tag:blogger.com,1999:blog-7771487.post3134054087133460180..comments2024-03-27T15:43:53.969-04:00Comments on Adventures in Autism: Pervasive Developmental Disorder – Almost SpecifiedGinger Taylorhttp://www.blogger.com/profile/04200286625735078479noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-7771487.post-30536104713628053112008-05-01T17:22:00.001-04:002008-05-01T17:22:00.001-04:00This comment has been removed by the author.Wendy Caraballo Cruzhttps://www.blogger.com/profile/03634278899198336596noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-54327449431902460822008-05-01T17:22:00.000-04:002008-05-01T17:22:00.000-04:00Hi I just came across your blog and plan to read i...Hi I just came across your blog and plan to read it often. I have a little boy who is 32 months old that showed signs of Autism starting at 9 months old. It was painfully obvious by 14 months :( <BR/><BR/>But we started interventions around 12 months(VB, ST, diet, stopped giving him shots) He has been doing so amazing in the last 8months that we think he can handle entering a typical pre-school this fall without support! language, no problem, play, no problem, attention, checked! referencing, imitating: learning by looking at others, checked, checked, checked!<BR/>Ofcourse, there are still some subtle lingering stuff at this point (he is still so young!) but boy do I get you on you being the only one to pick them out.<BR/><BR/>He has long Auburn hair and the picture of your son just really reached out to me. You are right, he is one beautiful little guy! <BR/><BR/>Congratulations on your news.Wendy Caraballo Cruzhttps://www.blogger.com/profile/03634278899198336596noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-62280222484951790622008-04-26T21:02:00.000-04:002008-04-26T21:02:00.000-04:00Erin,Sorry for taking so long to respond. We star...Erin,<BR/><BR/>Sorry for taking so long to respond. We started 4 years ago. It has been on and off as we had the cash to do more. <BR/><BR/>I blog the things that work for him, but usually don't bother writing about what doesn't. If you click on the 'Chandler' tag, you can read all about what has worked for him. But in short... <BR/><BR/>GFCF/SCD diet, IV CaEDTA chelation, antiobiotics (have not written about that one yet)suppliments: glutathione, zinc, and a whole lot more, Sensory Learning Center, have all worked for him. But every child is different and you guys might have a somewhat different path to healing.<BR/><BR/>I would encourage you to start by trying the gluten free casein free diet, and adding in the specific carbohydrate diet some time later. You can also put him on a few suppliments that are the big ones that our kids respond to, P-5-P which is B, buffered C, Glutathione, chelated fish oil (Nordic Naturals is my favorite), Kirkman's Spectrum Complete is good.<BR/><BR/>I would encourage you to get to a DAN! doc as soon as you can, but in the mean time, you can get LOTS of input from other parents on how to start on the yahoo groups (Autism Biomed or BioMed Heads).<BR/><BR/>Children with Starving Brains is available in my book store on this site, that is a good book to start with.<BR/><BR/>Email me if you have any questions.<BR/><BR/>Glad that you guys are going to give it a go! It is exciting when you see your child start to make gains, especially when they become happier kids.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-7097080301160230662008-04-26T20:45:00.000-04:002008-04-26T20:45:00.000-04:00Sara,I can never get enough of people celebrating ...Sara,<BR/><BR/>I can never get enough of people celebrating with us.<BR/><BR/>Thank you!Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-21874265788581644192008-04-24T14:18:00.000-04:002008-04-24T14:18:00.000-04:00Ginger, not like you need another stranger telling...Ginger, <BR/>not like you need another stranger telling you how happy they are for you, but ... I am. As I haven't walked your road, I can't know the full extent of your happiness right now, but I am glad that you do! Keep up the great blog! And thanks for that awesome picture of Chandler. <BR/>SaraSara B.https://www.blogger.com/profile/15465364920966678640noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-45580237796233226712008-04-22T00:24:00.000-04:002008-04-22T00:24:00.000-04:00thanks, Tom. We tried the diet (just at home) and ...thanks, Tom. We tried the diet (just at home) and it only lasted a couple of days. He was mad about these "ice cream sandwiches" that were very similar to cardboard...I don't blame him!