tag:blogger.com,1999:blog-7771487.post112500372636339624..comments2024-03-27T15:43:53.969-04:00Comments on Adventures in Autism: Boy Dies During ChelationGinger Taylorhttp://www.blogger.com/profile/04200286625735078479noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-7771487.post-41732587264675133052009-08-18T14:05:44.672-04:002009-08-18T14:05:44.672-04:00We've successfully chelated our daughter with ...We've successfully chelated our daughter with DMSA. She was lead/mercury toxic with severe seizures. Learn more at www.missioncleankids.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125408696511701312005-08-30T09:31:00.000-04:002005-08-30T09:31:00.000-04:00What is your basis for saying that the "the suppli...What is your basis for saying that the "the supplier of the EDTA indicates that Dr Kerry bought the wrong kind of EDTA (sodium EDTA)"? Are you just repeating Dr. Gordon's speculation or do you have some hard evidence?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125100344722823572005-08-26T19:52:00.000-04:002005-08-26T19:52:00.000-04:00Ginger - do you not understand the difference betw...Ginger - do you not understand the difference between IV and oral administration of a substance.<BR/><BR/>EDTA is a preservative used in food. It's obviously not very dangerous if taken orally.<BR/><BR/>The supplier of the EDTA indicates that Dr Kerry bought the wrong kind of EDTA. (sodium EDTA)<BR/><BR/>The kind that the supplier, Dr. Gordon said that he sold to Dr Kerry could be a very efficient drug to use to kill a child. It chelates calcium before it chelates lead and long before it touches mercury. It's not recommeded for mercury... but if you chelate all the calcium from a child's blood he will die.<BR/><BR/>Of a stopped heart. Get the picture?<BR/><BR/>An ear throat nose doctor killed a little boy by malpractice. And people like you, Ginger, who push the autism epidemic caused by mercury, helped to put him in that office that day. That' is what I believe.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125080608815515292005-08-26T14:23:00.000-04:002005-08-26T14:23:00.000-04:00I picked a really bad week to have a life. Chandl...I picked a really bad week to have a life. Chandler is off therapy this week and next, so I had seized upon the chance to get lots of things done. Sorry for neglecting my duties here.<BR/><BR/>I agree with Wade that there is plenty of blame to spread around, and I think that you are both right in that I am pointing fingers this week when that should be saved for later.<BR/><BR/>You learn a lot about peoples’ value systems by seeing what makes them angry, and I am seeing concrete examples of my own in action here. <BR/><BR/>The anger reaction that I have experienced over this matter, and the Donald T. revelation last week have really come from a place where I think that the higher up in the food chain you are, the more responsibility you have agreed to take on and therefore you bear.<BR/><BR/>Where in I feel like adult HFAs on the internet can say practically anything and they should be offered most latitude, I feel like the U.S. Health Authorities (even more than health authorities in any other country, because of the vast resources and influence they have) should not even be allowed the appearance of impropriety or a pass when they have not dealt with an issue as thoroughly, honestly and efficiently as possible. <BR/><BR/>I realize that leaves little room for human error, and having written so often that we need to offer one another grace, it seems to go against one of my core beliefs. I need to work on reconciling that.<BR/><BR/>Ephesians says 'be angry and do not sin, don't let the sun go down on your anger'. I am not a very angry person, and have not had a lot of big things to be angry about, so perhaps this is my time to learn how to be angry, but not to sin.<BR/><BR/>As with most things in life, learning balance in this is a challenge.<BR/><BR/>In writing this I am realizing that I have not let myself even become a little bit sad about this boy’s death until this moment. I got angry instead. That is a very unusual reaction for me. I usually go straight to the tears on most matters.