 email and Elizabeth A Mumper8 email
1International Child Development Resource Center, Melbourne, FL, USA
2Center for Autism Research and Education, Phoenix, AZ, USA
3True Health Medical Center, Naperville, IL, USA
4Edison, NJ, USA
5Princess Anne Medical Associates, Virginia Beach, VA, USA
6Therapeutic Pathways, East Troy, WI, USA
7Biognosys, Nanuet, NY, USA
8Rimland Center, Lynchburg, VA, USA
BMC Pediatrics 2009, 9:21doi:10.1186/1471-2431-9-21
Published: 13 March 2009
Abstract
Background
Several uncontrolled studies of hyperbaric treatment in children with autism have reported clinical improvements; however, this treatment has not been evaluated to date with a controlled study. We performed a multicenter, randomized, double-blind, controlled trial to assess the efficacy of hyperbaric treatment in children with autism.
Methods
62 children with autism recruited from 6 centers, ages 2–7 years (mean 4.92 ± 1.21), were randomly assigned to 40 hourly treatments of either hyperbaric treatment at 1.3 atmosphere (atm) and 24% oxygen ("treatment group", n = 33) or slightly pressurized room air at 1.03 atm and 21% oxygen ("control group", n = 29). Outcome measures included Clinical Global Impression (CGI) scale, Aberrant Behavior Checklist (ABC), and Autism Treatment Evaluation Checklist (ATEC).
Results
After 40 sessions, mean physician CGI scores significantly improved in the treatment group compared to controls in overall functioning (p = 0.0008), receptive language (p < 0.0001), social interaction (p = 0.0473), and eye contact (p = 0.0102); 9/30 children (30%) in the treatment group were rated as "very much improved" or "much improved" compared to 2/26 (8%) of controls (p = 0.0471); 24/30 (80%) in the treatment group improved compared to 10/26 (38%) of controls (p = 0.0024). Mean parental CGI scores significantly improved in the treatment group compared to controls in overall functioning (p = 0.0336), receptive language (p = 0.0168), and eye contact (p = 0.0322). On the ABC, significant improvements were observed in the treatment group in total score, irritability, stereotypy, hyperactivity, and speech (p < 0.03 for each), but not in the control group. In the treatment group compared to the control group, mean changes on the ABC total score and subscales were similar except a greater number of children improved in irritability (p = 0.0311). On the ATEC, sensory/cognitive awareness significantly improved (p = 0.0367) in the treatment group compared to the control group. Post-hoc analysis indicated that children over age 5 and children with lower initial autism severity had the most robust improvements. Hyperbaric treatment was safe and well-tolerated. Conclusion Children with autism who received hyperbaric treatment at 1.3 atm and 24% oxygen for 40 hourly sessions had significant improvements in overall functioning, receptive language, social interaction, eye contact, and sensory/cognitive awareness compared to children who received slightly pressurized room air. Trial Registration clinicaltrials.gov NCT00335790
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