<BR/><BR/>will try harder, and dig in this blog more and keep reading!erinhttps://www.blogger.com/profile/08311241010608452919noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-53237269212895019412008-04-21T22:41:00.000-04:002008-04-21T22:41:00.000-04:00Ginger,What a gorgeous child! Chandler is absolute...Ginger,<BR/><BR/>What a gorgeous child! Chandler is absolutely radiant. <BR/><BR/>Our Amelia is recovering so beautifully. Right now her function is so NT. We are just in a mode of hoping she maintains and that we can finally break the gut cycle. <BR/><BR/>I have experienced something very spiritual as she has recovered and pray daily that all families affected by autism can experience the recovery Amelia has. I am so glad to hear this is happening for Chandler and your family. <BR/><BR/>PamelaThing1Thing2Momhttps://www.blogger.com/profile/07551734192469225164noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-90388086930795533842008-04-21T14:29:00.000-04:002008-04-21T14:29:00.000-04:00KF,I share your frustrations with professionals wh...KF,<BR/><BR/>I share your frustrations with professionals who don't get it. In our 4 short years on the journey we have had some great experiences (currently) and some where law suits would have been appropriate. <BR/><BR/>But I love when you find someone who is really invested in your child and knows how to partner with the family.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-14140865460494744322008-04-21T14:17:00.000-04:002008-04-21T14:17:00.000-04:00Thanks for all the love and happiness for us!Chand...Thanks for all the love and happiness for us!<BR/><BR/>Chandler is definitely in season of healing right now. We had some cool stuff happen since this, that I will share later it if holds.<BR/><BR/>Reading success stories is always bitter sweet. They bring both encouragement that progress can be made and grief that it is not our child that is having the breakthrough. This is a crazy life.<BR/><BR/>Thanks for you concern for my sweet boy and pray for him as you pray for your own kids.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-6752822573950212352008-04-21T13:17:00.000-04:002008-04-21T13:17:00.000-04:00Ok, Ginger you've done it! I'm bawling in my offi...Ok, Ginger you've done it! I'm bawling in my office. YES YES YES! I've been choking back tears in public when school staff and parents tell me how wonderful my son is doing and that they just knew he'd outgrow autism! He started chelation last September and has had a stellar year in 3rd grade. He finally, the first time in his life ... has energy (perhaps a little mito dysfunction???? Ya think?). <BR/><BR/>God bless you for all you do to help Chandler AND educate the world on so much! Your writings are great! Chandler looks AMAZING! I laughed through my tears at the stickers ... I have to tell you if one more person offers my son a sticker, he'll lose it! After 3 years of therapy and stickers ... he's all done with stickers LOL!!!<BR/><BR/>You so made my day!<BR/><BR/>KathyKathyhttps://www.blogger.com/profile/08580893336210902756noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-68009660678260514002008-04-21T10:38:00.000-04:002008-04-21T10:38:00.000-04:00Ginger,YAY!It's nice to get some validation from t...Ginger,<BR/><BR/>YAY!<BR/><BR/>It's nice to get some validation from the rest of the world. It's very, very nice, and kind of rare.<BR/><BR/>I'm really happy for you!<BR/><BR/>Erin Lindsay, Ginger has posted everything, everything, everything--just go back and read. :) It takes time, but some things you can do right away!<BR/><BR/>First: www.gfcfdiet.com<BR/><BR/>Go there. Start the diet. You will not be sorry. (I can tell because of what your son eats now.)<BR/><BR/>We did this diet for years--gluten-free, casein-free, soy-free, no deeply colored foods; it helps so many kids. But some kids need other diets. There's also the SCD. The GFCF diet (plus lots of other stuff) worked wonders for us.<BR/><BR/>Next: www.generationrescue.com<BR/><BR/>Find a rescue angel near you. (I'm listed in Ohio! You can write to me!)<BR/><BR/>It's so worth helping your child to feel better, mentally and physically. So I want to encourage you.