<BR/><BR/>Anger is a great buffer against pain, and I think I am going directly there in this case because it hits way to close to home.Ginger Taylorhttps://www.blogger.com/profile/04200286625735078479noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125073039081042872005-08-26T12:17:00.000-04:002005-08-26T12:17:00.000-04:00No problem Kev. I was not offended by your comme...No problem Kev. I was not offended by your comment. All of us are talking about this in the dark. As a member of the biomedical community, I do agree with you that we should take a long look at ourselves as well as "outside" factors.Wade Rankinhttps://www.blogger.com/profile/12986780783735604000noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125068047239064932005-08-26T10:54:00.000-04:002005-08-26T10:54:00.000-04:00Blog tools tackle content managementDeploying a fu...Blog tools tackle content management<BR/>Deploying a full-blown ECM system to address basic corporate content publishing and workflow needs has been likened to trying to kill a fly with a rocket launcher.<BR/>Hey, you have a great blog here!<BR/>I have a <A HREF="http://1tinyurl.com/GuineaPigs" REL="nofollow">guinea pig prices </A> site. It pretty much covers guinea pig prices related stuff.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125064734976159752005-08-26T09:58:00.000-04:002005-08-26T09:58:00.000-04:00Kev,Frankly, I have not been too articulate in exp...Kev,<BR/><BR/>Frankly, I have not been too articulate in expressing my feelings about this tragedy. It was not my intention to lay the blame at the feet of the health care industry and have the biomedical community escape unscathed. If we have any integrity at all, we must take ownership of this tragedy and determine exactly what went wrong. If that means we have blood on our hands, we need to deal with it openly and honestly.<BR/><BR/>That being said, some of my anger has been directed at the fact that hospitals are not necessarily available for this. I may be speaking too soon, as we don't know if the doctor involved tried to admit the young man on an out-patient basis. But if a hospital denied admission for what is, in essence, a medically approved procedure, then my anger is not misplaced. But I agree that I can probably find a better target for the bulk of any anger.<BR/><BR/>I will not argue with you about what may be the better lead chelator. I can only note that EDTA and DMSA are both approved for use in chelating lead. The recent use of EDTA reflects a growing belief that the dysfuntion we see in autistic children may be related to a lot more than just mercury poisoning. I can only assume that this patient tested high for lead, otherwise there would be no point in using it.<BR/><BR/>I've been thinking of little else but this tragedy since I heard of it. In that time, my opinions on "what went wrong" have moved in several different directions. Up to now, we are all getting sketchy information from the media and on-line rumor mill. Maybe we should all wait until we get more information before we start forming lynch mobs.<BR/><BR/>In the meantime, as you have correctly pointed out in several locations, Kev, we're all losing sight of the real tragedy here. We all need to mourn with the Nadama family. Then, if further investigation shows where to lay the blame, let's honor his memory by doing the right thing.Wade Rankinhttps://www.blogger.com/profile/12986780783735604000noreply@blogger.comtag:blogger.com,1999:blog-7771487.post-1125025891463629452005-08-25T23:11:00.000-04:002005-08-25T23:11:00.000-04:00Ginger,Because of the immunological problems many ...Ginger,<BR/><BR/>Because of the immunological problems many of our children have, lead retention can be a problem that may exacerbate the symptoms. In such cases, EDTA is not only appropriate, it would be considered the gold standard procedure even by mainstream doctors (assuming any would agree that lead was a problem in the particular patient). Like other chelators, EDTA can be administered in various forms, but many parents have opted for an IV form to try and get the metal out that much faster. It is believed that by getting the lead issue out of the way, it becomes that much easier to work on the mercury issue.<BR/><BR/>Even though EDTA is not part of the official DAN! protocol, some DAN! doctors have incorporated EDTA into their practices. Because of the higher dosage and use of an IV, a procedure like this tends to present a greater risk than we see with the forms of chelation with which most of us are more familiar (e.g., DMSA or TD-DMPS). For that reason, it is probably a better idea to perform it on an out-patient basis at a hospital. But as J.B. Handley pointed out on line today, the problem is that few hospitals will allow any kind of chelation on autistic children, which almost invites a tragedy like this. Just another reason to be p.o.'ed at the health care industry.Wade Rankinhttps://www.blogger.com/profile/12986780783735604000noreply@blogger.com