<BR/><BR/>Terri LewisTomhttps://www.blogger.com/profile/04855272647050762250noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-73838544305805519622008-04-20T15:29:00.000-04:002008-04-20T15:29:00.000-04:00What a happy post to read. I am thrilled for Chand...What a happy post to read. I am thrilled for Chandler's progress! I admire your family's hard work, as well as your willingness to continue to share your story with the world. We are listening and learning so much. Thank you!kellyhttps://www.blogger.com/profile/00903178899872780251noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-77172526027446720552008-04-20T15:14:00.000-04:002008-04-20T15:14:00.000-04:00Hi Ginger! Forgive me if I missed it, I am new(er)...Hi Ginger! Forgive me if I missed it, I am new(er) to reading your blog...how long have you been chelating/treating? I'm just now looking into the process (I formerly was a blind faith believer of my peds and government, however that has recently changed.) Do you blog what all you are doing? My son is almost 11 and ASD, SID, so not sure what I need to do. Haven't found a DAN! doctor in Georgia, not that we can afford it right now, so just trying to figure out if it's worth my while or not. I figure getting him to eat something other than processed cheese and ice cream can't hurt ;). Most recovery stories I've found talk about nonverbal, more severe Autism. Do you know of any good information that would specifically help us? Just curious!<BR/><BR/>thanks, keep up the good writing!erinhttps://www.blogger.com/profile/08311241010608452919noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-42514108880432705842008-04-20T15:09:00.000-04:002008-04-20T15:09:00.000-04:00Agreed.He is one of the most beautiful red-headed ...Agreed.<BR/><BR/>He is one of the most beautiful red-headed children I have ever laid eyes on! (Hannah Poling is another that comes to my mind :-)<BR/><BR/>BTW: I had carrot red hair when I was small. Not anymore.<BR/><BR/>KelliAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-61945374302751410032008-04-20T14:06:00.000-04:002008-04-20T14:06:00.000-04:00When I read your latest entry it made me feel so i...When I read your latest entry it made me feel so included!<BR/>We are part of a club we never asked to be members of. It is so frustrating to deal with people who have not known our children from the beginning of our journey, so that they can see how far they have come! Keep up your good work. Our son is 15, and we are still fighting to pull him out of the abyss. Below is my latest exchange with a newbie to our sons journey.I don't think this person anticipated my response to her simple, but insulting question!!!<BR/><BR/>....The way that you asked me, "Well, can he make a sandwich?" is just too much. Yes, he can make a sandwich. Is it a mess? Yes! Your question leaves me with the feeling that you think that Nick's lack of daily living skills is some kind of huge failure on our part. <BR/> <BR/>When Nick regressed into Autism, he was unable to ask for a sandwich or a glass of water or a cookie. I think that you need you to understand what we have been doing while he has not learned to make the perfect sandwich. We did not find ourselves much worried about Nick's lack of daily living skill when he fell into the abyss. We made him reconnect with us, and I do mean made him. This is a child that PECS was recommended for. We pulled language out of him with constant painful, emotional, and very hard work. We spent hours and hours getting Nick interested in something other than his fingers and lining things up. We pulled good behavior out of him with hours and hours of constant and consistent behavior modification, so that he does not run out of your classroom or use foul language at you. With hours and hours of behavior modification, Nick will not turn over a desk in your classroom, or throw things at you. He will not raise his fist to others and hit them. Nick is able to sit at a desk and try to learn, no matter how repetitious or monotonous it is, or how uninterested he is in the work before him. He understands that this is his job. No, he can't use a measuring cup or the stove top but, I'll take him without culinary skills. <BR/>Please teach our son to read......K Fullerhttps://www.blogger.com/profile/11143196249757545392noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-24941573374647828732008-04-20T08:45:00.000-04:002008-04-20T08:45:00.000-04:00Oh Ginger! I am sooo thrilled for you guys!! Tha...Oh Ginger! I am sooo thrilled for you guys!! That is awesome. Please continue to shout it from the rooftops that there is hope for our kids to get well.<BR/><BR/>Chandler is so beautiful. That red hair is great. I pay good money and mine still doesn't look like that!MDMOMhttps://www.blogger.com/profile/08936736520052711470noreply@blogger.com